I was diagnosed with insulin neuritis after seeing 5 neurologists who gave me powerful pain pills but no guidance. I have been dealing with the pain for 5 years now. It has decreased but is still very uncomfortable. I was a late onset type 1 and my first a1c was 14. Intense pain set in once I was able to effectively bring the sugar levels down within good range. Other doctors have either never heard of insulin neuritis or roundly dismissed it altogether. This is very frustrating because it is like saying the pain I'm experiencing isn't real. It has been hard for me to get control of because there is so little information on it and I have had to try different medicines as a guinea pig. Getting my feet squeezed by a Brookstone foot massager is huge. Buy one for yourself please!! I currently take the max daily amount of gabapentin (1800mg) and supplement with 5-10mg of methadone when the pain is unbearable (3-5 times a month). Getting acupressure foot rubs and acupuncture treatments are something I have been doing lately and I have noticed extremely positive results. They aren't cheap, however, so try to get them covered by your insurance. I notice that wearing tight socks helps and comfortable shoes are an absolute must for me. I hope this advice helps, because it would have made the last few years of my life a lot easier had I known where and who to ask...
I was diagnosed one year ago. I worry. I was diagnosed with neuropathy. Diabetes runs in my family. My Dad died in December. He had heart trouble, kidney failure and had a leg amputated. That really scares me. He never felt the sore on his foot. I don't want this to be me. My Dad suffered so much! Since my diagnosis, I have inherited so many doctors and so many meds! I recently started taking Lyrica and it is helping. I don't get much info from my doctors on managing diabetes. Does anyone else feel this way? I feel like I'm on my own.
I don't get any help from my doctors,I got help here on this site and follow experience and advice , doctors gave me high carb diet and low fat, I had very high BS, all was according doctor's diet, so I thought I was dying, nothing can be done. I was completely depressed and powerless untill I found this site and LC diet.
What you describe sounds exactly like what you think it is. I have PN and when I began to control my BG it became quite painful. Like "I want to die" painful.I could hardly walk. I could not tie my shoes or button a shirt. After a year of good control I am MUCH better. Not a lot the doctor can do. I keep my BG as close to normal as possible. I take 1200 units of r-ala per day along with fish oil. Pretty much everything else is for comfort and pain, but does not heal. From what I have learned about it it can take two years or more to completely reverse (or close to completely). If I feel this much better in a year I will be one excited man. The pain means the nerves are healing. I don't have constant pain any longer. It comes back from time to time, but I see improvement as soon as it leaves again. Keep working hard. It does get better. Oh yeah, I've been able to tie my shoes again since last August.
I'm glad you are doing better! Gives me hope. I need to lose weight and know I should exercise, but just walking hurts so much! I am taking metformin. Last A1C was 6.5. Randy, did you have numbness too? My finger tips have been numb for about a month. Debbie
I believe, just as Randy does, that when you normalize your blood sugar, you can heal from neuropathy. I have CTS, did all the physical therapy and eventually had to have surgery. I normalized my blood sugar but still have some finger numbness. I went way too long with my CTS before acting. I should have had the surgery earlier. The surgery (along with normalized blood sugfars) relieved almost all my CTS symptoms. I am much better, but I still have numbness in one finger and the damage may be permanent.
Yes, I still have numbness in both my feet and hands. But as I said it is much better. I can feel my feet inside my shoes now. About a year ago I had conductive tests. My doc thought it was mainly CTS. The tests showed only very minor CTS. At that point the pain was at its worst, but the CTS surgery would have been a waste. Funny thing is, the small shocks from the test made my hands feel better. From that point on things improved steadily. That was right about 6 months into good BG and taking r-ala. I had been so disabled and my vision was so bad that when I was DX'd I felt I had no choice but to be very aggressive in my control. I am very thankful that I have been able to keep my A1c at 5.5 for over a year now. I know that a lot of folks struggle much more than I do and can't seem to get their average where they want it. I usually test about 10 times per day and work very hard not to see anything over 140. I do go above that sometimes, but not often. It takes a lot of focus, study and hard work, but you can do this. You can improve your situation, but it is not a quick process.
I had tests a couple months ago and have CTS mod. to severe in rt. hand and mod. in left hand. I'm considering surgery for the right hand. Randy, what is r-ala? I'm glad that your health is improving and appreciate your support.
Thanks Deb. R-ALA is Alpha Lipoic Acid. It is an amino acid that is already in you system. It is an amazing anti oxident and helps the nerves to heal. The R designation is the more natural version. You can buy ala cheaper, but the non R is not as effective. Do some research on it. There is a lot of info on the web. It is standaed fare for diabetic care in Europe. I found a lot of different dosage recommendations, but I started with 1200 units. I recently dropped to 1000. I found 200mg caps at Vitacost, but you can get 100mg caps at any supplement store. For me, there was a noticable affect from the first day. Both my PCP and retinologist approved of it, but niether brought it up to me.