I wish people understood that diabetes is unlike other incurable diseases in that not only is there no cure, but there’s no “treatment”.
What I mean is there’s no treatment the way there is with most other diseases. We can’t “medicate” the disease and then “be fine” until time for the next dose. It’s not as simple as remembering to take our meds and never eat sugar.
People don’t understand that it is a CONSTANT balancing act and sometimes, the “medicine” we need may be, in fact, sugar.
They don’t realize that after a meal, our number may go up for a short period (because they don’t know that’s how their own bodies work too, but with a functional pancreas to do all the thinking & their own non-synthetic insulin to do the job).
They don’t comprehend that just because our body responded in a perfectly acceptable manner to X amount of insulin:food ratio yesterday doesn’t mean it will do the same today.
They don’t know that stress and “nerves”, depression or even excitement can cause changes in our levels or that our “number” can change from one moment to the next. (I detest when someone asks how my sugars are today, as if it will be the same at the end of the day as it was when I got up. )
If only people could realize that living with diabetes is like riding a virtual roller coaster except we can’t see the track.
I just can’t use the word “controlling” to refer to coping with diabetes (instead of “living with”) because honestly, if we added up the actual amount of time our blood glucose is in normal range, it would be a very small percentage AND can you really call it “control” if even that perfect number is subject to change?
The only predictable thing about diabetes is its unpredictability. Not that we can’t do whatever we set our minds to, but it takes SO much effort and can change in a blink from a good situation to bad when the unexpected happens.
That’s what I wish people understood.