Five years ago I had surgery and they cut my abdomen open and the scar goes from one side to the other. It is in the shape of a large S. It is pretty huge and lucky me, I have a lot of pain still at the incision and numbness. I was prescribed Neurontin at dose 1800 mg a day for that and also for Neuropathy and as a mood stabilizer. I have stenosis which is severe in my neck that causes pain and numbness in my hands. I went to the surgeon and he wants to do an operation on my neck to open up two disks. He said that the progression of this stenosis would eventually cause weakness in the bottom half of my body.
Neurontin was like a wonder drug for me because I could take a dose and about two hours later the pain would subside. Before bed the dose would put me to sleep too. Wow. I could deal with the leftover pain, I started this exercise program with walking, stretching and lifting weights at home. I want to add Tai Chi and I do a bit of yoga. I was spending a lot of time laying down before I got the Neurontin and not tolerating the pain well.
The Neurologist (new) upped my dose and the pain got better but I felt like sleeping all the time. The result I am having now is that my memory is terrible. I feel tired all the time and when I tried to walk it feels like I am dragging the bottom half of my body. I lowered the dose and the problem lessened. Now I can walk for exercise.
I would like to know if anyone takes a high dose of this medication. I am getting mixed messages about it. The Neurologist said take a higher dose, the GI did their best to cut it down and the psychiatrist prescribed the middle dose. I was told to take it regularly and let it build up in my system.
I also got some white sores in my mouth and had to have a biopsy under anesthesia. It was just inflammation but there was my liver doctor telling me that Neurontin could cause problems in the mouth. Having all these conflicting decisions about doses is hard and I want to do the right thing. It is scary when you have to decide for yourself what dose to take. I feel unqualified but it is my body and I really want to do the right thing. I am longing for the days that I didn’t need Neurontin at all… It does reduce pain but at what cost?