Replies to This Discussion

Permalink Reply by Kristin on July 30, 2008 at 2:27pm

Check out this group for symlin users:

Click here

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Permalink Reply by Dora on March 15, 2009 at 4:30pm

The Doctor just prescribed Symlin for me and I am looking for information and how people are doing on it. I am type 2 but am having problems regualting my BG. They only time it seems to be under control is if I don't eat carbs. Even Apidra isn't keeping me from high BS. Hoping Symlin will help.

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Permalink Reply by Manny Hernandez on March 15, 2009 at 4:48pm

Dora,
I was on Symlin for a while and it didn't have the intended results plus I was having a lot of nausea (one of the side effects) but it works differently for different people.

Most definitely make sure to join the Symlin users group to get the most useful inputs on how others are doing on Symlin.

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Permalink Reply by cindy warnack on March 24, 2009 at 8:11pm

Dora,

Have been on vacation last week...now I must go..but will email tomorrow and talk to you about symlin...will tell you Symlin is great!!!!!!!!!!!!!!!!!!!!! will give lots of more details later...thank you for your patience with me..

Cindy

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Permalink Reply by cindy warnack on March 25, 2009 at 7:42pm

Dora,

Only thing is symlin caused me to have nausea at first and then every now and then...but only lasted an hour so I drank diet Sprite....but the greatest side effects are weight loss and lowered blood glucose levels...
hope this helps..

Cindy

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Permalink Reply by Pat Van Dyne on March 26, 2009 at 9:28am

Hi Dora,
I am a T2 who was on Symlin for awhile and I too had trouble with BG control. I was told it will work for some T1s but Byetta might be a better fit. Once I got on Byetta (about 3 years ago) everything clicked. My A1C dropped to 5.9 from 7.4 and my weight dropped too. Check with your medico. It might help you too.

Pat

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Permalink Reply by Jason on March 26, 2009 at 3:37pm

Byetta is indicated for Type 2 diabetics only. That means insurance won't cover it and most doctors probably won't prescribe it. Its mode of action includes things like stimulating higher amounts of insulin release from the pancreas, something that would not be useful at all for a Type 1. That is the primary effect of the drug.

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Permalink Reply by carolyn mcquis on June 18, 2009 at 8:50pm

my endo has me on 60 symlin but i am not on insulin. from all i've been reading seemks everyones on insulin. I take metformin 1000 in morn. 1500 pm glimeperide 2mg in am 2 in pm. and she took me off the Januvia. What's with this? Do you think this is odd?

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Permalink Reply by Kimberly on June 22, 2009 at 1:55pm

Seeing as how Symlin is intended to "replace" the missing hormone amylin, which is no longer produced due to beta-cell loss, and you're a type 2 who is not on insulin, I think it's very odd. If you're still producing insulin, then you should still be producing amylin so there is no need to replace is in your body. Now, I'm not a doctor so take this with a grain of salt, but I think most folks would agree with that assessment.

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Permalink Reply by Dora on March 15, 2009 at 4:50pm

Thanks Manny!

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Permalink Reply by Rick Phillips on March 24, 2009 at 8:17pm

Look at the discussion that oneness is writing on his blog. As a symlin user I found his discussion very important.

Rick

http://tudiabetes.com/profile/oneless

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Permalink Reply by Denise Bevard on March 24, 2009 at 8:56pm

I am fairly new on Symlin,while I am a type 1, I have not had the naseau effects some have ahd--and I am up to the 60 dose (max for type 1) with no ill effects--and the results on my high spikes after meals has been fantastic. it also seems to beevening out some of my other bumps, and only bolusing half of my melatime insulin..that may go up a bit at breakfast and dinner and down a bit at lunch time--but don't want to make too many changes too fast..so carefully titrating the insulin dosing

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