Why is it in this day and age we still have physicians that think all diabetics are "non compliant" just because your A1c is not what the ADA thinks it should be?
I am NOT that number, damn it! That's what I always want to scream at them in their face.
I am the person who has had T1 for longer than you have been alive, test 6-8 times a day, wear a pump and a cgm, low carb, exercises everyday I am not at my full time job as a nurse, and pay way more money than you will ever have to pay in medical expenses!
I work my butt off to get an A1c of 7.1-7.3, how dare you judge me!
Hmmmmmmmmmmmmm..... now I feel better :)
This isn't the first time this has happened to me and I have changed physicians several times because of those types of attitudes but this was the experience I had today with a locum physician who was filling in for my retina specialist. Hope my regular doc returns before my next appointment.
I hear you. Like most of us, I don't need gushers of sympathy from a doctor . . . just a modicum of understanding and empathy. Sometimes, that's hard to come by. I had a great A1c with my last doctor and he therefore never even bothered to mention it to me. I had to call weeks later and ask about it. "Thanks so much, I've worked three months for that and you can't even let me enjoy it for a second?"
I find most doctors don't really grasp the difference between Type I and Type II much less appreciate the daily effort it takes to manage it. Hang in there, it's not you.
I agree with you totally. Most docs who are not endo's have no idea of the different management strategies.
No, you are not that number, but that number will be relevant to your future health... Although I tend to me anto doctor/endo, blood glucose levels are relevant to your health.
Cannot spell: "I tend to be anti doctor/endo..." Wow. Would it be really a lot worse if I misspelled again? :>)
I know that feeling...my endo doesn't understand that you CAN have side effects from 6 different diabetic medicines. Been working with him for over 3 months. Finally decided to give me insulin. grrrr.... I barely eat anything that can increase my levels yet they make it seem like your doing the dirty work on your body...pisses me off
Management of T1 in particular is NOT an exact science. We are performing the work of an organ (around the clock) that we were not meant to perform. This isn't about compliance, it's about survival. And I absolutely freaking HATE The term "compliance." The last time I had an endo make reference to that word, I asked him if he'd like to do what I do for just 40 hours, to count every freaking carb and take insulin and do all this stuff while trying to hold down a job or go to school or live any semblance of a life. Sometimes I feel like endos think we do this full time or something!!
All the points you make are spot on. Honestly, I'm at the point in my life where if I have an endo pass judgment on me or even hint that I'm "non compliant," I will walk out of his/her office, refuse payment, and find another practice. I deserve to be treated with respect and not judged. And so do you!
I am totally not compliant, as my doc didn't really give me a "program" or "plan" but just lets me run my show. I'm listed as "compliant" because my #s are ok on my own plan (sic). If someone is listed as "non-compliant", I could see some utility to describe a patient who doesn't try, like that dude on the "Intervention" show who had sort of left the reservation. If you try and it doesn't work enough "for" the doctor, it's the doctor's job to fix it.
Perhaps doctors should be rated suck or non-suck?
In my area of the country, we have top grade hospitals everywhere. However, no endos accept 1.People with pumps, 2. Type 1 patients, 3. New patients, 4. etc.
My Endo retired and it took months to find someone to replace. He is an endo warehouse (mostly Type 2s) and runs folk through like a grocery store check out line.
Another reason I try to doctor myself. I do have a fantatstic PCP but he is a unknowledgeable about Type 1. Tis a conundrum for us all.
Huh? Endos can actually refuse to see you because you're a T1 and/or on the pump? I have never heard of this!
You had to go get me started on the non-compliant issue. I really really really hate that term. You know what I think I'll stop with that statement or this might get long and ugly.
As much as I hate the non-compliant term I got to defend the docs a little bit. Not all PWD follow their advice. I can see how a doctor can become cynical. It's like that old saying that 2% of the people screw it up for the rest of us.
It would be great if more doctor would be cheerleaders instead of enforcer of the rules. It would be great if all doctors recognized our efforts even if we didn't achieve the goals the set.
I said I was going to stop at the first statement but I just couldn't.