Not sure why I am revealing this as I don't share this with anyone, but this is why I hate diabetes the most and why I am so self conscious and hard to be upbeat about this disease. For me it is not just the ups and downs of bgs, or the feeling like crapola, but also the outward physical signs that I have dealt with for 42 years and has made my mood so often sad with this disease. I am part of the 3% of diabetics who also has this all over her lower legs, which for most of my life I have tried to keep hidden, not any easy task, especially when I love, love, love the beach and the great outdoors. Does anyone else suffer from this?

Necrobiosis lipoidica is a necrotizing skin condition that usually occurs in patients with diabetes. In such cases it may be called Necrobiosis Lipoidica Diabeticorum (NLD). NLD occurs in approximately 3% of the diabetic population, with the majority of sufferers being women (approximately 90%).

Mine is not as severe as some of these pictures, but in my head it is.

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Hi Karen, I did not know what you were talking about till I looked at the pictures my Grandmother suffered with it also.

I have never heard of NLD. I am sorry you have to suffer from this. Can they do anything to help you? is there a cure for NLD? What causes it? thank you for sharing your story! you may be helping someone else out:)
hi karen,i am so sorry that you're have a bad time,but i have never heard of nld.get to feeling better and i will check back later.
I have a friend who has it. Hopefully she'll come along and post :) I'll email her and let her know.

EDIT: I emailed her. Hopefully she'll post or reach out to you soon :)
Here I am Lee Ann! I'm so sorry I hadn't posted before now but I didn't log on all weekend.
Karen ... I have NLD also. I've been type 1 for almost 27 years but have had this for about 17 of those years. When I was about 15 the spots appeared on my legs out of nowhere! We had gone on a field trip with my high school right before they appeared so we thought I may have gotten bitten by something. I don't even recall how many doctors my parents took me too & I'm not even certain which one it was that finally diagnosed me. They actually took pictures of my legs to put in medical books because they had not even seen any cases of it before mine. The dermatologist tried steroid shots (yes in the shins - yikes) and tape but nothing really worked so they stopped treating it after a while. Mine have gotten much lighter over the years but they are still there and I totally understand and can relate to how self conscious you are about it. I NEVER wear skirts without dark stockings or knee high boots or shorts and when I do go to the beach, I cover up until the very last minute possible going into the water. There is makeup that I used to use but still have .... dermablend. Have you tried that? It works pretty well. It does suck but as I've gotten older, I've tried very hard to let it bother me less. My husband doesn't care one bit that I have these marks and never has so that certainly helps =) You're not alone Karen .... if you want to, feel free to contact me anytime about this (or anything else of course!)

Thank you so much for responding, and omg, I had all those treatments as well, steroids in the shins as well, lordie. Your total response sounds exactly, exactly like me and thank you, thank you so much for sharing, and yes I have tried the make-up, but not worth the effort to me. The stories I could tell.

Your fellow non-short wearing sister,

Karen, sorry this has made you sad & self-conscious. Like you need another reminder of diabetic struggles. Good to vent here.
I'm sorry to hear you have to deal with this as well as diabetes Karen, but thanks for raising some awareness about it because I'd never heard of it before now.
hi karen,
i understand about the sad and self-conscience stuff. i'm fat and disgusting to look at and no matter what i try, i just get fatter. i will probably go to the grave in this condition. i don't like to go anywhere because people will see me and laugh or make snide remarks. it's a constant struggle everyday to look past my weight and see that not everyone sees just the weight, but they see the loving, caring person that i am too. some don't and i have to remember that that's their loss (like my estranged husband). i know it's different from what you have, but the feelings we have inside are the same. from what i have "seen" about you, you too are a loving caring person. by bringing this out you have shown me another part of diabetes that i didn't know about. thank-you for sharing.

I suffer from NLD too. To be quite sucks! I've been D for 24 years and always in very tight control. Frankly, I would much rather explain my pump clipped to my jeans instead of my shiny shins. The other thing that makes me crazy is the pain. I've never claimed to be the most coordinated chick on the block. So, when I happen to run into a darn near brings tears to my eyes.

Keep the faith and remember that I feel your pain.

Awwww thanks to all that responded. My sisters always tell me you are ridiculous to let it bother you, but you should see how they will point out a blemish on themselves, and I just want to scream at them, but I don't. ;)

I have often felt the stares at the beach it has been hard. The NLD finally started to fade after about 20 years, but the skin tissue is so so thin, but then I developed some new skin issues on my feet, lordie.

Thanks again everyone, not sure what possessed me to share my tale of woe. ;)
Thank you very much for the info on NLD. I have never heard of this condition before. I will definitely do my research & educate my friends & family with diabetes...




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