Aren't we all the same....TYPE 2 AND TYPE 1 ???
NYE !!
Hello everybody!!
Recently was going to take over a Diabetic Meetup in LA area but felt it would be too much for me to handle. I recieved mail from Type 1 diabetics that made it bluntly known they really didn't want nothing to do with Type 2 diabetics. Obviously, being a LARGE AND IN CHARGE TYPE 2 DIABETIC....... I was slightly offended.
I have noticed on other sites and even on this site there are some attitude differences between Type 1 and TYPE 2. I don't understand why? I know the treatments maybe different. And I do understand that Type 1 diabetiecs are long time sufferers of this ailment. But to be so mean and not want discuss your experiences with a TYPE 2 diabetic is ridiculous.
I personally take ownership of the fact that I caused myself to develop diabetesthrough unhealthy eating and lack of physical activity. Actually had a fun time doing it...Now that I am wiser I am doing my best to live with it and exercise. Isn't that what ALL DIABETICS SHOULD BE DOING???
Please help me understand & give me your thoughts. I want a decent discussion about this. I am not trying to play favorites.
Thanks!
Hello everybody!!
Recently was going to take over a Diabetic Meetup in LA area but felt it would be too much for me to handle. I recieved mail from Type 1 diabetics that made it bluntly known they really didn't want nothing to do with Type 2 diabetics. Obviously, being a LARGE AND IN CHARGE TYPE 2 DIABETIC....... I was slightly offended.
I have noticed on other sites and even on this site there are some attitude differences between Type 1 and TYPE 2. I don't understand why? I know the treatments maybe different. And I do understand that Type 1 diabetiecs are long time sufferers of this ailment. But to be so mean and not want discuss your experiences with a TYPE 2 diabetic is ridiculous.
I personally take ownership of the fact that I caused myself to develop diabetesthrough unhealthy eating and lack of physical activity. Actually had a fun time doing it...Now that I am wiser I am doing my best to live with it and exercise. Isn't that what ALL DIABETICS SHOULD BE DOING???
Please help me understand & give me your thoughts. I want a decent discussion about this. I am not trying to play favorites.
Thanks!
Replies to This Discussion
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Permalink Reply by PatientX on -
I think the anger comes from the ability to change things in the life of a type 2 vs the life of a type 1. When I was first told that I would be in insulin for the rest of my life I was really bumbed out for a while. I accepted that life back them. I had no control over my body producing insulin. Now image if you could tell a type 1 that if he/she ran more they could lower the amount of insulin they use or if they lose 20 to 30 pounds they would no longer be required to be in insulin. That is the message that is out there and I see why a type 1 would be frustrated with that message. I always try to put myself in the other person's shoes and walk a mile in them, figuratively speaking. I think that is the power that type 2's have an ability to control the meds they use based on a physical activity or the amount of food we consume. We have the power to completely go off meds if we put the work into it, granted it is not easy work.
What we can offer to type 1's is educating people about the difference and I feel I have learned a lot from the type 1's here. Sometimes we dont see eye to eye on things but it helps me to not take things for granted.
I have lived as an insulin dependent diabetic, I dont know what to call myself I guess 1.5 since I have been in between insulin dependent and oral med dependent. So i know how both sides feel and they are very different but should not stop people from helping people
anyway take care
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Permalink Reply by Manny Hernandez on -
This video is highly relevant to this discussion topic. We posted it back in June 2009:
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Permalink Reply by Terry on -
Manny,
Thanks for inserting your video in this discussion. I had not seen it before.
You eloquently and persuasively state the reasons why T1s and T2s can find common cause and fight together to defeat ignorance of diabetes in the larger society.
I encourage everyone to take the time to view this video.
Terry
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Permalink Reply by nel on
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I am in awe that Christalyn and followers ( other than 2 members ) have not mentioned anything about Manny's
video and the relevance to this topic .
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Permalink Reply by Melitta on
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Let me get on my soap box :) and dispel a few myths presented here in this discussion. It certainly isn't necessarily true that Type 1s have had the disease longer than Type 2s, since Type 1 is diagnosed at all ages and the majority of new-onset Type 1 is seen in adults. Always has been. Type 1s are not some tiny percentage of the total population (someone stated 3%), they represent about 20-25% of the population. The problem is that adult-onset Type 1s (sometimes called LADA) are too often misdiagnosed. But antibody testing (GAD, ICA, IA2) reveals the true percentages. And there aren't millions of thin Type 2s, but there are a lot of thin "Type 2s" who when given an antibody test are found to be Type 1. From my perspective, it is very important to distinguish between Type 1 and Type 2 because the potential repercussions for a person who has Type 1 but is misdiagnosed as having Type 2 are extreme (early onset of complications, DKA, and sometimes death). I do agree that we should all support each other in our journeys to take care of our health, and we certainly can all learn from each other. I know I do.
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Hi Angie: According to Irl Hirsch M.D., member of the Expert Committee on the Diagnosis and Classification of Diabetes Mellitus (and a PWD1), “The term latent autoimmune diabetes of adults (LADA) as originally described represents perhaps as many as 10 to 20% of adult-onset patients with diabetes.” John Walsh, author of "Pumping Insulin", says that classical onset Type 1 diabetes represents 5 to 10% of all cases of diabetes and adult onset Type 1 diabetes/LADA represents 10 to 15% of call cases of diabetes, which adds up to 15 to 25% of all diabetes cases being Type 1. In the landmark United Kingdom Prospective Diabetes Study (UKPDS) of Type 2 diabetes, 10% of the people that supposedly had Type 2 had ICA and/or anti-GAD antibodies, and clearly had Type 1 diabetes (Zimmet et. al., 1999). A new book, “Type 1 Diabetes in Adults: Principles and Practice” (Informa Healthcare, 2008) says that adult-onset autoimmune diabetes is two to three times more common than classic childhood onset autoimmune diabetes (p. 27).
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Permalink Reply by Jen on -
Hey Melitta,
Although this is getting further of off the original topic, I just wanted to point out that just as type 1 diabetes is different from type 2 diabetes, LADA is in a category of its own. Much of the recent research regarding LADA points out that although it has some etiological similarities to type 1 diabetes, there are several distinct genetic differences between the conditions and therefore cannot be clumped together. Check out the 2009 McDougal and Shubrook article...
To further clump together 'classical onset of Type 1 diabetes' (which I assume would mean prior to the age of 30?) statistics with LADA statistics to come up with a total of 15-25% of all cases is, as you can see, misleading. Thank you for digging up this information though. It is always neat to see how others view and interpret published information.
As I said before, I feel that I am getting off topic but it was eating away at me to not mention something. From reading through the (many!) replies to this thread it has become apparent that when individuals speak about type 1 diabetes, the majority are referring to 'classical onset of Type 1 diabetes' and not to LADA and so I support reference to the statistics that 5-10% of individuals with diabetes have type 1 (see: http://www.diabetes.org/diabetes-basics/type-1/).
I do appreciate your references as presented above. I will definitely take the time to check out the new book you mentioned as it looks like it has much more information about LADA...
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Hi Jen: The article you cite, McDougal and Shubrook 2009, clearly states that LADA is a form of Type 1 diabetes. NIH says LADA is adult onset Type 1 diabetes. So it is in no way misleading to include adult onset autoimmune diabetes in the category of Type 1 diabetes.
The website that you refer to is the American Diabetes Association website. ADA is one of the worst offenders when it comes to pretending that adult onset Type 1 diabetes is rare. However, all of the ADA's scientific journals state what the McDougal and Shubrook 2009 article states, that about 10% of newly diagnosed "Type 2" diabetics are antibody positive (GAD, ICA, and/or IA2) and have Type 1 diabetes.
What is common myth is not supported by evidence-based scientific studies.
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Permalink Reply by Jen on
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Oops sorry! Definitely a typo!
I meant to cite the Hillman, Torn and Landin-Olsson (2009) article! My bad! But I don't want to get into an article-citing debate...
Those who have grown up with type 1 diabetes, who have often lived through childhood and adolescence with type 1 diabetes and those who could benefit from meeting and sharing those experiences with a group of people with type 1 diabetes are the 5-10% many of the discussions in this thread are referring to.
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Permalink Reply by The Diabetic Welfare Queen on -
Millions of people have Type 2 diabetes, and 1 out of 5 people with Type 2 are thin, and that doesn't automatically make it that they are misdiagnosed LADA. That is still in the millions, for thin people with Type 2. http://www.phlaunt.com/diabetes/14046739.php
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The Endocrine Society says that 50% of non-obese "Type 2" diabetics are misdiagnosed and have Type 1 diabetes (they are antibody positive, meaning they have autoimmune diabetes, which is always Type 1). The "1 in 5 Type 2's are thin statistic" includes LADAs, which again is not appropriate. The problem as I see it is that the medical community has been very slow to recognize the prevalence of adult onset Type 1 diabetes.
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