thank you all for sharing your stories! i do need some definite help with an old friend of mine who i reconnected with last month. i'll try to be brief, but her issues are overwhelming and i want to help. here's what's going on:
*45 years old
*type 1 diabetes (since age 4)
*bipolar I (possible schizophrenia)
*on dialysis 3x per week
*has been hospitalized for bipolar (i think it's been years since)
*needs new kidney/and pancreas
*cannot get on the list for new kidney/pancreas unless she loses 10 more lbs
*she seems swollen, water retention AND weight gain. her eyes may be bulging over the years. (possible thyroid problem?) it's been 5 years since last thyroid test
*her parents have guardianship and visit once per week.
*she lives alone and manages pretty well
*seems "out of it" or staring a lot, her mouth shakes a little bit, and very slow in movements; however she can drive and do things...
she's not the same person i once knew. i'm wondering if it's all the meds she's on to "subdue" her? or is it the bipolar itself?
it seems like she has all these doctors, but i feel she needs to be monitored more closely. it's hard for her to be her own "voice" with all that's going on, and i don't know if she even realizes. i do know she is frustrated with her brain slowness. she would like to have energy and be more "normal". have a job, etc...she's very bright.
i cannot sit back and watch, unless this is the best care, and this is the best quality of life that can be done.
all in all, i need help with where to begin with my lovely friend. i am bipolar II and had thryoid issues. it was quite a fight finding the right mix for myself...so i know how hard it is with doctors, etc....to be heard, AND to continue the trial and error until you get the right dosage.
she has no friends, definitely due to all these illnesses. but she's postive despite it all...she really needs a helping hand.
if anyone has a plan of attack for her, or where to begin here, i'd love the input! thank you so much, and i applaud you for fighting and making it through!
thank you for listening!
beautiful don! you have an amazing attitude and you couldn't be more right about compassion. my friend is the sweetest person. thank you for your wisdom in passing your experience along. i appreciate your encouraging words!