Replies to This Discussion

Permalink Reply by The Diabetic Welfare Queen on January 8, 2010 at 4:10pm

Sure... but that is still millions of people, worldwide.

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Permalink Reply by Christalyn on January 9, 2010 at 4:15am

Hello,

I mentioned this in an earlier posting....Are there rules or regulations as to determining a Type1 from TYPE 2 or 1.5? I was suggesting a movement to require more definitive of diagnosis. This is an area I don't have alot of knowledge about before I make a bunch of incorrect comments. It seems there is alot of misdiagnosis happening!!!

Thanks!

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Permalink Reply by Osob on January 8, 2010 at 12:51pm

We are all human and have to go through a lot in life no need to discriminate against each other I think we should encourage one another and lend that helping hand.
Because we all fighting one main enemy just the numbers are different if we don’t assist one another how is anyone else going to take us serious.

Christalyn just ignore people who are acting in the way that they are acting diabetes is enough to be fighting against dont need rubbish from people.

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Permalink Reply by Christalyn on January 9, 2010 at 4:32am

This is my view exactly!! I think we should all be a support system for each other. I want to learn about other people and their experiences. If a person doesn't need support than why are they on this site??? Thank you so much!!

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Permalink Reply by Terry Keelan on January 8, 2010 at 2:29pm

My view is that if someone doesn't want anything to do with me, I don't want anything to do with them and I'm not going to force myself on them. But there's no need for them to be rude about it.

Type 1 and Type 2 are different and there's nothing wrong with celebrating or honoring the differences. But 'different' doesn't mean 'better' and it doesn't mean 'worse.' It also doesn't mean "I'm more worthy than you" or "I suffer more than you" or "I'm entitled to more consideration than you."

My thought is that if you run across this kind of treatment again, call them on it - especially if it's a meet-up that's being arranged through the tuDiabetes site, and ask them where they learned to discriminate like that. You could also set up your own meet-up, in which case YOU control who's invited and specifically include the Type 1's. Or exclude them. Your call.

Lastly, try to get over it. Just because some people are diabetics doesn't mean they can't also be jerks.

Terry

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Permalink Reply by Christalyn on January 9, 2010 at 4:40am

I am a organizer for a MMA/UFC meetup group. So I got a noticed that a diabetic group lost its organizer. I was thinking about taking over this group and a person wrote they really didn't want to be around a bunch of TYPE 2.

HELLO!!! I am a TYPE 2!!! I just thought the gall to announce this and not even care to find it I am the exact type of person you were taking about was completely rude. This is why I posted this. I find it completely funny that it has been Type 1 folks doing all the talking. I posted this on a TYPE 2 forum.

Thanks!!!

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Permalink Reply by Lauren on January 16, 2010 at 3:21pm

A lot of type one folk come and chime in on postings like these because we're the group being talked about and as thus feel like we can offer advice,comfort or possible explanations in cases like this. I think the responses you've gotten from type ones to this posting has been overwhelmingly positive! We are all in this together, at the end of the day.

What I've noticed on TuDiabetes is that types intermingle in the different sections - offering advice and tips. That is something I really enjoy about the site, honestly. So..I don't understand why you find it "funny" that type ones are sharing on this. It strikes close to home for a lot of us.

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Permalink Reply by marvin on January 8, 2010 at 3:48pm

hello..!

i just have to comment since this issue being Type I and Type 2 caused a lil stir in this community.. anyways, as a 20 something years of being a type I, i dont see much difference of both, i mean, we're all Diabetics no matter what type.. also, whoever sent you that mail. i think what he/she said of not having to do with the type 2, for me is just selfish and a childish comment.. it's sad to know that coming from the type 1s.. when in fact, there is a lot to learn of being diabetics, both from type 1 and the type 2.. i think it would be nice to know how the other type is coping with it.. also. i wanted to point out although i have never been to a diabetic meet up. i think the purpose of the meet up is to share and learn how other people deals with this ailment. i couldnt believe someone could say that they dont want nothing to do with the other type, its ridiculous.. thats just the dumbest comment i have heard from a fellow diabetic. or maybe there are just some people stricken with Diabetes who are selfish..

dont worry about it, people that kind dont grow...

Stay happy..! ;-)

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Permalink Reply by Christalyn on January 9, 2010 at 4:45am

this is my point!!! I would like for all of us diabetics to take this energy and focus it on legislation or discounts for supplies not pick and chose what we like and don't like.

I am working on a activism group about the discounts!!!

Thanks!

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Permalink Reply by Jen on January 8, 2010 at 4:00pm

Hi Christalyn,

That's definitely unfortunately that you had this experience and that it has affected you so negatively. I've had Type 1 diabetes for 23 years and have been a part of many many conferences, support groups, information sessions, etc. that focus on diabetes, in general, with no differentiation between type 1 or type 2. Although there is always much that we can learn from each other, many situations, especially considering the specifics that many 'discussions' at these conferences/groups/sessions go into, do not carry over between the two diseases. I feel that it may be moreso that specifics regarding type 2 diabetes do not carry over to type 1s. I don't want you to think that I'm saying that there are never instances where issues are applicable across the diabetes spectrum; however, my personal experiences have shown me that I do not benefit greatly from hearing about type 2 specific strategies for, for example, exercise, sport performance and nutritional preparation for activity. I do, however, benefit from hearing great success stories of individuals living with type 2 and of the challenges that these individuals have overcome to live happily and healthily.

I think where this problem may stem from, as has been brought up by several other members, lies in the fact that the general public is horribly misinformed when it comes to the differences between type 1 and type 2 diabetes. Of course, we all could rhyme off the differences without hesitation, but when you go to the general public, they understand diabetes to be type 2. They often understand type 1 to be "more severe" type 2 (Come on, how many of you type 1s have been asked 'Ooh you have diabetes? Do you have it bad?'). I don't think that the general public is being ignorant. Even the most generous statistics show that of the 285 million people living with diabetes, only 10% of those (28 million) have Type 1. No wonder there is such confusion.

That being said, I do think it is important for Type 1 and Type 2 specific 'groups'; not to discriminate against one type or another, and not in place of 'diabetes in general' groups, but to allow for the most growth and development among individuals. With type 1s being such a huge minority in the world of diabetes, it is often difficult to find someone who knows exactly what you're going through or have gone through. Someone who has had to deal with frozen pump tubing during a ski trip, or who has had to set a square wave bolus during a prolonged dinner party. Someone who has had to skip the birthday cake at their best friends birthday party in elementary school, and has had to to try to explain why they have needles in their purse to the freshmen in high school. Although some individuals with type 2 do deal, or have dealt with similar challenges, there are some things that, as someone with type 1, I would feel more comfortable discussing with others with type 1. Only someone with type 1 has experienced life with type 1, just as only someone with type 2 has experienced life with type 2. Although we may tell ourselves that we know what it's like to live with the other, we don't know what it's like, we only can try to imagine. There are forums where it is appropriate (and so important) to learn from each other, to help each other better imagine what it is like to live with each form of diabetes, but there are also some (equally important) forums where it is not.

I hope that, by sharing my own thoughts, I have shed a little light on how I see the challenges existing between the type 1 and type 2 individual. I believe that breaking down the barriers we face within our own disease is important and thank you, Christalyn, for bringing this up! It is something that needs to be discussed!

I hope that you have got back in contact with the individual who first gave such a negative reaction. I think it is important to find out why s/he feels they way that they do. Perhaps s/he was having a bad 'diabetes' day. Perhaps there is an issue that needs to be discussed within this group you'd like to take part in. Perhaps you can be the person to break down the barriers between type 1s and type 2s in your own community! I don't know the background of this group that you're getting involved with (Are they, or have they been type 1 specific? Do they have other type 2s in the group? Has there been conflict within the group before? Are there other 'diabetes' groups in the area?), but take the time to find out more about them and let us know how it goes! Seriously, let us know!

Good Luck!

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Permalink Reply by Christalyn on January 9, 2010 at 4:58am

Thank you so much!!!

I understand there are differences, and I would like to learn them. I like to know what you did to solve the frozen tubing on a ski trip. I would figure you would put it in the microwave. tell me it this works or not!!

Ultimately, my goal is to get people together and work on some legislation and do some activisim. I can't do this unless we are all involve. I feel I can learn from a Type 1 and other TYPE 2. I don't see how having these differences should separate us but should qualify to make us stronger as a group. As a group, I think our involvement would bring about better research and equipment for people.

I wonder why are there so many misdiagnosis of Type 1 and TYPES 1.5 & 2.0? It makes me wonder was I misdiagnosed because I am on so many different meds and injectables. If retailers can get together and have major discounts of electronics for Black Friday than why can we petition some of these diabetic companies to do the same for RED Thursday. This is what I call it.

Thanks again.

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Permalink Reply by Baby Tee on January 8, 2010 at 7:41pm

Well, I think it is good that the discussion is ending in "we don't dislike you, but we are different". My guess is that time is short and they can spend times on adjusting boluses, and not medications.

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