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Permalink Reply by Sarah on April 29, 2010 at 6:06pm

I do, but for other reasons.. I have ehlers-danlos syndrome and I don't know from a day to day basis what my joints will feel like.. some days are fine, and others I can barely drag myself out of bed because EVERYTHING hurts.

I avoid anything in the early morning.. my husband takes care of getting the kids ready and off to school.

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Permalink Reply by PaulaO on April 30, 2010 at 8:12pm

Sarah, I have EDS, too! Hypermobility Type. Ain't it a fun thing to have? Not.

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Permalink Reply by Trudy on April 30, 2010 at 5:28pm

Hi Sarah. I looked up ehlers-danlos syndrome in Wikipedia, and it sounds exceedingly unpleasant. I have morning issues as well, thanks to once having had juvenile rheumatoid arthritis, and now having diabetes. I feed my dogs and stabilize my blood glucose, and then with any luck I can get on with my life at about noon, also with the help of my husband.

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Permalink Reply by Kathy on April 30, 2010 at 6:35pm

I think that from day to day I don't let the db stop me from making plans. However, it's certainly the events that are to happen in the distant future that I get freaked about. My sister wants me to visit her this summer. I think "where will I be health-wise". Will some complication have surfaced that prevents me from going? So anything more than a few weeks away is put on my brain calendar in pencil.

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Permalink Reply by Zoe on April 30, 2010 at 6:42pm

No, I am very grateful that diabetes, aside from being a pain in the butt doesn't affect my health. To me that is one of the mazing things about his condition, that it takes a lot of time to manage, but if we do that it really doesn't mean "being sick" I'm wondering, Trudy, if you are seeing someone to determine what is going on for you? I'm sure people will tell me if I am wrong, but I don't think just being a PWD generally make it so hard to do daily events.

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Permalink Reply by Kathyann on April 30, 2010 at 7:54pm

Sounds like a lot of you have other challenges which impact your diabetes. I'm lucky right now. It's just the betes.

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Permalink Reply by Terrie on April 30, 2010 at 10:56pm

Diabetes doesn't affect me making plans or appointments either. It's my severe Rheumatoid Arthritis(RA) that makes me think Really hard whether I should accept an invitation and also it is a pain for earllier appointments. I try to make my appointments for later in the day. When I wake up and I am flaring, it usually takes about 3 hours before the worst of the joint pain, stiffness and sometimes muscle aches to disperse. It was awful when our Kids were young and I had to prepare the meals, and get them ready for school. Sometimes I made their meals the night before when I was feeling okay.

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Permalink Reply by Terrie on May 1, 2010 at 2:03am

Yes, I Really hope that you don't get any other conditions Kathyann. Many do not.

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Permalink Reply by Trudy on May 5, 2010 at 7:09am

Thanks for all your responses. I have celiac, and figure that the belly ache came from developing an intolerance to rice. The very slim silver lining is that I'm now eating no bread, cookies, etc., therefore fewer carbs. I always blame diabetes for dizziness.

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Permalink Reply by Trudy on May 5, 2010 at 7:37am

Hi Sarah M. Thanks for the tip I like non-caffeine teas in the evening, and I will definitely try roobios. I do really dread having a dizzy spell.

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