Things Are Changing!

The migration of TuDiabetes has begun

Content created between now and the launch of our new site on April 20th will NOT be moved to that new home, but our community values and Terms of Service still apply during this time.We are not accepting new members during this transition period. If you want to join the TuDiabetes community please send an e-mail to We will send you an invitation to join after the migration is completed.

Read about the migration and see images of the new site!

Hey Gang,

Sorry I wasnt real sure where to post this so it ended up here...

Let me start this off by saying Im a computer nerd and systems administrator (more computer nerd stuff), so if Im just over paranoid please let me know, but I know all information is retained and stored in the bits and binary world without exception.

So these threads we post in are open to view from the internet with no requirements username / password or otherwise. I see two sides to this.

1. it opens up the information we share to others who maybe searching the web for said information and we all seem to be about helping others. So thats great.

2. This is the adverse side. Any information we put up here (feelings, test results, complications, etc.) is openly and freely available to anyone who searches it out (ahh the paranoia just kicked in).  Im not quite sure how I feel about this and its a real double edge sword with no black and white solution. Not that Im the resolution provider here, mind you. What does this mean? Well, if my work wanted to know indepth about my current health status, come on down! If my insurance company wanted to drop me for some random reason other than the cronic disease, these threads might hold a good excuse. Etc., etc.

How do you all feel about this? Am I just being paranoid?

All input is greatly appreciated.

Views: 19

Reply to This

Replies to This Discussion

I post on a number of other boards not diabetic related too. If you post anything on the internet its like putting a sandwich board out in front of your home. Its your choice. Programs more powerful than Google then do their things.

If I was to ask 6 people who know you Source I likely would find someone who knows about your medical condition. Why, very few people keep their medical conditions completely private. You share for support with your friends so it is not out of the realm to share on a internet board too.

I am more concerned about malfeasance in medical clinics and insurance companies from employees who like to snoop just for snooping sake from people who may know you. Now with electronic records and sharing this situation is bound to get worse.
If I was to ask 6 people who know you Source I likely would find someone who knows about your medical condition.

Agreed. Those 6 friends could however use discretion in the event my Ins. company or employer contacted them. I realize I have and exercise that discretion as well. It does keep me from being totally open about my life with Diabetes in discussions. This might be different if some threads were closed to members only. Or at least my false sense of security would be strengthened. =^)

Also am totally aware of data mining and the deep net, but they just seem to add to the conspiracy theory.
I do stop and think before I post, as to the content and how it could be interpreted. But I think I need to be even more careful. We have all seen/heard stories of health insurance companies stopping coverage for what most people consider stupid reasons. Remember the woman who did not "disclose" that she had acne as a teenager?
And even with the new law about not refusing coverage due to pre-existing conditions--there are still ways to cut off coverage. Mine is fairly safe (I hope!) but there are other reasons to be cautious about telling all. I would feel better, in fact, if the earlier poster had not had tudiabetes come up second in his/her google search!!
Big Brother is Watching You! LOL. And Bsc, I always thought you WERE Alfred E. Neuman. Another bubble burst.




From the Diabetes Hands Foundation blog...

DHF Joins Diabetes Advocacy Alliance

Diabetes Hands Foundation is incredibly honored to join the Diabetes Advocacy Alliance, an organization with the drive and potential to affect a powerful, positive impact on diabetes and healthcare policy. Diabetes Advocacy Alliance is a 20-member coalition of leading professional Read on! →

Helmsley Charitable Trust Renews Support for DHF

HELMSLEY CHARITABLE TRUST GRANTS SUPPORT TO DIABETES HANDS FOUNDATION FOR FOURTH YEAR  Funding in 2015 to support major transitions in programs and leadership at Diabetes Hands Foundation BERKELEY, CA: February 18, 2015 – The Leona M. and Harry B. Helmsley Read on! →

Diabetes Hands Foundation Team


Melissa Lee
(Interim Executive Director, Editor, has type 1)

Manny Hernandez
(Co-Founder, has LADA)

Emily Coles (Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Director of Operations and Development, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


Lead Administrator

Brian (bsc) (has type 2)


Lorraine (mother of type 1)
Marie B (has type 1)

DanP (has Type 1)

Gary (has type 2)

David (has type 2)


LIKE us on Facebook

Spread the word


This website is certified by Health On the Net Foundation. Click to verify. This site complies with the HONcode standard for trustworthy health information: verify here.

© 2015   A community of people touched by diabetes, run by the Diabetes Hands Foundation.

Badges  |  Contact Us  |  Terms of Service