Replies to This Discussion

Permalink Reply by Zoe on August 7, 2012 at 12:13pm

Hi Runner, this is a very old thread, but I'm glad you found it. I'm so sorry you have been through such torture over you diagnosis; it makes me so angry to hear that. I basically rediagnosed myself and then just went to a new doctor and said, "I'm Type 1". It helps that I've moved a lot, so the only example of my diagnosis is self-diagnosis. I hope that you get a pump to regulate your blood sugars. Be sure to re-read Using Insulin by John Walsh and get Pumping Insulin by him as well to help you really brush up on your skills and then make the best use of the pump.

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Permalink Reply by DiabeticRunner83 on August 7, 2012 at 12:27pm

Thank you! I had not realized this was an old thread. I am new here! I am glad to have found this site though. I am going for a second opinion. I think if I were type 2 I would still be making insulin whether I take from the outside or not. To not be making any at only 10 years into this is crazy! I know a lot about Diabetis, as I have done lots of research. Usually type 2s have very long standing Diabetis before they start loosing insulin production. At least that is what I found through research online. Thanks for the book suggestions, when I get on the pump(hopefully next month) I will need to relearn all over again!:)

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Permalink Reply by Brian (bsc) on August 7, 2012 at 12:20pm

The studies that I saw suggested that only 85-90% of T1s tested positive for any one antibody (there are three), the percentage that test positive for GAD is even less. It still takes some competent judgement from a doctor to make a T1 diagnosis and not all GPs can do this. You really need a specialist, an endochronologist and even then, there may still be differing opinions. In the end, the diagnosis itself is not what matters, it is that you get proper treatment. And with an A1c of 11% and being unable to control your blood sugar levels with MDI, you need (and deserve) better treatment.

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Permalink Reply by DiabeticRunner83 on August 7, 2012 at 12:25pm

Thanks! I am getting on my husbands in surance in 1 month. He's will pay for me to get on the pump! I am currantly seeing an Endo. but I am thinking of going to another. Her PA and even another Dr. I talked to in the emergency room thinks I am actually a type 1. So I am going for a second opinoin because I have had too many crashes and lows, so I don't think I am insulin resistant. I follow what I am told and do my very best. Thanks for the incuragement and suggestions. :)

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Permalink Reply by Zoe on June 19, 2012 at 5:46pm

This is a very old thread and shortly after starting it I determined that I am, in fact, Type 1. When I figured that out I saw an endo in Guatemala who looked at a list I had of five things that made me know I was Type 1, not Type 2; she checked off all five things and said, "you are type 1." I never did get antibody testing.
The five things were:1. Lost 40 pounds at and after diagnosis,2. had another immune condition (graves disease),3. low c-peptide, 4. needed insulin 15 months after diagnosis and 5. insulin sensitive.

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