And allows her to consume massive quantities of junk food. Perhaps this says more about the food available in hospitals however the story doesn't give me warm fuzzies? Also noting the vast amount of stuff plugged into Erin's abdomen which is quite a bit smaller than mine?
I suppose some of the gizmos are "scientific" as opposed to "operational" in nature and it seems like the scientists involved are optimistic however I am doing ok w/ the 2 things currently plugged into my abdomen and am not sure 6 things at whatever as yet to be announced cause is a huge improvement? I can sort of perceive that perhaps there's other things that could be done for patients, e.g. self-treating the hypo, rather than going to the office and calling mom for a hypo? That seems cumbersome however perhaps that's part of the school bureaucracy that would be able to be changed? Schools are squidgy these days. I can't imagine having to deal with one.
I won't paste the whole article here however the # of things and the problems with the school seem to leap out at me. There's probably other things too however I don't want to be too cranky without more medical inforamation about how well the gizmo processes bacon cheeseburgers.
My daugther is 3,5 years old, 2 years type 1.
Everynight 12PM, almost always 2am to see trend and insulin (long) tails and sometimes 4am too.
She surely doesn't feel low/high, she just sleeps and you don't know.
When I don't wake up, it's because she is high and I know I cannot correct her BG and recheck at 2-4 hours because I'm too tired, so I leave her BG as is.
We are under lantus, but I know parents using micro which do the same, 'cause you set lower targets and it's easy to run low (hormones up and down, played too much during day, the wind blows and whatsoever).
My be I'm an helicopter parent, but you would be either.
This is why every parent of a child with T1 should hire a menopausal woman as a live-in nanny. We can't sleep for more than 3 or 4 hours at a stretch anyway -- might as well use us for the middle-of-the-night testing. Sigh.
HA HA..You are right Laguitariste. This post menopausal honey is up betwen 2:30-4:00 am almost every morning..sometimes I check my blood glucose and sometimes not.. I usually go to the computer and Tudiabetes..like right now at 4:00 am EST
Yep! What a wasted resource we are! I could check several dozen people's BGs before I could fall back asleep for the next little stretch. I recently had a BIG day at a guitar festival (fourteen hours of go-go-go from door to door) and slept nine hours in a row. I couldn't believe it. Nine hours! It was like winning the Sleep Lottery! ;0)
I've read a number of stories of children with diabetes dying at night, and the impression I get is that they don't know exactly what is killing them. One mysterious thing is that they seem to be just asleep -- their pillows and sheets are not wet from sweat, and the bedclothes are undisturbed. I think this unknown factor makes it MORE scary for parents, not less, because you don't know if your child has this unknown susceptibility or not -- it could be a low accompanied by a heart conduction defect or something else, and no one knows.
So, I think every parent has to do what gives them peace of mind, because a child's life is just too precious to risk. And even then, no one can predict what's going to happen, so please take the time to love your sweet ones as much and as often as you can! :-)
I have wondered the same thing Jen. My daughter was 3 years old when diagnosed and now she is 7 years old. When she was first diagnosed and also when she first started on the pump we did a 2am test every night for several weeks until blood sugars were pretty stable. Now we test her before we go to bed (which is 11pm or so) and then we sleep through the night along with her. Every once in a while (maybe a few times a month) we do another test in the middle of the night due to questions about whether the site is working, extreme excercise, etc. This seems to work really well for us. I hear of other parents that religiously wake 1-2 times every night to test their child and wonder if they have reason to believe that the blood sugars fluctuate that much in the night or if they are just wanting extra insurance that all is OK. I am not sure as I know that every person's diabetes can differ.
I actually fight the urge to get up in the night to check blood sugars unless there is really a reason to be concerned. It reminds me of when my kids were newborns and I would have that urge to check to make sure they were breathing in the night. Sometimes I give in and go check her just so I can go back to sleep, but I usually talk myself out of it. Since my personality is a bit obsessive-compulsive I swear that once I started getting up once in the night it would quickly become two or three times. For my sanity, I have to draw the line. :)
That business of her having to call her mother when she was having a low is ridiculous. But I have to tell you that schools worry more about liability issues than about children's (or staff's) health. And then you have the school nurses association, which was arguing that only a nurse should be allowed to give a child an insulin shot -- again ridiculous in an era when most schools DON'T have full-time nurses. If a parent can learn to give shots, why can't a health aide?
I was also wondering about what I saw on her belly -- I think I saw a Medtronic sensor, but was there a Dexcom sensor too? Getting input from 2 different sources is an interesting idea.
And the other thing I'm wondering about is, algorithms. Predictive alerts are well and good, but what if the machine predicts that you're going high, and gives insulin, but you level off instead (I do that) and then it sends you low? And is there currently any kind of glucagon that lasts as long as 3 days?
More questions than answers! And I DO agree that while an artificial pancreas is a fun idea, getting adequate treatment to the folks who currently are being neglected is higher on my priority list, too! :-)
I suspect the other gizmos plugged in are "aftermarket" gear that the lab cooked up on their own, probably correlated with the "commercial grade" stuff, to see if they can make it work together? I'm totally guessing though?
I really only want one if they can guarantee it will beat me.
I'd suggest that you challenge them to a duel, but it's not nice to make researchers cry.
Anyone remember when an insulin pump wasn't a practicle treatment?
a. I think that the media is going a little too far with this. I mean, it is a neat thing, but not exactly a "cure". Still, if the FDA approves this, it would make diabetes a good deal easier.
b. It does look as though Elle and her mom could back off a little. Waking up every three hours every night is not only hard for her mom, it also disturbs Elle's sleep. Maybe a pump or some sort of change would be good for them (although it looks as though she might already have one). You'd think that after four years, they would have solved this night-time issue.
p.s. Did anyone else feel like saying, "big deal" when Elizabeth Cohen said how Elle was testing 10-12 times a day and sometimes had lows and had to give herself insulin?