#MedicareCoverCGM: panel discussion

Event Details

Event Description

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Merle Gleeson, founder of Type 1 Diabetes Lounge

Merle was diagnosed with type 1 diabetes in 1963, when medical conditions were not openly discussed and there was little support for families and children who were struggling with this disease.  In 1997 Merle founded Type 1 Diabetes Lounge as a forum for education and support for adults with type 1 diabetes in the Chicago area.

Lynn Wickwire, Consumer advocate at Joslin Diabetes Center

Lynn Wickwired has been involved in health policy work for a decade.  He is married with a son, daughter and 2 granddaughters.  Lynn has lived with diabetes for 70 years and uses an insulin pump and CGM.

Richard Vaughn

Diagnosed with diabetes  in 1945, after 69 years Richard has no severe diabetes-related complications.  A former college math teacher, Richard has been married for 50 years, has 2 sons and 2 grandkids, and is a local celebrity on TuDiabetes for his longevity with diabetes and consistent, positive presence in the community. He eagerly helps fellow PWD on several online networks, including a facebook group for Joslin Gold Medalists, in addition to his friends on TuDiabetes.

Dan Fleshler, The Insulin Chronicles

Dan was diagnosed with Type 1 diabetes in 1962, and for the next 50+ years he knew more details about the Boston Red Sox than about the inner workings of his body.  In 2012 Dan decided to read everything he could about diabetes, hoping to learn about its link to depression, which had plagued him for much of his life.  Read his blog to learn what happened next, and his recent article in Diabetes Mine about Medicare and CGM.

Joanne Milo, The Savvy Diabetic

Joanne has had Type 1 diabetes for over 48 years.  When she was diagnosed, at the age of 11, the tools available to manage and control diabetes were minimal.  Urine testing and animal insulin, no insulin pumps or HbA1c testing, and certainly no CGMS.

In the past 5 years Joanne has been hospitalized several times, and has written a book about surviving the system
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Comment by Rene on August 26, 2014 at 9:58am

On the side I have heard so many of y'all talk about Dexcom as being so great, why? If I'm going to pay for my own maybe I want something better than Medtronics.

Comment by Rene on August 26, 2014 at 9:54am

It seem like a double slap in the face, first you turn 65 and Medicare refuses to pay for you CGM and then you need to wait until they refuse to pay each time you want to order them. Can't they at least leave us dome dignity and just send us what we are not happy, but willing to pay for ourselves.

Comment by Manny Hernandez on August 22, 2014 at 7:08pm

It will be recorded, John. So even if you miss it live, you will be able to watch it afterwards.

I AM SO EXCITED about this event!!!

Comment by Richard157 on August 1, 2014 at 5:27pm

I used the Dexcom 7+ CGM a few years ago, but my insurance policy changed, and I am no longer covered. I will need Medicare approval and coverage to be able to use the new Dexcom with the G4 sensor. I have heard so much praise of the new Dexcom, and I want so much to use it. My control would improve very much, I am having too many highs and lows.

Comment by Paul Patten on July 24, 2014 at 4:40pm

I have used a cgm since 2009 and have found it invaluable for helping gain better control. Last year I became Medicare eligible. This caused an extra bureaucratic step of having Medicare reject the sensors and sending the bill on to my secondary insurance which pays a portion and the a bill is sent to me. The big difference is that it takes longer to get bill for the sensors. I don't know that it would be necessary for medicare to pay part of the sensors but the notion that the sensors might not be necessary for the safe control of long term type 1 diabetes (nearly 56 years for me) seems a bit unreasonable. I am sure that a lot of the reason for the rejection is a matter of near term cost and the fact that they may see the treatment of diabetes as a matter of controlling diet and medications to control bp, weight and cholesterol rather than supplying a necessary but difficult to properly dose hormone, insulin.

Comment by John P on July 6, 2014 at 10:27am

I might be on an airplane, but will attend if not.

I started on Dexcom CGM 2/2009 with company paid insurance. I retired 11/2012 and kept the Dexcom as I would rather give up the pump than the Dexcom. While it is self-pay direct from Dexcom, I average about 10-12 days per sensor which helps reduce the cost.
I think that Medicare should cover CGM although I am not sure how they would determine which T1 folks can effectively use it.

Attending (32)

Might attend (13)

Not Attending (2)

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Diabetes Hands Foundation Team

DHF TEAM

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)

DHF VOLUNTEERS


Lead Administrator

Brian (bsc) (has type 2)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

DanP (has Type 1)

Gary (has type 2)

David (has type 2)

 

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