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Permalink Reply by Manny Hernandez on April 27, 2008 at 9:48pm

Thanks for including this reference, Melissa. Do you mind clarifying the name of the publication? (it says "Diabetes Vol. 54)

Calling myself a LADA for a while now, I would be interested in reading a bit more about this.

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Permalink Reply by Jenny on April 28, 2008 at 6:18am

"Diabetes" is the name of the ADA's journal that covers diabetes research that has a less treatment oriented approach.

http://diabetes.diabetesjournals.org/current.shtml

Their other medical journal is Diabetes Care.

http://care.diabetesjournals.org/current.shtml

Publishing these two journals is the only thing the ADA does that is not utter and total crap. However, it is worth noting they do NOT fund the research in these journals and that they profit from publishing them.

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Permalink Reply by Manny Hernandez on April 28, 2008 at 11:56am

Thanks for clarifying that, amiga. We gotta give them credit for doing this. ;)

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Permalink Reply by Melitta on April 29, 2008 at 7:58pm

Manny, you asked about LADA. Here's some info:

There are many myths about Type 1 diabetes, and one of the principle myths is that it is a disease of childhood. Yet the knowledge that new-onset Type 1 diabetes is far more frequent in adults than in children is nothing new—I have a book published in 1958 (“How to Live With Diabetes” by Henry Dolger, M.D. and Bernard Seeman) that states that “[Type 1] diabetes is almost three times more frequent among young adults than among youngsters” and “the acute onset typical of childhood is not as common.” That was stated in 1958. Today, with antibody testing, the same statement is true. A new book, “Type 1 Diabetes in Adults: Principles and Practice” (Informa Healthcare, 2008) says that adult-onset autoimmune diabetes is two to three times more common than classic childhood onset autoimmune diabetes (p. 27).

Part of the problem that we who acquire Type 1 diabetes in adulthood have is that the American Diabetes Association pretends that we don’t exist (except for documentation in their peer-reviewed scientific journals), despite the fact that we greatly outnumber those with childhood onset Type 1 diabetes. . In information distributed to laypeople, ADA consistently says that Type 2 diabetes represents 90-95% of cases of diabetes in America and that Type 1 diabetes represents 5-10% of all cases of diabetes. However, this is false according to ADA’s own peer-reviewed scientific journals. That 90-95% Type 2 statistic includes people with latent autoimmune diabetes in adults (LADA), and according to the Expert Committee on the Diagnosis and Classification of Diabetes Mellitus (as published in ADA journals), "Although the specific etiologies of [Type 2] diabetes are not known, autoimmune destruction of beta-cells does not occur." Furthermore, the Expert Committee’s definition of Type 1 diabetes by the clearly encompasses all autoimmune diabetes, regardless of age, which includes LADA (“Type 1 diabetes results from a cellular-mediated autoimmune destruction of the beta-cells of the pancreas. In Type 1 diabetes, the rate of beta-cell destruction is quite variable, being rapid in some individuals (mainly infants and children) and slow in others (mainly adults).”) So, in fact, Type 1 diabetes represents about 20% of all people with diabetes if all who fit the definition of Type 1 are included.

In the United States of America, if you acquire Type 1 diabetes as an adult, you will find that few resources are available to you, the American Diabetes Association and Centers for Disease Control include you in statistics of Type 2 diabetics (a completely different disease than the one you have), you will be excluded from most Type 1 clinical trials if you are older than 45 (and your relatives will be excluded, too) and you are likely to receive substandard treatment in the time period that you are treated as if you have Type 2 diabetes, a completely different disease both clinically and genetically (there is also a profound lack of scientific rigor in failing to distinguish between Type 1 and Type 2 diabetes, when tests are available to make the correct diagnosis, and misdiagnosis in fact is malpractice). The high blood sugars that result from trying and failing with pills for Type 2 diabetes cause agony and suffering, not to mention hastening the complications of diabetes.

Melitta

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Permalink Reply by Jan on January 5, 2009 at 5:26am

I guess I am a typical type 1.5. It is comforting to finally have a name for this. I was 20 in 1966 and went in for a routine physical as I was changing colleges. I was thin as always, active, and had no family history. I was told that I couldn't have had the disease for more than a month. It had been caught early. Five years of oral medications followed and then insulin.

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Permalink Reply by Anthony Holko on January 5, 2009 at 5:09pm

Dear Jan. Where your BG horrible with oral meds only?

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Permalink Reply by Paul Calhoun on June 22, 2009 at 9:01pm

thanks for this info everyone. it really helps me since i was initially diagnosed a T2 by my pcp, then went into hospital later the same week with kidney failure and was diagnosed as T1.

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Permalink Reply by Fenderstratocaster on January 7, 2012 at 11:25am

they call this 1.5 in the UK, i went from being diagnosed with type 2 to 1.5 within 4 years.
its strange because I have a very healthy life style and when i get new medication it works perfectly for a few months then stops working all together. 1.5 is exactly the same as 1 but the only difference is its still classed as adult onset diabetes.

x

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Permalink Reply by Betty J on January 7, 2012 at 5:59pm

Here in the U.S. we also have Type 1 and 1.5. My educator consider 1.5 also as a 1. Either way you look at it it's all Type 1.

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Permalink Reply by Betty J on September 23, 2012 at 4:04pm

I'm only an expert when it comes to my D but I did have a friend who many years ago was dxed as T2. As years went she was treated with orals and insulin...fast forward to 17 years later when she became very ill and was hospitalized. Finally she was dxed as LADA but going so long without correct dx damaged her physically. She was treated by regular MDs I advised her to get an Endo.

The bottom line is that we have to advocate for ourselves and with the help of websites like TuD the word will spread to be proactive and advocate for you Diabetes such as you are doing Aeon.

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Permalink Reply by Mohanned on October 23, 2012 at 6:22am

Yes it's called 2ry failure type2,it depends on which oral anti diabetic medication a person is using (specially those working by stimulating beta cells to produce more insuline),think of the beta cells as workers,the more they work the more exhausted they get.so oral anti diabetics medication working on beta cells tends to cause 2ry failure.
On the other hand some have so much peripheral resistance to the point they need insuline just to control.

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Permalink Reply by Betty J on November 2, 2012 at 3:30pm

Thanks Ellen085 it looks like an interesting sight, so I put it in a folder and will visit it later.

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