I called to get a refill on my Humulin R U-500 insulin, and the pharmacist called me back to warn me the wholesale price had gone up again. In November of 2011, the wholesale cost per 20 ml bottle was $425. The price has gone up every couple of months. I am disabled, so I get Medicare even though I'm not 65. I signed up for an HMO that takes your Medicare deductions for A,B&D along with $50 per month of my SSDI income. I get a little extra a month from disability insurance. Just barely enough that I don't qualify for any poverty based assistance. I contacted PPARX.ORG, with no luck there. It seems that if you have insurance it disqualifies you for most aid programs. I have several questions:
1. Do you know of any other places, I might be able to get some help with the co-pay on my insulin?
2. Is there some government agency that you can file a complaint about price gouging? I've been on this insulin for 5 years. The first 4 years the price was relatively stable. When a competing company discontinued a similar product and Lilly had the monopoly, the price has skyrocketed.
3. Is anyone here taking normal Humulin R U-100, and has the cost of it rose by 70%? The U-500 I take is just a more concentrated version for insulin resistant people.
4. Is there any justifiable reason the cost of this specific type insulin would rise by 70%? After talking to six people at Lilly, trying to get an answer, all I could get is, "We don't set the prices. You will have to talk to your pharmacy." It is not like there is any R&D cost to recover.
Sorry for such a long message. I just found out today. I will no longer be able to afford my insulin, and I don't know where to turn.