How long did it take you after you found out that you were diabetic to feel comforatble with it and getting into a normal habbit where you were not always worried about how high or low your sugar would be at any given time of the day?
I think it took me about 6months to not think of it constantly. After 16months, I still wont go to bed with a large active bolus. I am confident in catching lows before the 40's and that has given me peace of mind. I have also gotten more comfortable since having alot of low lows that are easily corrected. I was always fearful of not being able to come up fast enough from a low, but experience has given me a better level of comfort.
I still am not sure what to watch out for with the low bs just yet that has been scaring me for sometime due to the fact I feel my bs was low one day when my partner and I went to go eat lunch and it was late and I knew something was up but I just couldnt pin point it. Then after we ordered our lunch I ended up having a seizure and this is the first time I had one in front of her ever and luckly no one around us really knew until she started to bring attention to us but she didn't know what was going on. See when I was younger I use to have seizures and I was diagnosed with Epilepsy and I have not had a seizure since I was between 17 and 19 so when i was 21 the doctor said that I out grew it but to watch becasue it could always come back. I had this seizure shortly after being diagnosed and the medication the doctor put me on was really brining my sugars down low pluse i think i changed my eatting habits way to much and that may of not helped the situation either. I just do not want to go to low and be scared that I will have a seizure becasue I hated having them when I was younger.
That first one is really scary. You wake up and don't know what's going on. I really hate the fact that everybody else freaks out over it. I have slowly gotten used to the lows now. Back when I first took it you couldn't cheack you bg at home.
My son has t1, just yesterday I took him to one of those indoor jumping playgrounds to celebrate two months of living with D. I for the first time could watch him go nuts without worrying about what it will do. I tested him there and gave him some milk when he was done, went home and all was fine! My husband still isn't in the swing of it, he's always worrying "should we take him outside, he might catch a cold" or 10 minutes into him playing at the park "we should test him".
It is good to see that with your son who has only had T1 for just two months you are feeling more at ease with things. Soon your husband should be abel to get a bit more at ease as well. You are more and likely as most mothers the one who is always around your son and as you have shown in the posting that you have been a bit more at ease. Good luck with all that is going on and your son looks adorable. Thank you for replying to the post.
I am still trying to get into a normal habbit with just being diagnoised last october with T2. It did not help me out that my doctor told me when he diagnoised me that not to worry about it and he did not give me a script for a sugar meter or even wanted me to get one. He also got upset with me when I went back to see him on the next visit and had a couple of books on diabetes to try and educate myself. He told me do not read any more books becasuse you will just confuse yourself on the subject. Aftet he said this I was not going to tell him I just got a sugar meter to test my sugars. Well I have finally been able to get into see a new family doctor and I am seeing a specialist for my sugar.
Now I have always felt comfortable for people knowing that I have diabetes and I think this comes from when I was younger and was diagnoised with Epilepsy but I have been lucky and I have out grew the Epilepsy but the docotrs told me to watch out becasue it could pop up again when I get older so always keep on eye for any signs of it. Due to the epilepsy I have always had to make sure that someone knew around me to keep and eye out incase anything ever happened so in the same matter with the diabetes I feel that I can tell others I have it incase I might need help.
Wow, that doctor sounds horrible (the first one, that is)! The most important thing in diabetes care, as I'm sure you know, is education education education. Is he telling other patients to "not worry about it?!?!" Because, if so, that is completely counter-productive, and should not be happening.
I am not sure if he was telling others not to worry about it but I would have to say yes. I also think it had a lot to do with he lost a lot of his staff and after he came back to work after being off for so long due to an injury he had that kept him from working his personality seemed to change and his new staff was not always that polite either. I got out of there when I was abel to find a new doctor and thankfully I was also able to get into and endro. so I would get the proper care for my diabetes also.
It took alot of time to get used to it for me and now that's my problem again. I really hatwe to fall low in front of anybody but the first time around it took me about 6 months to get used to the idea that I was "special". Good Luck to you.
I was diagnosed about 4 months ago but it was kind of gradual. My nurse practitioner doesn't believe in prediabetes so when my A1C came back 7.2 she told me I had diabetes. I went to see an endocrinologist who told me I was perfectly normal because my fasting and 2 hour numbers were in the normal range. I saw a dietitian who told me to eat 240g of carbs a day and test after 2 hours. Well, my 2 hour numbers were great- around 100-120. But I still was thirsty all the time and exhausted. I did my own research, tested myself at an hour and found that I was spiking to 180 on tiny amounts of carbs. I lost way too much weight because I couldn't get enough calories on the low carb diet. Finally I had the antibody tests done and was diagnosed with Type 1. I have islet cell antibodies. The first couple of months I thought about it every minute. I would wake up in the night and my first thought was "I have diabetes." Now I might go several hours without thinking about it. I try to take a break from testing every now and then by eating very low carb meals and not doing a bolus and it also helps that I started back at work after a sabbatical year and can have another identity for several hours a day. When I am with the kids, my teaching is much more important than my diabetes. The other thing that helps is this site. Before I found you all, I would worry about something and talk it to death with people who really couldn't offer much advice. Now I can get answers to a lot of my questions and that frees me up to get on with the rest of my life.
Right now I worry about it all the time. I worry that I'm losing too much weight, I worry because I can't sleep, I worry because my numbers SEEM higher than they used to. I never really tested that much until May ... and now I'm pretty obsessed with it.
How does one get "normal" about having this disease?
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