Replies to This Discussion

Permalink Reply by Keith221 on October 28, 2011 at 3:34pm

That is type 1b idiopathic diabetes. Type 1b never test positive for any GAD! Also called ketoacidosis prone Type 2. My insulin didn't start dropping till after about 2 years!

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Permalink Reply by Lila on October 31, 2011 at 6:08am

Actually, there are 4 subtypes of KPD depending on whether you are antibody positive/negative and beta cell positive/negative. See link here. Normoglycemia does sometimes happen for some KPDs, usually the beta+ ones.

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Permalink Reply by Natalie ._c- on October 31, 2011 at 11:58am

Fascinating!! Just goes to prove that diabetes is NOT an either/or disease, but that there are a lot of subtypes, and the lines between them are fuzzy. Score one for my spectrum theory! :-)

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Permalink Reply by Kari on October 28, 2011 at 7:54am

I too am interested in what the doctor is basing this on.

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Permalink Reply by Randy on October 28, 2011 at 10:43am

Be careful, the pharnas may try to lock you away!

Whatever is happening congratulations!!!

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Permalink Reply by Keith221 on October 28, 2011 at 3:37pm

What do you mean?? Wait there is a knock at my door......... HELP I only have a seconds there are these guys in white coats trying to catch me!!!!!! Please tell some bodYYYYY........ Ahhhhhhh
ROFLMAO

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Permalink Reply by Elizabeth on October 28, 2011 at 12:25pm

Wow. One in a million!

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Permalink Reply by Alan S on October 28, 2011 at 12:47pm

"Wow, dx'ed type 1 in ICU, bs 672 and a1c of 13.2, aug./08 at 52 years old."

It looks rather more likely to me that you were never a type 1 in the first place. From the start you appear to have been been an insulin-using type 2.

"DKA yes, antibody positive yes, I only use insulin for correction, I go a days, weeks without, yes bs comes down. They want to study me because I only tested positive for 1 GAD not all. I am negative for the others, but had been positive at dx."

Were you officially told you were type 1 or did you presume you were because you used insulin? It sounds like your GAD tests were indicative rather than conclusive.

Nor are you now cured or pre-diabetic; you are now a well-controlled type 2 based on the information you have provided.
Congratulations on your improvement. Whatever the cause, it is something to celebrate :)

Cheers, Alan, T2, Australia
Everything in Moderation - Except laughter

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Permalink Reply by Keith221 on October 28, 2011 at 3:28pm

Hey Alan, I remember you were the first to say welcome at ADA website right after I was dx'ed, before I found here! My insulin use only went down about a year ago. First Lantus was causing lows! before that it was 30 units every morning. Novolog was used at about 2 units for every 45 grams carbs, always. I was type 1!!! I was dx'ed in a Veterans Hospital. By the way it was ADA site and your help that taught me how to figure baseline. Haven't been there in quite awhile, check you'll find me there. Dx'ed aug./08 and joined about that time. The post I can remember was about having a bologna sandwich causing my bs to get high and I would figure thid diabetes stuff out.
Type 2 no type unknown is what Dr. said!!!

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Permalink Reply by Tim on October 28, 2011 at 3:57pm

Type 1 in honeymoon phase? I'm told that for T1's diagnosed as adults the honeymoon phase can be a year or two or three after diagnosis.

They made real sure I knew that the honeymoon phase did not mean I was cured.

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Permalink Reply by Jen on October 28, 2011 at 4:01pm

I could be wrong, but do antibodies automatically mean Type 1? I thought I read somewhere that a certain percentage of the population has antibodies but never actually develops Type 1. So, is it possible that you developed Type 2 and just happened to have antibodies?

I also thought I read somewhere that even us Type 1s are always regenerating beta cells and that our immune systems just continually kill them off. So, maybe your immune system somehow reverted back to its normal state?

In either case, congratulations for being cured (or well-controlled without insulin)! That is never a bad thing! :)

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Permalink Reply by Keith221 on October 28, 2011 at 5:05pm

I think of it this way. Diabetes is just high(bad) blood sugar. After that all is the best they can do for figuring out how to treat. Type 1 autoimmune, common in type 1 and not general population GAD's, little or no insulin. Type 2 extra insulin because of body not using correctly. Why? Well for both the best we have are guesses as to why! lol

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