Live Interview with Grace Murphy, 10-year-old Bionic Pancreas trial participant

Event Details

Live Interview with Grace Murphy, 10-year-old Bionic Pancreas trial participant

Time: August 4, 2014 from 9am to 10am
Location: TuDiabetes homepage
Website or Map: http://www.TuDiabetes.org
Event Type: live interview, videochat
Organized By: Emily Coles
Latest Activity: on Wednesday

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Event Description

This event already occurred.  Enjoy the recording!

Grace and her mom, Nancy, will be joining us fresh from Grace's summer camp for kids with diabetes, where she got to try out the Bionic Pancreas for ONE WEEK!

Grace has had T1D since 2011 and uses an insulin pump and continuous glucose monitor to manage her diabetes. Ever since she was diagnosed, she has continued to be very active in soccer, dance, and she has even completed two Triathlons and she plans to do more.   

The Murphys met Dr. Ed Damiano at the 2014 Children with Diabetes - Friends for Life Conference in Orlando, FL after his wonderfully informative and inspiring presentation on the Bionic Pancreas.  Nancy spoke with Dr. Damiano about Grace participating in his upcoming clinical trial for T1D children ages 6-11.  Grace very bravely agreed to participate. The trial was scheduled to begin just two weeks later at the Clara Barton Camp in Massachusetts.  Grace successfully completed the official screening process then Mama Murphy scrambled to make all the travel arrangements and get Grace enrolled at the camp.  (It was a lot of work!)

On July 20th, Nancy dropped Grace off at Camp, where there were about 100 kids at camp, of which 12 girls were in the study.  (A study with the boys will be coming up soon at Camp Joslin.)

Nancy also has type 1 diabetes, for almost 45 years, and can speak to the incredible advances in T1D care from the time of her diagnosis to Grace's test-run of the BP!

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Comment by Sarah Moulton on August 4, 2014 at 1:43pm

Same question here on the west coast. Is there still a way to view this, obviously not the live version. I couldn't watch at 9am our time.

Comment by Wendyb on August 4, 2014 at 11:45am

is it possible to still view this recording? I missed the live event today. Darn!

Comment by Danielle Jamieson on August 4, 2014 at 10:47am

has it already happened?

Comment by Chris on August 2, 2014 at 8:44pm

I've read about this on sixuntilme blog. How wonderful to have a low maintenance week. I just want to know how it was having 2 pumps, a cgm and all the tubing. Looking forward to hearing about the experience.

Comment by shari lynn Giarraputo on August 2, 2014 at 8:47am
Looking forward to chatting. Any chance for any age? I will be 45 and my A1C's are very controlled.
Comment by Allyson Erick on August 2, 2014 at 3:32am
I am so glad to see this! I hope things become available rapidly now.
Any hope for getting into a trial for a 60 year old?

Attending (27)

Might attend (9)

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Diabetes Hands Foundation Team

DHF TEAM

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


DHF VOLUNTEERS


Lead Administrator

Bradford (has type 1)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

Brian (bsc) (has type 2)

Gary (has type 2)

David (dns) (type 2)

 

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