Thank you for that. I know where you are coming from. My diabetes was missed for about 10 years - I remember being breathless, very weak, could barely walk, and from being about 14 stones (I had been on 6 months of steroids after suffering anaphylactic shock) I started losing weight - which at first I was pleased about - except that I was vomiting all the time - and the weight loss did not stop! my lowest weight was 5 1/2 stones and I grew a lot of downy facial hair (a symptom of malnutrition!) My liver packed up for a while. I had the smell of ketones but nobody picked that up - they just thought liver, smell, alcoholic problem. They then decided that the liver was due to me being on certain medications long term without having been checked - the doctor had given me four differently named medications which were exactly the same thing for indigestion (finally, after years diagnosed as a hiatus hernia) so I was being quadruple overdosed! It took about 6 months to heal but I have never had liver problems since. Looking back I do remember them checking my glucose levels a lot in those weeks in the hospital but nobody mentioned that I might be diabetic. When I first went in I was quite high and they were worried but nothing more was said.
I was still getting severe stomach pains and vomiting about 4 years later and to cut a long story short it was discovered that I had cysts on both my spleen (hence the stomach pains and hiatus hernia - it was pushing my stomach up into my chest cavity) and another on my pancreas. I had been aware of the one on the pancreas since 1989 when I had been back to my homeland to be checked for low blood glucose levels (at the time the UK was not believing that anyone could suffer from low blood glucose levels - but my real father and I both suffered with it. I think there was mention that it might turn into diabetes at a later stage but I was just so glad that I had a diagnosis that I pushed it to the back of my mind.
The splenic cyst was drained in a pioneering procedure (I was the first in the world to get that op) and after a couple of weeks was pain free for the first time in all the time I could remember! It was brilliant, but because I was anaemic as well from bleeding stomach ulcers I stayed in hospital a total of 6 weeks. They were just about to discharge me when they said they were going to do ANOTHER fasting blood test (I am a needle phobic!) Later that afternoon I got the diagnosis and my first word was not polite! I had Type 2 diabetes! (wrong as I was to discover 2 years later!) I had been very restless at times and would sometimes go for a walk around the hospital at 3 am or so. On several occassions I would come back, not having met anyone, to be told that I should not be drinking alcohol! Where would I get alcohol at that time of the day? Alcohol was the last thing on my mind and the nearest shop was 2 miles down the road and I was pulling a drip stand!!! (that was probably ketones).
Anyway, I stayed in for another 2 weeks (totally missed Spring of 2004!) and I was put on tablets. following another DKA episode in which I nearly died (but had been accused of drinking again!) they asked me when I came round why I had not taken my insulin? Er, well, I had not been given any and I was Type 2. They said that I was very definitely Type 1 and that I would need insulin! They gave me insulin but forgot to tell the nurses and when I first went hypo I was terrified! I felt the need to eat and they said that I would have to wait for an hour until lunch!
Since then it has been a roller coaster of a ride! 9 hypos a day and being told to pull myself together until I met a man during a hypo and sitting on the font of a church stuffing sweets yet again - he told me I was diabetic. Erm, yes, I had sort of got that one sorted - and he told me which insulin I was on. My ears pricked up. What did he know? He strongly suspected that I was allergic to the human insulins resul