I just got off the phone with our new insurance company and her endo. I consider myself a capable, high functiong adult with plenty of resources. Today I'm feeling so frustrated and sad and burnt out with all that it takes to manage this disease with/for my child.
Aside from the grief for my daughter and her chronic illness I'm tired from struggling with her (she's a teen.) She's resistent to doing what needs to be done to keep herpself healthy in the long run and controlling her blood sugars (doesn't bolus when she should, doesn't check her BG etc. Then there's the battling/advocating/calling/figuring out how to navigate all that needs to be navigated to get her what she needs at school, after school activities, insurance/medical needs.
Finanically I'm fortunate enough to have coverage for her and a decent paying job. I'm a single parent, struggling, always, to make ends meet and the constant changes/challenges nuances are difficult to keep up with.
I'm venting more than anything. We are incredibly blessed and fortunate in so many ways. I just don't have a spouse or signficant other to talk to. There's no one in my life that understands the toll managing all this takes, on a daily basis. I try to be very careful never to show or say anything about how this affects me to my daughter. I'm not the person living with T1, just the parent. Seems trivial to even go down the path of feeling sorry for myself or sad at all.
I wish we living in a bigger town, with more access to support options and I had more time in my day/life to attend to all this stuff without having to squeeze it into breaks or lunch hours etc.
Thanks for listening - it helps just to type it all out.
Onward and upward!!