Replies to This Discussion

Permalink Reply by Andy Barnes on September 5, 2008 at 7:22pm

Hi Karen, I did not know what you were talking about till I looked at the pictures my Grandmother suffered with it also.

• ▶ Reply

Permalink Reply by Diabetic_Iz_Me on September 5, 2008 at 8:39pm

Karen-

I have never heard of NLD. I am sorry you have to suffer from this. Can they do anything to help you? is there a cure for NLD? What causes it? thank you for sharing your story! you may be helping someone else out:)

• ▶ Reply

Permalink Reply by ODESSA BROWN on March 4, 2009 at 9:21pm

hi karen,i am so sorry that you're have a bad time,but i have never heard of nld.get to feeling better and i will check back later.

• ▶ Reply

Permalink Reply by Lee Ann on September 5, 2008 at 9:13pm

I have a friend who has it. Hopefully she'll come along and post :) I'll email her and let her know.

EDIT: I emailed her. Hopefully she'll post or reach out to you soon :)

• ▶ Reply

Permalink Reply by Stacey on September 8, 2008 at 5:57am

Here I am Lee Ann! I'm so sorry I hadn't posted before now but I didn't log on all weekend.
Karen ... I have NLD also. I've been type 1 for almost 27 years but have had this for about 17 of those years. When I was about 15 the spots appeared on my legs out of nowhere! We had gone on a field trip with my high school right before they appeared so we thought I may have gotten bitten by something. I don't even recall how many doctors my parents took me too & I'm not even certain which one it was that finally diagnosed me. They actually took pictures of my legs to put in medical books because they had not even seen any cases of it before mine. The dermatologist tried steroid shots (yes in the shins - yikes) and tape but nothing really worked so they stopped treating it after a while. Mine have gotten much lighter over the years but they are still there and I totally understand and can relate to how self conscious you are about it. I NEVER wear skirts without dark stockings or knee high boots or shorts and when I do go to the beach, I cover up until the very last minute possible going into the water. There is makeup that I used to use but still have .... dermablend. Have you tried that? It works pretty well. It does suck but as I've gotten older, I've tried very hard to let it bother me less. My husband doesn't care one bit that I have these marks and never has so that certainly helps =) You're not alone Karen .... if you want to, feel free to contact me anytime about this (or anything else of course!)

• ▶ Reply

Permalink Reply by Karen on September 8, 2008 at 4:17pm

Stacey,

Thank you so much for responding, and omg, I had all those treatments as well, steroids in the shins as well, lordie. Your total response sounds exactly, exactly like me and thank you, thank you so much for sharing, and yes I have tried the make-up, but not worth the effort to me. The stories I could tell.

Your fellow non-short wearing sister,

Karen

• ▶ Reply

Permalink Reply by Gerri on September 5, 2008 at 10:44pm

Karen, sorry this has made you sad & self-conscious. Like you need another reminder of diabetic struggles. Good to vent here.

• ▶ Reply

Permalink Reply by Bronagh on September 6, 2008 at 4:06am

I'm sorry to hear you have to deal with this as well as diabetes Karen, but thanks for raising some awareness about it because I'd never heard of it before now.

• ▶ Reply

Permalink Reply by debb on September 6, 2008 at 5:43am

hi karen,
i understand about the sad and self-conscience stuff. i'm fat and disgusting to look at and no matter what i try, i just get fatter. i will probably go to the grave in this condition. i don't like to go anywhere because people will see me and laugh or make snide remarks. it's a constant struggle everyday to look past my weight and see that not everyone sees just the weight, but they see the loving, caring person that i am too. some don't and i have to remember that that's their loss (like my estranged husband). i know it's different from what you have, but the feelings we have inside are the same. from what i have "seen" about you, you too are a loving caring person. by bringing this out you have shown me another part of diabetes that i didn't know about. thank-you for sharing.

• ▶ Reply

Permalink Reply by Curlzzz2002 on September 6, 2008 at 7:54am

Karen,

I suffer from NLD too. To be quite blunt...it sucks! I've been D for 24 years and always in very tight control. Frankly, I would much rather explain my pump clipped to my jeans instead of my shiny shins. The other thing that makes me crazy is the pain. I've never claimed to be the most coordinated chick on the block. So, when I happen to run into a chair.....it darn near brings tears to my eyes.

Keep the faith and remember that I feel your pain.

Curlzzz

• ▶ Reply

Permalink Reply by Judith on September 6, 2008 at 12:06pm

Self-image. Self-loathing. We are not the only segment of this desperate, youth-worshipping society that has to deal with these issues. I try to tell myself---daily, it seems---that what I see in the mirror is not necessarily what someone I meet sees. Sometimes it works......Sometimes I sing that song from "The King and I" to myself----"Whenever I feel afraid, I whistle a happy tune....."

Be kind to yourself, Karen. We are all sending you hugs. If I was there, I would sit you down comfortably and gently massage those legs with whatever lotion you prefer.......

• ▶ Reply

Permalink Reply by Karen on September 6, 2008 at 4:05pm

Awwww thanks to all that responded. My sisters always tell me you are ridiculous to let it bother you, but you should see how they will point out a blemish on themselves, and I just want to scream at them, but I don't. ;)

I have often felt the stares at the beach it has been hard. The NLD finally started to fade after about 20 years, but the skin tissue is so so thin, but then I developed some new skin issues on my feet, lordie.

Thanks again everyone, not sure what possessed me to share my tale of woe. ;)

• ▶ Reply

• ‹ Previous
• 1
• 2
• 3
• 4
• Next ›
• Page