i work in the medical field and came across some information about Roche pharmaceuticals requirements to update the warning leaflet in the Accutane package (revised January 2010).  In the revised warning list, it now reads "Accutane may cause blood sugar problems and diabetes."  it is not in my nature to try and find a "reason" for me having type 1; however, i took Accutane twice, once in 1996-97 and again (stronger dose) in 2001-02.  i was diagnosed with type 1 in 2008, at age 38.  i know one must be careful when reading info on the internet, but i have been reading claims from many other people who took Accutane and have been diagnosed with T1; some took the drug years before their official diagnosis.  my aim is not to start a fight against Roche (although they are involved in numerous class action lawsuits for Accutane causing other autoimmune disorders).  i am really just wondering if there are any other T1 tudiabetes members who have taken Accutane, and who have had a later onset diagnosis (over the age of 30) of Type 1, LADA or 1.5.

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Too bad we can't sue. I could use some money to pay for my hearing aids and those costs. :) Yes, true nothing we can do now. But I wish I had known than but I guess no one really did - I hope that other people will decided not to take it based on others experiences. You never know about the potential long term effects of a drug.

Yes, it was about two years or so for some of mine too - the hearing loss I mean. I never even though about the diabetes back than. Mine runs in my family so I don't think Accutane had any effect on that - over 10 years later I found out I had it.

I think that was when I took my dose too 1996 or 1997.

I remember I had to take an iron pill in order to take it because I was borderline anemic being a vegetarian. And I had to make sure I was on the pill and used condoms. Yes, it is quite scarey. I wish I had known back than that I couldn't have tried a natural Vitamin A instead of taking this horribly strong synthetic one.
Hi everyone,i my daughter also took accutane when she was younger and now at age 26 she was diagnosed with type 1. NO ONE in the family has diabetes. Did anyone ever think a of starting a class action suit. I know that people that came down with IBD did just that. If anyone is interested I did speak to a lawyer. You can contact me on my email ssolz311@gmail.com. I did read that accutane will have to relabel there info and state that it can raise your blood sugar
I too was on Accutane for some time in my early teens. I was also diagnosed with Type 1 at 18. I am now 34. Interesting topic!!
I am going to talk to my lawyer some time at the end of the week and keep you and others interested in what he says.
I've never taken Accutane. And I have absolutely no family history of the disease. But I got T1.

In addition to being careful reading info on the internet, you have to be careful not to take a few anecdotal reports saying "yes I did A and got B" and concluding that A causes B. These anecdotal reports don't prove anything. Also remember that T1 is often diagnosed about the same age that acne is most severe, so these few anecdotal reports will almost certainly get reported here.
I took Accutane between '96-'97 and was diagnosed my senior year of HS in '98 with T1. There are class action lawsuits out there now, but if it has been more than 7 years the statute of limitations is working against you (so Ive been told). No one in my family has had Diabetes other than my Gfather, who just had to watch his diet. If anyone has any info I'd love to hear it! I just recently heard of the relationship and found this thread through an internet search. Take care

Jarret
I have looked for the class action suits for this and can't find any. I have seen the class action for IBD. I don't think the statue would matter but will ask my lawyer. If you know where to find this suit please let me know. Thanks.
Beware of "post hoc, ergo post proter hoc" in these situations. Certainly, Zyprexa and chronic steriod use can cause diabetes.
Here are two good articles to read: http://www.nlm.nih.gov/medlineplus/news/fullstory_103081.html
and this is from a law firm: http://accutane.poweradvocates.com/immune.html

I have also gone on many other sites and there are people that have come down with type 1 years after accutane use with no family history. . It seems to coincidental that so many people that used it have type 1 now.
One thing to keep in mind is that MOST people with Type 1 have no family history. Was true for me and apparently, about 85% of other Type 1's as well.
thanks
This is what I have found in many articles and with the other 2 articles that I posted earlier it makes sense that an environmental factor ( for example a drug ) could cause it. Just my Opinion.

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