Replies to This Discussion

Permalink Reply by Gerri on October 28, 2011 at 2:18am

What did he base this on? Did he test C-peptide to know that it's increased? Am guessing that your insulin doses have gone down dramatically.

Rejoicing for anyone who gets to leave the D Club! Please keep us posted on the study.

• ▶ Reply

Permalink Reply by Keith221 on October 28, 2011 at 9:39am

My C-pep came back normal!!! I still have to check bs and once in a great while I use insulin for corrections. The reason I am not diabetic is because I did have to treat everyday. I only used 5-6 units of Novolog in the last month!!! .

• ▶ Reply

Permalink Reply by Gerri on October 28, 2011 at 9:42am

That is astounding!

• ▶ Reply

Permalink Reply by Tim on October 28, 2011 at 3:47am

Every time I get an A1C in the high 5's, the computer generated lab report tells me that an A1C of say 5.6 means that I am "at reduced risk for diabetes" and that only an A1C of 6.5 or higher means "consistent with diabetes."

I don't for a second think that means that I no longer have diabetes although the wording always tweaks a little bone in my head that very rarely gets tweaked.


In my head, that wording on the labwork is about as worthwhile as (for example a memory from my youth) the school nurse asking "Are you sure you have diabetes? You don't look like you have diabetes."

• ▶ Reply

Permalink Reply by Natalie ._c- on October 28, 2011 at 4:25am

On what basis did he make that pronouncement? Were you in true DKA when you were diagnosed, or was it Hyperosmolar Coma? Were you tested for antibodies? Are you able to be off insulin for more than a day without any rise in BG, except after meals, and then it comes right back down again? Do you check for ketones? Maybe you were a Type 2 all along?

Your post brings up a lot of questions, and I am interested in knowing more details!

• ▶ Reply

Permalink Reply by Gary on October 28, 2011 at 5:22am

Please tell me It was a shot of BCG!

• ▶ Reply

Permalink Reply by Gerri on October 28, 2011 at 8:51pm

Wishing the same, Gary.

• ▶ Reply

Permalink Reply by Keith221 on October 28, 2011 at 9:51am

DKA yes, antibody positive yes, I only use insulin for correction, I go a days, weeks without, yes bs comes down. They want to study me because I only tested positive for 1 GAD not all. I am negative for the others, but had been positive at dx. And I don't take any diabetic meds. Believe me, I am blown away. The Dr. also said I am unknown Type ?

• ▶ Reply

Permalink Reply by Natalie ._c- on October 28, 2011 at 11:29am

Well, that's an interesting story! You are a case for the textbooks. Maybe you have some unusual gene that allows you to rapidly regenerate beta cells? It has been found that mice do, but humans don't. Maybe you're secretly a mouse masquerading as a human? :-) Maybe your body has, in some way, tamed your immune system? I hope they put a lot of energy into studying you, because they might find out something that will eventually be of benefit to others! :-)

• ▶ Reply

Permalink Reply by Tribbles on October 28, 2011 at 1:30pm

Yeah, it's uncommon but not unheard of. There are a few variants of Type 2 (for lack of a better classification) that have periodic complete beta cell failure but what happens is rather than dying the beta cells simply shut down. Consequently the person ends up with high BG and very large ketones and going into DKA if it isn't addressed. If it's treated with insulin the beta cells recover over a 6 week or so period once your levels are controlled. There is a hospital in Texas that does a lot of work in that area. The most common instance of this is "Flatbush Syndrome".

I know a couple of people with this. The interesting thing is that they don't really know why it happens but have a look for ketosis prone diabetes.

• ▶ Reply

Permalink Reply by Natalie ._c- on October 28, 2011 at 1:41pm

The only thing that doesn't fit the picture of ketosis-prone Type 2 for Keith is that he said he DID have at least one positive GAD antibody (not sure if that means there are more than one GAD antibody, or if he had other antibodies). And I don't know how high the titer was. Also, I don't know if he has black blood behind him, but KPT2 is almost universally found among blacks, and occasionally in Asians and Hispanics and Native Americans, the latter 2 because they have Asian deep ancestry. Just because he ALMOST fits the picture is not proof that he actually IS that type, and I do hope his doc is proactive about getting him studied -- it would be a shame to just stick him in a box if he DOES have something unusual going on that could give clues to possible cures.

• ▶ Reply

Permalink Reply by Tribbles on October 28, 2011 at 8:45pm

Flatbush is almost exclusively African American, but there are other variants. The general KPD numbers I saw were 50% African American, 35% Hispanic, 15% Caucasian. Some countries like Japan have particularly high rates. I am not saying it definitely is but the probability is far higher that it is KPD than that it is Type 1 cured. GAD is indicative rather than definitive, you can get transitory levels.

That said in his position I would get on every study I could because if it happened once it can happen again and I would want to know how to prevent that (and I am curious!)

• ▶ Reply

• ‹ Previous
• 1
• 2
• 3
• …
• 6
• Next ›
• Page