I'm sorry to hear that you're facing amputation but there are days that I wonder if that [amputation] might provide more relief than keeping feet that are so painful in so many ways. Mine burn, feel like they are going to explode, feel totally numb, get stabbing pains, dull pains, or deep aching pain. None of it is consistent though...It varies from day to day.
Only a person that is suffering with Charcot's really knows The available meds for the disease are marginal at best. I have tried them all, with Lyrica being my current regimen. Lyrica helps a little, but has several side effects that I don't like (constant drowsiness, mainly). But I know if I didn't take it, the pains would be substantially worse. So I'm just stuck with what I have.
I don't have any external wounds from the bones yet, but it's a day to day concern. My arch is rocker shaped and protrudes making it painful to walk very far even with the boots. The problem with the tendons being gone, will almost certainly mean (according to my Dr.) that I will need fusion of the ankle in the near future. For now, he prescribed yet another brace that is a lace up affair, that looks like a high top boxer's shoe with the toe cut out. This contraption is supposed to support the foot better after the tendon issue. It's meant to be worn with a regular shoe but it cannot keep my poor arch from jabbing into the ground with every step I take.
Like you, I hate the boots. They're heavy and awkward and my hips hurt constantly from wearing them. I have to stop and rest when I walk from the exertion required. I have little mobility in my home and it seriously impacts my ability to do even simple things.
I used to do a lot around the house, but can't now because of the stupid boots. When we do go out, I use a little scooter, but that has about worn out and the insurance companies seem to consider them "recreational" toys vs. a necessary aid to a handicapped individual.
It seems now, that my only option is to pursue a power chair, which the insurance will pay for...but that creates a whole new range of problems. The least of which, is that I don't have a vehicle that will accommodate a 200 lb. chair inside. This, of course, means that I would have to have a power lift on the back and since I don't drive any longer, my wife would have to deal with it. We need a van, but can't afford it right now. Our current vehicle is a lease and we have to turn it back in come this July. Not sure what exactly we'll do then.
I guess that's the hardest part of this whole thing for me, is the impact that it has on her. She's been wonderful and I appreciate her more and more everyday, but it is a strain on her and I worry that she will get hurt doing something that I would have done if I were able bodied.
But everyone has issues and mine are neither unique or any more important than anyone else's. We just have to take it one day at a time and try and keep our spirits up, as best we can. You do the same, maybe a power chair is in your future, as it is mine. But don't look at it as a bad thing, but rather a way to restore your mobility, which will enrich your life and make things easier.
Good luck and keep us posted on your recovery...