12/7 JDRF-- Newly Created Patient Advisory Group
“JDRF, the world leader in setting the agenda for type 1 diabetes research, announced today the first formal meeting of the newly-created patient advisory group called the T1D Voices Council. Comprising 16 people affected by T1D, the council's goal is to lend their diverse perspectives to help guide JDRF's research and advocacy activities and ensure that its efforts remain aligned with the needs of people with the disease.”
For the full story go to http://www.jdrf.org/index.cfm?page_id=118173
Replies to This Discussion
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Permalink Reply by acidrock23 on -
Intereting. It seems expensive when they could just put a group together online? I haven't checked out the JDRF forums as I think I can really only hang out in one spot at a time.
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Permalink Reply by Tim on -
I think there'd be too heavy a bias towards folks in their 20's and with already good control, if they did it as an online group. Just looking at the picture in their post it looks like they chose a good variety of adult T1's, probably better breadth than you'd get from a online group.
A few of them even have no hair or grey hair like me!!!!
Tim.
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Permalink Reply by acidrock23 on
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I'm 45 and have grey hair myself. I don't think that Tu is wildly skewed towards younger people.
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