Replies to This Discussion

Permalink Reply by Kristy S on April 18, 2009 at 1:23am

Jesse, I have collapsed arches too, and I think that is what my doctor thinks is wrong with my feet. I'm glad I came on here to get more ideas, on what it might be. Man, Diabetes is so complicated!!! I had my numbers so good until a few weeks ago makes me mad at myself that I've slipped..I'll see about the alpha lipoic acid too. Thanks

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Permalink Reply by Autumn Haley on April 22, 2009 at 8:01am

I have severe neuropathy in both my feet. It hurts, burns, stings is numb and very painful all at the same time. Some people compare it to the feeling you have when your feet fall asleep, NO! Not even close (for me). MUCH more painful. I am trying to keep my numbers down but it's hard. I love food! I can feel my feet beginning to hurt just minutes after I cheat. This should be a life lesson but I guess I am still learning.
I take a supplement called NeuropathyRX for my pain as well as Lyrica and Cymbalta. The supplement is supposed to help repair the damaged nerves where as the other meds are just for the pain.

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Permalink Reply by Kristy S on April 22, 2009 at 2:41pm

Autumn, I have really terrible pain in my feet too..it mirrors your foot pain. I have an appointment with my doctor and I'm going to tell her all the ideas I got from you guys. Not that I wish this horrible pain on anyone else, I am very glad to see I'm not alone. I have gotten my numbers back into a better range and the symptoms are getting better. That just proves to me that it is the diabetes making my feet hurt so bad. I love food too! I'm so depressed that I have to make conscious choices about what I eat now. I know I should have been doing it all along, but it still sucks!

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Permalink Reply by soloman on September 4, 2010 at 7:21pm

Hi thereI hope you get my message.I am a diabetic who was misdiagnosed and I only finally got the help I need but it was a little late.I have balanced my blood sugar very well but I have neoropathy issues for two minths and I am only starting to sleep at night and I have to take sleepy tea and 100mgs of lyrica to do this.I go biking alot cause its easier on my feet cause walking is tough i can usually handle about 20mins to 30 for this.I have never felt so much pain it unbeleivable the burning,stabbing,searing pain and mostly at night when I need my sleep.I have to wait till I am tired enough and then I can fall asleep.I am getting better because my sugar levels are good and thats where I needed to start.I suggest you go to a specialist and hope you have a good family doctor mine is bad and I had to put myself in the hospital twice to get help.Don't let this fester be sure what it is it could be a nutrient deficancy be test first and don;t go through the pain it is brutal.good luck all the best. D.M

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Permalink Reply by Debby on March 22, 2011 at 11:43am

I too have been having tingly feet and legs below the knee especially at night. My doctor just checked me for neuropathy and because I passed her test of feeling all my toes when pricked she said it was NOT diabetic neuropathy but I'm just not so sure. I certainly don't want it to be neuropathy but what else could it be? My last A1C was 7.1 and stays right around 7 all the time. My doc wants it down to 6. Is there anything to do for this tingling? It drives me crazy! Also, today I have had a pain in one toe that is not bone or muscle pain but seems to be the skin but no sores - nothing just pain shooting enough that I could jump off and on since before I got out of bed this morning.

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Permalink Reply by neilin on May 23, 2011 at 7:52am

I am type 2 diabetic and I am experiencing tingling, burning, and numbness in the feet, which is very painful at times and some degree of pain all the time, even when sitting, sleeping, and so forth. I have been diagnosed with neuropathy, and reading up on it. There is a nutrient supplement called Alpha Lipoic Acid (I bought some at WalGreen's) that is supposed to help with this condition. I have been taking Alpha Lipoic Acid for a week now, and it seems to be helping to tone down the symptoms. At this early point I am not sure if it really is helping or if I am just wanting it to help. More time should tell. I thought I would mention this nutrient for the 'what it is worth department' for now. Maybe there is something to it, and perhaps someone else might be able to shed a little more light on this supplement.

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Permalink Reply by debb on May 24, 2011 at 4:50am

i have neuropathy in my feet and have managed to keep it from going anywhere else. i was put on lyrica which did help but i couldn't afford the co-pays so was put on gabapentin. it works just as well and and keeps about $90.00 in my purse every month. a few months ago i experienced numbness on the left side of my face that my doctor assumed was more neuropathy and almost shrugged it off. his office called me later that day at home and asked me if i would consider an mri. which i did and a ton of specialists later we have come to the conclusion that it's not neuropahty but a possible mini stroke. meaning that the mini was so mini it left no tell tales so they can't say for sure it was a mini stroke but that they can say that they are about 98% sure it is. gotta love the doctor's, they won't give a for sure just in case they are wrong. anyway, i'm writting this so that others will know that you should never assume what you are feelng is neuropathy (or anything else) make sure your doctor checks out everything because it could be something very serious and you would have missed the window where you can correct it without after effects. they are keeping a clsoe watch on me now and have me back on a low dose asprin again and i will need another mri in about 6 months to see if the white spots they found are any bigger, they dont know what caused the white spots (probably from my being a diabetic) but they want to keep an eye on it. their tests were so extensive they also found lesions on my thyroid and i have to go get that checked out as well. my theory has been found to be true, once your doctor's get their hands on you they won't let you go. lol. i wonder what they will find in 6 months.
thoughts for today.....be aware, be active, be educated and always take part in your health decisions, don't just let your doctor make the decisions, ask questions and discuss what all the options are so that the decision is made from knowing what is best for you and not leaving you in the dark as to whether they are necessary or not. as you can see from what i wrote i just assumed the doctor was right and then was surprised when they called me back and asked me to go have an mri done. i let my suspisions of a possible stroke go when my doctor said it's probably from your neuropathy. i should have insisted on some tests to make sure. at least i have a doctor who didn't let it go and thought about it all day and made the decision to call me and have more tests done. hoepfully we caught something that we can keep control of, or at the very least won't be surprised if a bigger stroke comes along. i will know what to expect and take proper measures to get treatment right away.

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Permalink Reply by neilin on May 30, 2011 at 1:35pm

I appreciate your reply.
In reference to the numbness on the left side of your face; I have had that numerous times (before Diabetic Neuropathy). It would go away and no one thought anything about it. After two major TIA's (mini strokes) that put me in the hospital for several days at a time, I take an adult aspirin once a day and each time I feel any numbness in my face (I was told not to swallow it whole, but chew it and swallow to get the aspirin into the blood system faster). Also, it was found I had a vitamin B12 deficiency.

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Permalink Reply by debraoxner on October 4, 2011 at 9:26pm

I was diagnosed two years ago with neuropathy, it is a very complicated disease. It started with just painful feet at work and progressed very fast to my legs, hands and arms. I have used every possible anti inflammitory, and pain killer, except for morphine, nothing gives me much relief. I find swimming to help a lot and cold thrapy for the feet.

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Permalink Reply by debb on October 5, 2011 at 5:19am

i'm so sorry to hear that your neuropathy progressed to such a painful state so quickly. it's hard enough to deal with a wee bit at a time. hopefully it will back off a little and give you some relief. your right about the cold therapy. of course my flare ups always hit in the winter time when putting cold on my feet makes me even colder. lol. i'm sure i look a sight to see. cold packs for mt feet, hot pads to go on my tummy and wrapped in warm blankets. but it works. i also have degenerative nerve damage in my feet from working almost 20 years on cement floors. so i had to give up work because it got so bad between the pain from the nerve damage and the neuropathy that i couldn't stand on my feet for more then 2 - 3 hours at a time. add restless leg syndrome to the mix and i can't sit for more then a couple of hours at a time and you have a jack-in-the-box that drives everyone crazy with the constant up and down movements. i was recently turned down for jury duty because i can't sit still. not that i'm complaining about that one. lol. until one has it, there is no way anyone can understand the pain, the burning sensation, the numbness or the feeling like your walking on rocks that is part of neuropathy. it hasn't progressed any further then my feet and lower legs yet and i'm hoping that it doesn't, but as with anything diabetes anything can and will happen. usually when you least expect it. between the arthritis in my hands coupled with the trigger fingers that i have had to deal with (7 surgeries so far, with probably 3 more to go) and a touch of carpel tunnel added to it i am hoping the neuropathy stays away from my hands. since i can't work anymore i crochet to keep the boredom at bay. my daughter sells what i make when she goes to craft shows to sell her jewelry. i don't know what i would do if i couldn't even do that.
fyi, the thyroid appt showed that i do have one lesion that they are going to keep an eye on but it looks like i have probably had it for a very long time and it doesn't appear to be anything bad, but yet again they will be keeping an eye on it, (scans every 6 months to make sure it isn't getting any bigger) sigh, i don't know which is worse...the diabetic problems or the non diabetic ones. i tell myself i am luckier then a lot of people but some days it just doesn't help. i can still get discouraged and want to have a temper tantrum, but that would involve stamping my feet and i really don't want to do that. lol.
i hope that they hit on a combination that will ease some of your pain and will let you feel somewhat normal again. neuropthy isn't something i would wish on an enemy, let alone a friend.

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Permalink Reply by Williamsgang2k on December 20, 2011 at 1:27am

I am 52 years old, overweight/obese, and have foot sores along my shins. Doctors say this is diabetes slow progress/damage. I was told by my longtime cardiologist to loose the salt. I had a 3-way bypass due to diabetes. Does anyone have low salt soup recipes? Please send links.I get neuropathy from time to time. I know it's my sugars. Because of this site I take sugar readings 6 to 8 times a day. Otherwise Doctors just recommend 2-4 times/day.

I met a friend who can't afford to pay for his test strips...any recomendations? His Father-in-law just lost his other leg also due to Type 2 diabetes.

The input from this site and you has made a difference for me.

Merry Christmas

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Permalink Reply by Gerri on December 20, 2011 at 2:00am

Good for you for testing frequently!

Is your doctor ok with you using salt substitutes? Soup without salt is terribly bland unless you use a lot of herbs, garlic & onions.

Have your friend contact his meter company, or a new meter manufacturer, for their patient assistance program. Some offer help for people who can't afford strips. There's info on their web sites. The cheapest strips are the Wal Mart ReliOn brand. 100 strips for $35 & the meter is around $9.

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