Replies to This Discussion

Permalink Reply by Libby on August 6, 2007 at 12:05pm

I would love to go to a conference/retreat with workshops on the topics that we discuss here. We could have low-carb cooking classes, yoga, discussion groups for pumpers, Type 2 and Type 1, newly diagnosed, etc. etc. Only problem would be that we come from all over the world, so where would we hold a retreat? My husband jokes around with me about opening a bed and breakfast for people with diabetes, because I spend so much time in the kitchen, perfecting my recipes. We live in the Lakes Region of New Hampshire, great place for a vacation.

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Permalink Reply by Jessica on January 3, 2009 at 11:32pm

If you ever open that Bed and Breakfast, I would be there in an instant! Being diagnosed with diabetes at 18, I missed my chances to go to camps.. I really wish I could've.

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Permalink Reply by Kathy on August 6, 2007 at 5:47pm

Absolutely. I've often wondered if there was such a thing. In some of the diabetes magazines I see ads for "treatment center" where you go as a sort of "inpatient", but, that reminds me or substance recovery.

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Permalink Reply by Chloe on August 7, 2007 at 9:46am

I agree "inpatient" is way too hospitalesque. I certainly wouldn't want it to be a place which makes me feel like I'm "sick" before I even get there. That's why I like the word "retreat".

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Permalink Reply by Lynn Jacobson on April 18, 2008 at 6:09am

i would love to find a diabetes camp for adults.... i'm 57 wear a pump and need to get away from work and be brain washed into thinking and living in a more healthy manner. do you know of anything?

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Permalink Reply by Barb on April 24, 2008 at 10:42am

I'me with you at 66 and active I need more feed back without everyone else telling me what someone told them . You have to walk the walk and talk the talk to know what we are going thru. I have found after all these years there are many changes and I am open for more information. thank you bs

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Permalink Reply by Marsha on August 7, 2007 at 7:46am

I too have wondered why they don't have a diabetes camp for adults. Where are they? I only hear about the ones for kids. I'm type 2 but if someone combined a camp for type 1 and 2, I wouldn't mind learning everything I could about both types. Yeh, hospital diabetes centers are good for classes, but it would be nice to have 'some' fun while learning. Just to be around people who 'know' would be really great and lovely for depression! How fun for me NOT to hear "WHY do you HAVE to eat right now? Can't you control yourself?, What is that thing? A palm pilot? Let me see!, Does it hurt when you stick yourself?" and on and on . . . . .
East coast and west coast adult diabetes camps would be great in the U.S. and camps in other countries!

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Permalink Reply by Kimberly on August 7, 2007 at 9:34am

I think it's a fantastic idea. Adult-onset Type 1 seems to be the group w/ the least support. I would love to get together w/ others who were diagnosed as adults to be able to compare experiences and those who were diagnosed as children to learn from their vast knowledge. I would be totally willing to shell out the funds and give up the vacation time to go.

As a side note, it would also be nice to have a support group for adult-onset type 1.

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Permalink Reply by Scott Strumello on August 7, 2007 at 2:18pm

I am curious as to the topics people would be interested if an adults with type 1 event was to be held? I agree that the adults with type 1 tend to be overlooked at many of these events, and I have read with great interest the transitioning programs (e.g. how to transition care from children to adults, as many pediatric physicians won't treat teenagers, and often their care gets put by the wayside in the process) developed by some doctors at Johns Hopkins. But there are many, many issues that adults face, including finding a specialist with skills in treating adults with type 1 (many specialize in type 2, but have had little continuing medical education (CME) credits since they attended medical school decades ago.

Any ideas or thoughts on what you'd like to see covered if something like this was organized?

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Permalink Reply by Tracy on August 7, 2007 at 5:05pm

This would be great if there were such a thing . I am planning on meeting a few people from another message board at the ADA expo in Chicago next spring , holding a retreat around something like that would be a good idea bcs you already have the expo for part of the gathering .

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Permalink Reply by Chloe on August 8, 2007 at 5:27am

I would love to talk about what to expect from your endo, and how best to communicate with the doc. I agree that when it comes to endocrinologists and treatment of adults, it is always geared more towards type 2 treatment. Also, issues with insurance and ways to negotiate around red tape over things like continuous glucose monitors. Rainbowgoddess listed many that I'm interested in, especially topics of exercise, family life, and in managing in a working environment. I also think many people seem to be developing type 1 as an adult, and adjustment at this age is never easy. It would be nice to have topics along those lines, since most of the literature about handling the diagnosis is usually about children. I would also love to see topics raised about new research and treatment options, since not everyone's medical teams are on the cutting edge. I think it is important for the patient to know about what is going on so he/she can become their own advocate. Really there are just too many things to list them all.

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Permalink Reply by Chuck Lin on August 8, 2007 at 5:52am

I would go to diabetes camp just so I can meet other diabetics, even if the only program is finger painting... I love to finger paint, although I don't do it professionally.

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