Meet Gene Kunde, new CEO of Diabetes Hands Foundation

1pm PT, 4pm ET, 8pm GMT

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Gene Kunde joined Diabetes Hands Foundation (parent of TuDiabetes) as CEO in December of 2015, after an extensive search by our Board of Directors, and we are thrilled to have him!!  Already, Gene is making a strong showing at the helm of this important organization, as his extensive leadership experience, strong management background and enthusiasm for the crucial work we do come together to launch us into 2016.

“I consider it an honor to become the CEO of Diabetes Hands Foundation,” said Kunde. “Diabetes Hands Foundation has a powerful mission, serving as an important resource for those living with diabetes and their loved ones. I wanted to be part of an organization that aids and empowers individuals and I am energized by this opportunity to realize that ambition by contributing to the growth and impact of Diabetes Hands Foundation.”

Kunde brings to Diabetes Hands Foundation nearly thirty years of executive leadership experience in both the for-profit and non-profit sectors. He is the former CEO of Birkenstock USA, LP and of Sanita Clogs, Inc. Before that he was the COO of Epson America, Inc. He is also the former COO of Strive for College.

“We are excited to have someone with Gene’s record of business success lead the organization onto what we believe will be a period of significant expansion of Diabetes Hands Foundation’s reach,” said Dennis Urbaniak, Board Chair of Diabetes Hands Foundation. Gene is uniquely suited as one who can inspire with a clear and creative vision, while also possessing a business acumen that will advance the business strategically.”

Join us to meet Gene and learn how he sees the next year for Diabetes Hands Foundation and TuDiabetes!


CGM wrist watch??? Gary Scheiner explains and reviews

11am PT, 2pm ET, 7pm GMT

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The past several years have brought about a variety of new ways to see, track and share blood glucose data, including several CGM wrist watch options.  Are you confused about them?  So are we!!  In this interview, D-guru Gary Scheiner will explain, review and compare the different options available today.

Gary Scheiner is a certified diabetes educator, insulin-pump and continuous glucose monitor user and trainer, Masters-level exercise physiologist and expert at carb counting.  He serves on the advisory boards of several diabetes device manufacturers and pharmaceutical companies; volunteers for the Juvenile Diabetes Research Foundation, Diabetes Exercise & Sports Association, American Diabetes Association, and Setebaid diabetes camps; and serves on the faculty of Children With Diabetes.  Gary teaches and art and science of blood-glucose balancing to people with diabetes throughout the world from his private practice, Integrated Diabetes Services as well as through his online school of higher learning for insulin users, Type 1 University.

 


Big Blue Test Grantee: Carb DM, reaching underserved populations Northern California

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Carb DM will be using the fall 2015 Big Blue Test grant to serve two underserved populations in the Northern California area.  Asian Outreach Day is a program dedicated to the Asian community with type 1 diabetes. The program focuses on balancing type 1 diabetes and Asian cultures. The Asian Outreach Day features personal stories of people living with type 1 diabetes, a research update, understanding the benefits of exercise and type 1 diabetes and carb counting in Asian cuisine. The goal of the program is to help people from Asian cultures have a more open approach to their condition and be willing to self-advocate for themselves and their children. They also hope to help reduce the shame and mental burden of diabetes while increasing the connections among community members so they can build a network of support.

The second program that Carb DM will use the Big Blue Test grant award for will serve the Latino population in their community. Their goal with this program is to reach out to every newly diagnosed Latino family through connections at local hospitals and healthcare clinics.

These two programs are only a small fraction of Carb DM’s overall program offerings. Carb DM’s mission is to build a supportive community that improves the quality of life for people living with type 1 diabetes. They foster connections among people with diabetes, their loved ones, and medical professionals.

Now in their fifth year of operation, Carb DM offers over 80 programs a year to people of all ages and all levels of experience with type 1 diabetes. Carb DM currently serves over 1,000 families in the San Francisco Bay Area through a wide variety of programs that are geared toward people with type 1 diabetes and their caregivers.

Tamar Sofer-Geri, Carb DM Founder and Executive Director

Soon after her daughter’s diagnosis with type 1 diabetes in early 2009, Tamar Sofer-Geri realized that fellow parents of children with T1D are the true experts on managing the complexities of living with the condition. The more parents she met, talked with, and eventually mentored, the more apparent was the need for face-to-face interactions among parents, children, and families living with T1D in order to normalize their experience, share information, and get peer support. In 2011 Ms. Sofer-Geri founded Carb DM, Inc., a registered non-profit serving families and individuals living with T1D in the San Francisco Bay Area.

Prior to founding Carb DM, Ms. Sofer-Geri worked at Stanford University’s Office of Development and the Stanford Graduate School of Business for the better part of 15 years. Before moving to the US in 1996, Tamar graduated from Tel Aviv University with a degree in Political Science with a focus on Political Communication. She also wrote for The Jerusalem Post, at the time the only English-language daily newspaper in Israel.


“The Festival of Carbs” — 8 nights of carb counting challenges with Gary Scheiner, CDE

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Note: the video on Gary’s end is a bit grainy and glitchy, but the audio is fine.

Gary Scheiner is a certified diabetes educator, insulin-pump and continuous glucose monitor user and trainer, Masters-level exercise physiologist and expert at carb counting.  He serves on the advisory boards of several diabetes device manufacturers and pharmaceutical companies; volunteers for the Juvenile Diabetes Research Foundation, Diabetes Exercise & Sports Association, American Diabetes Association, and Setebaid diabetes camps; and serves on the faculty of Children With Diabetes.  Gary teaches and art and science of blood-glucose balancing to people with diabetes throughout the world from his private practice, Integrated Diabetes Services as well as through his online school of higher learning for insulin users, Type 1 University.

Integrated Diabetes Services

The staff at Integrated Diabetes Services provide blood sugar regulation and advanced self-management training services for childrenand adults, in a one-on-one format both in person and remotely via phone and internet (including e-mail, private chat, and video conferencing).  As an educator-based, private-pay practice, they strive to supplement the services provided by physicians, working in a cooperative effort with each client’s healthcare team.  Referrals from physicians are preferred but not required.  Services are available on a fee-for-service basis, with retainer packages for those requiring more intensive intervention and follow-up.

In addition to helping clients achieve better blood sugar management, Gary Scheiner and his staff offer an extensive range of diabetes self-management training/education services, customized to each client’s unique needs and interests.  They also offer a free quarterlysupport group and produce a popular Blog.  Prior editions of our highly-acclaimed newsletters Control Solutions and Diabetes Bites are available for viewing online.

Join us on TuDiabetes for a live presentation and question-and-answer session with 
Gary Scheiner, founder of 
Integrated Diabetes Services and author of 
Think Like a Pancreas, 
The Ultimate Guide to Accurate Carb Counting, and now Until there is a Cure: the Latest and Greatest in Diabetes Self-Care.

 


Live interview with Klemen and Luka Zupancic, creators of EasyCarb

1pm PT, 4pm ET, 8pm GMT

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What is Easycarb?

Easycarb is the first complete solution for tracking carbohydrates, intended to make the process simple, accurate and efficient. It consists of a powerful app combined with a dedicated portable Bluetooth scale, which together automatically determine the exact amount of carbohydrate in a given meal, calculates corresponding insulin doses and logs everything for easy access at all times. It is intended to make carb counting accurate, fun and engaging for everyone.

Where are we right now?

The Easycarb project is already in motion, and founders Klemen and Luka Zupancic have all the blueprints for production ready. They are currently looking for potential strategic partnerships or investments from like-minded organizations, companies and individuals from the field of diabetes innovations to help finalize the product and bring it to the market.

Klemen and Luka Zupancic

Brothers Klemen and Luka Zupancic are researchers in the field of biomedicine and regenerative medicine, and founded Easycarb in November 2013.

Klemen and Luka have both been involved with diabetes as part of their academic pursuits, which led them to develop a mutual interest in the condition. They started focusing their efforts towards diabetes research and participating in various workshops and courses about diabetes management as volunteers, where they got the opportunity to talk with people living with diabetes and listen to the challenges they face every day. It was not long until they realized that something was very wrong with the current standard for counting and tracking carbohydrates.  This process is crucial for maintaining short-term and long-term health when it comes to diabetes, yet it is extremely outmoded, inconvenient and inefficient, and has remained virtually unchanged for decades.

As researchers, Klemen and Luka always relied on scientific fact when it came to the work they did. When recent global studies and clinical trials revealed the importance of good carbohydrate management and the role it plays in the management of diabetes, there was no more doubt in their minds; they decided to modernize the process of tracking carbs and make it simple and effective, so everyone could do it right. They wanted to create change, and Easycarb is their way to do it.

 


Dr. Sean Vasaitis presents D.A.I.L.Y.

1pm PT, 4pm ET, 8pm GMT

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What is D.A.I.L.Y?

This new resource developed by the Endocrine Society and Hormone Health Network, called D.A.I.L.Y., or Diabetes Awareness Information for Loved Ones and You, was created by endocrinologists and diabetes experts to help people with Type 2 diabetes take control of their condition and better manage their symptoms, as well as engage loved ones for support. D.A.I.L.Y aims to help people become more active participants in their daily diabetes management and inspire them to take greater control of their health care.

Dr. Sean Vasaitis is one of the Endocrine Society members who helped to create this program.

Sean Vasaitis, Assistant Professor, Pharmaceutical Sciences

Dr. Vasaitis completed his doctoral work in Molecular Pharmacology and Experimental Therapeutics at the University of Maryland School of Medicine in 2007.  He holds a masters degree in Exercise and Health Science from Miami University, Ohio and a bachelors degree in Biology from the University of Maryland, Eastern Shore.

Prior to his appointment at the UMES School of pharmacy, Dr. Vasaitis was a research fellow with Dr. Angela Brodie and Dr. Vincent Njar at the University of Maryland, Baltimore (UMB).  At UMB he was involved in the development of novel inhibitors of androgen action for the treatment of prostate cancer.  He also is involved in clinical research in the Geriatric Research, Education and Clinical Center at the Baltimore Veterans Affairs Medical Center investigating the mechanisms by which exercise, vitamin D and complementary therapeutics affect metabolic function.

Dr. Vasaitis’ research goals follow the overarching concept of integrating Western approaches to medicine and pharmacological therapy with evidence-based complementary medicine to further a holistic approach to disease treatment.  In addition to his research in novel drug development and metabolic function, he has taught taijiquan (tai chi) to patients with stroke, cancer, multiple sclerosis, cardiovascular disease and diabetes as part of studies with Johns Hopkins Prohealth, the University of Maryland School of Medicine, and within his own business practice.


Holiday chat series: Christmas!

3pm PT, 5pm ET, 11pm GMT

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December is a month of many holidays!  On TuDiabetes we’d like to set aside some time to meet up in our chat room to wish each other well on the various holidays we celebrate and discuss how we celebrate, what we eat, what the holiday means to us, and more!

Join Diabetes Hands Foundation’s Sarah Edwards in the home page chat room on Christmas Eve eve to talk about Christmas plans, recipes, trivia, and to wish each other a merry Christmas and share a virtual glass of egg nog 🙂


Live interview with Dana Lewis, creator of Do-It-Yourself Pancreas System (#DIYPS)

1pm PT, 4pm ET, 8pm GMT

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Diagnosed at age 14 with type 1, Dana Lewis had the usual experience of years of frustration of dealing with diabetes devices that did not communicate with each other. She often imagined a system that would take data from each device, run it through the algorithm that every PWD uses in their head dozens (or hundreds) of times a day, and automate some of the decision-making process. In late 2013, this became a reality after someone shared their code to help pull data off of a CGM in real-time. Dana and her now-husband Scott Leibrand used the CGM data to create a decision-assist system they called #DIYPS, the “Do-It-Yourself Pancreas System”. #DIYPS took CGM data and, with Dana entering information about insulin delivered by her pump and carbohydrate information, processed the data to provide real-time predictions – and alerts – to help her know when to take action. (#DIYPS also had louder alarms to wake Dana up at night, as she sleeps through CGM alarms – this was one of the key drivers of developing a system.)

After a year of using #DIYPS and with collaboration from the wider #wearenotwaiting community, they were able to take the #DIYPS algorithm and “close the loop”, using a raspberry Pi and a Carelink USB stick to automate the process of uploading data, run it through the algorithm, and if needed issue temporary basal rates to the pump…then read the data, and perform the process automatically over and over again. Dana wanted to find a way to make this type of DIY effort available to more people more quickly (and help fill the gap between now and when a commercially available artificial pancreas comes to market in 2017 or 2018). This is how the #OpenAPS movement was born, with a goal to make safe and effective basic Artificial Pancreas System (APS) technology more widely available. #OpenAPS is a number of things: a toolkit to help people communicate with their diabetes devices; a reference design for a closed loop system; and a series of basic documentation for those who are choosing to build their own OpenAPS system.

Dana can be found online at @DanaMLewis, #DIYPS, and #OpenAPS on Twitter. You can read more about the #OpenAPS movement and get links to the documentation at OpenAPS.org.


Your questions, answered!! #YesSalud interview with Lorena Drago and Marina Chaparro

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The #YesSalud bilingual campaign, a collaboration between the Diabetes Hands Foundation online communities and USAGov, aims to raise awareness about diabetes; different types, prevention and how to help loved-ones with diabetes. Every week in November we will be presenting a different theme, with the goal to provide as much information and as many resources to our community as possible.

Throughout the month of November the #YesSalud campaign has encouraged people to ask their diabetes-related questions HERE, or on twitter or facebook using #YesSalud.  We have been collecting these questions, and this live-streamed event will focus on discussing and answering them!!  Join us on December 3rd to learn what others have asked and how our experts, Lorena and Marina answer your questions.

Lorena Drago, MS, RD, CDN, CDE, is a registered dietitian, consultant and certified diabetes educator.  Lorena Drago

Lorena specializes in the multicultural aspects of diabetes self-management education and is an expert in developing culturally and ethnically-oriented nutrition and diabetes education materials. She founded, Hispanic Foodways which received the New York City Small Business Award in 2006. She developed the Nutriportion™ Measuring Cups that has the calorie and carbohydrate amounts of common foods embossed on each cup and the Nutriportion™ Hispanic Food Cards that have pictures and nutrition composition of common Hispanic foods.

Lorena served on the American Association of Diabetes Educators board of directors from 2006-2010, Chair for Latinos and Hispanics in Dietetics and Nutrition. She was Past President of the Metropolitan New York Association of Diabetes Educators in 2004. Lorena won the Diabetic Living People’s Choice Award in 2012.

She is the author of the book Beyond Rice and Beans: The Caribbean Guide to Eating Well with Diabetes published by the American Diabetes Association. She is a contributing author and co-editor of the book Cultural Food Practices and Diabetes, published by the Academy of Nutrition and Dietetics and print communications chair for the Diabetes Care and Education Specialty Practice Group of the Academy of Nutrition and Dietetics. Lorena’s new publication, The 15-Minute Consultation Guide will be published in 2016 by the Academy of Nutrition and Dietetics. Lorena has appeared on several national TV shows speaking about diabetes management.

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Marina Chaparro, RDN, CDE, MPH, is a bilingual pediatric and diabetes nutrition expert. She is a certified diabetes educator at Joe DiMaggio Children’s Hospital, where she provides comprehensive diabetes education to children and families and instructs patients on the latest technology advances in diabetes care.

Chaparro is an insulin pump and continuous glucose monitor trainer and is often asked to speak on topics such as childhood obesity, infant nutrition, diabetes and Latino Health issues. She is National Spokesperson for the Academy of Nutrition and Dietetics and has extensive experience providing science-based commentary to major media outlets such as The Huffington Post, Univision Media, Miami Herald and Reuter’s Health. Marina often contributes articles and story ideas to print and online communication channels where she translates nutrition science into practical every-day information for consumers. Chaparro is also the founder of Nutrichicos Children’s Nutrition Center, a bilingual nutrition center specializing in pediatric nutrition that offers individualized nutrition assessments & services in both Spanish and English.

On her blog, www.nutrichicos.com, Chaparro shares reliable, practical and science-driven recommendations to help parents and families meet the nutrition needs of their children. Marina has experience working at top diabetes institutions including Joslin Diabetes Center, Mass General Hospital and Miami Children’s Hospital. She is passionate about diabetes care since her diagnosis with type 1 Diabetes at age 17. Chaparro’s background includes clinical nutrition, public speaking, public health, research and program planning with a focus on Latino health issues. She co-created a successful nutrition and physical activity program for Hispanic adolescents and their mothers, called Healthy Chicas while working in Miami Children’s Hospital. Chaparro earned a specialty certificate in pediatric weight management. Marina is a graduate of Boston University and earned a master’s degree in public health from Florida International University.


“You Can’t Eat That!” – the effect of words on diabetes, research by Jane K. Dickinson

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Jane K. Dickinson is a nurse and Certified Diabetes Educator, who has been living with type 1 diabetes for 40 years. In 1993 Jane gave her first talk on the importance of considering language when working with people who have diabetes, and she has been interested in the impact that words have on our diabetes experiences ever since. Jane oversees the (online) Master of Science in Diabetes Education and Management Program at Teachers College Columbia University (www.tc.edu/diabetes) and incorporates discussions on using patient-centered and strengths-based language into each of the courses she teaches. Jane also provides diabetes education to patients, families, and health care professionals in northwest Colorado.

In March Jane began her research on the effect of words on diabetes. In this live interview Jane will share the results of the focus groups she conducted, including the virtual focus group that was held here on tudiabetes. Jane’s own experience with words and diabetes, as well as her research  findings, have prepared her to work with diabetes professionals and patients alike. Jane’s goal is to help people adopt more empowering words when speaking or writing about diabetes and those who live with it.


Holiday chat series: Winter Solstice!

1pm PT, 4pm ET, 9pm GMT

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Join us HERE at the time and date of the event

December is a month of many holidays!  On TuDiabetes we’d like to set aside some time to meet up in our chat room to wish each other well on the various holidays we celebrate and discuss how we celebrate, what we eat, what the holiday means to us, and more!

Winter solstice, which is December 22nd in theNorthern Hemisphere, is the shortest day and the longest night of the year. Many cultures throughout human history, including the present, have celebrated this day and night as an important time in the astrological calendar.

Join Diabetes Hands Foundation’s Corinna Cornejo in the home page chat room to talk about what Winter Solstice means to different people, and if you are someone who celebrates it join us to share what you do!  Are there special foods associated with this holiday?  Special practices?  Does your celebration relate to your diabetes in any way?


Holiday chat series: Hanukkah!!

3:30pm PT, 6:30pm ET, 10:30pm GMT

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This event will occur in our main chat room on the TuDiabetes home page.  It is NOT a live-streamed event.

December is a month of many holidays!  On TuDiabetes we’d like to set aside some time to meet up in our chat room to wish each other well on the various holidays we celebrate and discuss how we celebrate, what we eat, what the holiday means to us, and more!

On Tuesday, December 8 those who are interested are invited to meet up in the chat room on our home page to wish one another happy Hanukkah!  You don’t need to be Jewish to join.  Everyone is welcome!

This chat will be hosted by Diabetes Hands Foundation’s Emily Coles, and TuDiabetes member Thas.