I wish to defend you on your questioning these things. I see that quite a few of your concerns were answered below. I might have asked similar questions and I think Holger gives some good feedback.
I have one general answer for you and to all who read this it's just IMHO, but we all know that companies are making billions off of treating diabetes. Since most companies are in business to make money then it stands to reason that they are after the goal of improving our "quality of life" not "curing our disease". Now before anyone protests this, I do aknowledge that there are a lot of good people out there who are in fact working for a "cure", but not everyone.
The area I agree with you emphatically is your later comments that said:
1) "Why is the AADE (American Association of Diabetes Educators) not have a "civilian" advisory? Peer mentors, etc."
2) "Why is there NO professional organization which has a specifically DIABETIC component which advises them directly?! Our diabetes experience MATTERS yet is openly demeaned".
I have often wondered this myself. I have had many in the medical profession (Doctors and nurses) tell me i should be a Certified Diabetes Educator (CDE) because of my knowledge and experience. Here's the problem with that. The "Medical" industry has a lock on that at least in the USA. Most people are not aware of how much of a lock on treating and managing "disease" that they have. For instance do you know that the AMA (american med assoc) actually has trademarked certain words in the industry which is why no non-medical person is legally allowed to be able to "treat", "cure", "prescribe", or for that matter wear a white lab coat and go around acting like a doctor. I know all of this for a fact as I was both an EMT and a degreed alternative medicine practitioner. In other words if you play their game, pay for th eproper degree and get the right title they will listen to you. Otherwise forget it.
I have toyed with the idea of presenting the argument that for a CDE, like many jobs out in the businesss world, that there should be more allowance for trading a degree or education with a certain amount of "Experience". Perhaps they could give an apptitude test that ensures a person has aquired the necessary knowledge and skills to be a CDE. Makes sense to me.
There Holgar, I hijacked my own discussion! :)