Yes not sure if the weight gain is causing insulin resistance though could contribute..It seems like the old rules I learned long ago don't apply to me anymore too. Just got a new Dr. affiliated w./the Joslin, hope it helps. ...Was recently in hospital for DKA and someone said yes it's like trying to hit 20 moving targets and when you hit one, it changes the next day or week...It makes it impossible to keep up and I can't keep up anymore or figure it out...but all the while still trying to do what I 'should' and apply what the Dr said to do w./insulin...with futile results, though sometimes it has worked ok in the past. They told me in hospital to not change the scales too much (food insulin, correction factor and exercise) b/c then sugars could crash again and I'd be afraid to use the insulin right b.c crashing used to happen frequent enough which caused me to not use the insulin as I should've to avoid crashing..So I lessened my carbs a lot in order to take less insulin, but still wasnt' taking enough for my sugars, which prob led to dka....Now to try to make up for all the weight I lost, I ate much more nuts, cheese etc (low carb as to not take insulin) which led to some weight gain.
Now, even if I don't eat, in between meals it'll go up after 2-4 hrs, and other times it'll go down or stay the same, w/same food and insulin. Just the other day it went up 60 pts right before dinner and I hadn't eaten since lunch. That makes it look like my pre meal sugars are much higher than they are (even though still not where they should be, at least it would be better than going up by itslef) ...and t hen them upping the dose to stop that when other times that might not happen. Had a friend in college who was diabetic n said same thing, taht you eat something and BS is up later, then you think oh i need more insulin for that food, take more next time and it goes down)...It's so hard and scary that if you don't get it right, it's your body and life on the line....I 'm not eating things I 'shouldnt'..even though Dr's said long ago there isn't anything you 'can't ' eat, just take the insulin for it...well I try and it doesnt work...I eat only abot 15-20 g carbs per meal...they say don't cover stuff like non starch (veggies, peanut butter, flavored meat, sugar free jelly -that's 5g- etc) but I find that these things sometimes raise bs if I have as a snack)...Then if I have a salad w/10-15 g worth of non-starch things, take a correction and a little for the salad, BS could go up or sometimes go down.
Am not on the pump, though at this point that might help w/the long lasting insulin since it is a continuous drip and won't wear off like Lantus...Then that might help the humalog work better for meals/correction by at least not going UP by itself w/no food...But now Dr's are being reluctant to put me on it , whereas before they wanted me to try it -_-
Will check out those books, thanks, though I am weary of thinking like a pancreas. I know it is a lot of work, more than full-time..hard to think something can work for me when I've tried so much and nothing..but I know it can work from people like you! That's why I joined this site...so thanks for your info! Any little bit helps One thing I miss a lot are sweets...do you include them in your diet??