My story is similar as most of these, I was feeling tired all the time, eating huge portions as I was so hungry, yet still losing weight drinking sweet tea as if I held stock in Lipton. Peeing so much that I was always aware of the closest bathroom.
I have always been an athlete, so I was of a "normal weight" 5'9" tall around 180 lbs.
I was riding a mountain bike 3-4 times a week, and generally pretty fit. My recent wellness screening over the previous summer showed a good fasting bg number.
I finally went to the eye doctor when my eyes went blurry upon waking up one morning during my Christmas vacation when I was 42 years old, 3 years ago.
Since I am a man, I still waited a week to go see the eye doc, until I began driving for work in January and realized I was a danger while driving to the rest of the population, with the blurry vision.
My wife(an RN)called and made an appointment with the eye doc I had gone to a couple o times even though she suspected diabetes. I could not accept that, as I was very active, for the most part ate very well and was in great shape.
The Eye Doc said "you probably already have an idea of what this is," I did, but still didn't want to believe it. "Your eyes are fine it is most likely Diabetes, you need to make an appointment with your GP".
So off to the GP, She saw me quickly, within a day or so, and had lab work done then sent me home, with instructions to call back for the results the following day.
I complied, and called back at the appointed time, and was told the Doc had not looked at the labs yet and to call back after lunch.
Within 10 minutes of that call ending, I received a call back from the GP. office requesting I come to the office right now.
I complied, and got the news, blood sugar 500 something, fasting an A1C of 10.7, my wife and I were floored. The Doc said she could handle my diabetes care but suggested I see a specialist, an Endocrinologist.
We set the appointment with the Endo, "the best Endo in the county", and went home with a script for 500 mg of Metformin and meal/snack diet for diabetes patients, which the doc amended with higher carb counts for meals and snacks due to my exercise regimen(90 grams of carbs per meal and 35-45 grams per snack).
I work for the local county school board, and we have an excellent wellness program, so I was able to leave the dr. office and head there for the wellness center for a new meter and some diabetes training. This was invaluable, as the CDE on duty was very sharp, she took one look at me asked a couple of pertinent questions and suggested I have testing performed to confirm her suspicions of Type 1. My wife and I also could not believe a type 2 diagnosis with my weight and physical activity. I got a new meter and did my first finger stick in her office, it was over 400 at the time.
I went home and immediately complied with the diet plan provided. I had already lost 15lbs. from my peak weight and with increased exercise and reducing the carbs intake to less than 60 at meals and 20 or less for snacks I lost another 10 lbs. before I saw the Endo in 3 weeks.
My numbers were looking better and the finger sticks were steadily showing improvement because of the reduced food intake and maybe even the Metformin a little. I was officially "Honeymooning", of course I did not know this at the time.
When the appointment finally came around to see the Endo, my bg's were looking pretty good and I was feeling a little better.
We asked about testing for type 1 and were told, "there is no need you are type 2".
My wife insisted, and the Endo very reluctantly agreed and sent me to the lab for another blood draw.
I received a letter in the mail from the Doc, about a week or so later, yes a letter in the mail arrgh!
" You do indeed have the antibodies SUGGESTING that you do indeed have type 1 diabetes, I don't THINK this changes anything, keep taking the Metformin and let me now if anything changes". (emphasis added by me)
This letter reached me before the first letter he sent with his "professional" diagnosis that I probably was type a 2 diabetic, pending lab work, which arrived in the mail the next day.
I continued to improve as I followed the diet and increased my exercise and when I saw the Endo in three months I was looking really good weighing in at 148 lbs. and quickly wasting away.
I asked if I should keep taking the Metformin and was told yes it's working.
Then he suggested an additional Med like Byetta, the weight loss must not have mattered to him.
The competitive nature that I have, and wanting perfect A1C and bg numbers, I reluctantly agreed a couple of weeks later, and started the 5mg dose of Byetta.
This was great, I finally was not so hungry all the time and my numbers were just about perfect. I quickly lost more weight and reached an all time low since high school, 133 lbs. from a high of 188lbs. 6 months earlier.
I asked if maybe I should quit taking the Byetta and the Metformin again, and the doc said yes stop taking the Byetta but continue with the Metformin.
My A1C was checked 4 times in the first 5 months and by my May 21st 2011 visit I had achieved an A1C of 5.2 after having a 10.7 on January 6th 2014.
I of course was starving to death and very week all the time, but my numbers looked good so I was happy.
I once again asked if I could stop the Metformin and was told no you need to keep taking it.
I went a couple of more months with the "best Endo in the county" and scheduled another visit, in the mean time I quit the Metformin and my weight rebounded slightly but my numbers were still good with an A1C at the next appointment of 5.8.
I again asked if I could discontinue the type 2 meds and was told no you need to keep taking them. I then told him I had quit taking the Metformin 60 days ago and he said, and I quote, "that's okay they probably weren't doing anything for you any way", this was the last straw, I started searching for another Endo.
Tudiabetes was awesome for this, Melitta, helped me know what I was looking for and another Tu member told me who fit the bill in the county.
I switched to this Endo, who is a Type 1 Doc, and patient, yeah he gets it:).
He asked do you have a script for insulin? I did not.
I had an Insulin pen and Humalog, in a refillable pediatric pen so I can do 1/2 unit doses as I am hypersensitive to Insulin, before I left from our first visit.
He spent near on an hour with me that day, and I am so grateful for him.
He scheduled some more labs and ruled out Hashimoto's and did the full array of Antibody testing, he is leaning toward LADA not rapid onset, which is likely how I survived the first 9 months with the previous Endo.
I want so much for these "Old School Endo's" to be required to rule out Type 1 with patients who present as active and thin.
I have a coworker who still goes to the first Clinic I went to with a different Endo, who started going there because of Hashimoto's. She suddenly developed diabetes and was told due to your age you are a Type 2 period, end of discussion. The doc will not even do the antibodies test, even with the Hashimoto's diagnosis. The Doctor should be banned from Endocrinology in my opinion.
My coworker still thinks the doc knows best and since she has lost weight and her numbers are good she is sticking with the clinic. I just pray when it all goes south for her, they will catch it in time to avoid permanent damage or worse.
My numbers are slowly, steadily creeping up, and I cannot imagine how frustrated I would be if I still thought I was a type 2, and all my exercise and diet were no longer working.
I completed 6000 miles on my road bike and mountain bikes last year and am in the best shape of my life. 148 lbs. and very fit.