Anna, you are such a beautiful girl... I'm so sorry this is happening to you. I found a Wikipedia link that explains the whole mess pretty well: Necrobiosis lipoidica
Sadly, it doesn't seem there is any very effective treatment. What you've been given by your docs -- steroids -- is about the only thing with any efficacy, and minimal at that.
From a lifestyle/QOL standpoint, how do you deal with it? Since this is chronic and difficult to treat, tips you have, and others here that have had this as well, might be very helpful to others.
For example, you said you lived in FL for awhile... When you would wear shorts, go to the beach, etc., how do you handle it? Do you have a large skin-colored bandage to put over it?
To others that have had this, how do you manage it from the standpoint of your Quality of Life?
While the wiki article says inproving blood sugars doesn't help, Itake that with a grain of salt... you always have to ask yourself what the author(s) mean by "improve". Maybe getting A1c down to 7 doesn't make much of a difference, but get it down to somewhere in the 5-6% range would. It's just that, without a pump, that's really hard (nearly impossible for most people) to achieve, so it isn't considered in rendering a prognosis.
If you have insurance, apply for a pump. Get an omnipod. It has literally changed my life. You already have half the technology equation -- a CGM -- now all you need to complete the artificial pancreas is a pump.
Third component of the artificial pancreas you already have -- your brain.
I went from a crisis 11% to 6.3% in 3 months with CGM and pump therapy. My goal is to get it down under 5.5.
So my strongest advice is to put some real effort into getting a pump. If you have insurance, go for it. If not, talk to Medtronic, Insulet, etc. and see what sort of help programs they might have. Joslin also might be able to help. Heck, others here are far more knowlegable than I am in where to get this sort of assistance.
Main thing is, don't just accept this condition. Do everything you can to make yourself "normal" insofar as your BG control is concerned. As Terrie said, better control helped her. Hard as it is to hear, 7% being "good control" is a somewhat outdated standard, but still the one in use, primarily because, well, it's pretty inexpensive to achieve that.
And again, my heart goes out to you... For me personally, this would be hard to deal with.