I enrolled in Dr. Faustman's trial in 2009 (or maybe 2010) while I lived in MA. I've been to her lab about 4 or 5 times. I'm currently back home in CO, and it's pretty tough for me to go back. I have another appt. in Oct. of this year (2012).
So, my first question for her is what the protocol is: Will I be needing to go back every six weeks or so for a shot? When will she start the actual shots? When I went back last Oct., I expected to get a shot, but I just had more blood drawn.
My second question is what they are looking for? I do not test positive for GAD antibodies. So, it seems that I do not have a current autoimmune attack going on. BTW, I was diagnosed with T1 27 years ago, and I've been told that after that length of time, it's not unusual not to present with antibodies. I asked her able assistant Nick about that. He said they were looking for specific markers on the "2A protein". He also told me that I was deficient in that protein. What is it they are looking for with that protein? The little bit of research I've done into it is that it is implicated in cancer.
My last question is how long will the trial continue for. I try to time my appts. at the lab with the pumpers support group in Boston. I hope to keep going back there just to see those folks - they are great. BTW, anybody in the Boston area who is pumping or interested in pumping should check that group out - they meet the second Sat. of every month in Woburn.