I have been Type 1 since 1977 (the year Elvis died) and been through many types of treatment, Insulins and testing.
Still in good health now at 68 with good blood test results and an hbA1c around 5.5 (not easy to attain and some hypos result)
My Endo says I am becoming Insulin Resistant, plus she would like me to lose some weight (she is stick thin) and I am around 230 pounds and tall. She has put me on Byetta 5microgram dose twice per day & have now been on this for about 3 weeks. No negative reactions; no weight loss yet, appetite still good. I have managed to reduce my Insulins.
I take Novorapid, now, 14 before breakfast, 14 before lunch & 26 before evening meal. Plus 56 of Levermir & 10 of Novorapid before bed.
I used to take Lantus until 6-8 months ago when the Endo changed me to Levimir. Some scare about cancer?? Not sure if Levimir is really working for me
Has any Type 1 out there been using Byetta and how do you find it. Any weight loss or reduction in Insulin?
I suspect that I may need to use the 10 microgram version of Byetta to have better effect. Any views?
I will be happy to share any other experiences I have
Thank you for taking the time to read this.
I am a Brit, married retired and living in the South of Spain and generally enjoying life
Just like to say thanks very much for all the many helpful comments that have been posted.
So many with different views but almost none from anyone with Type 1 being on Byetta. I am due a visit soon to my Endo so I will review this.
Since Byetta at 5mgm dose x 2 is not doing much I have decided to up the dose to 10mgm x 2 (using the 5mgm pen twice at each injection time - much more expensive than using a 10mgm pen. I will check BS more frequently for a while.
Do you guys have to pay for your medications in the USA?
Here in Spain (and same in England) the Insulins are free as are 100 blood test strips per month but I have to pay if I use more - about 50 dollars equivalent per 100 and the 5mcg Byetta is not free and I pay about 100 dollars for each pen per month.
I take the point about weight loss being a good thing to aim for to improve IR. I do eat a sensible diet (believe me if I had a "free decision" on this I would eat twice as much - could just devour a Steak & Ale large cut of prime rib with baked pots and all the trimmings - but no folks tonight I will have a modest chicken casserole, no starter, no dessert with coffee to follow.
During the day I am a "saint" regarding eating. Porridge for breakfast, two slices of bread with boiled ham for lunch plus fresh fruit and usually little in between. Maybe a cookie (we call them biscuits)about 5.0pm with a cup of tea as the BS drops and we eat a bit later here - 7.30pm ish
OK, not too much exercise but we have two dogs and take them for a walk. Not a "couch potato" always up and about doing something
Will again apprecaite any comments from anyone