Replies to This Discussion

Permalink Reply by Zoe on May 11, 2012 at 6:25pm

Gary, every time you post your usual complaining post, you say you have an A1C in the 5's, which seems hard to believe for someone who eats whatever they want and doesn't "bother" checking their blood sugar. When someone comments you have 8.5 listed in your profile you say it is old, but never actually change it.

Permalink Reply by acidrock23 on May 11, 2012 at 7:22pm

I just watched two pieces of Popeye's fried chicken go in my mouth, along w/ a biscuit and some rice & beans. I ran 4 miles today, still a bit creaky after Sunday's 1/2. We are having a "slumber" party (although they are watching "Joyful Noise" rather than a lurid RomCom so that is sort of a W I guess?) so I'm off to curl up with some tequilla and science fiction. That seems pretty much like a "win" to me. Maybe my standards are lower than yours and relaxing your standards might help? Although I've had an ok day so far, I am sort of too wiped out to stay up until 1:00 AM keeping an eye on the grease spike. Oh well, so far it's been an ok day?

Permalink Reply by Jen on May 11, 2012 at 8:42pm

Sorry, but how can you possibly complain about feeling crappy at 300 and then go on to say you don't test and don't use modern insulin and don't count every crumb because it's "not close to a normal existence"? By the sounds of it you don't really have a normal existence as is, anyway. If you don't put the effort into control then you don't really have a right to complain about lack of control, in my opinion.

I test ten times a day, I bolus many times a day, I count everything I eat, and sure it doesn't prevent ALL the 300s but I would have much worse control if I didn't put in that effort. I feel a million times better than I did on NPH because my blood sugar is, in general, more stable. I really don't understand why you won't give MDI a try. If you are hitting an A1c of 6% with NPH then maybe you could get to the level some people on this site achieve where they rarely go high.

I generally don't let diabetes stop me from doing things. There have been a handful of times I have been extremely high (like in the 500s) with ketones and felt awful and went home or declined things with friends. I don't feel very good at 300 but if I have something pre-planned I don't cancel it because I'm high. If I did that I would never go out. Lots of people feel crappy (physically or emotionally) for various reasons and if everyone let it stop them from enjoying life there would be no happy people in this world.

Permalink Reply by christy on May 13, 2012 at 10:08am

Gary may I ask why you are still using NPH and Regular and not something like Humalog and Lantus/Levemir...those insulins while not 100% perfect are certainly MUCH better than the old Regular and NPH, I dont know many who could maintain steady control using those older insulins. For YEARS I was on 70/30 mix with just such variable results, HIGHS and LOWS...it made all the difference in the world switching to Humalog and Lantus...and even MORE difference in switching to a pump. You have been told many times by many people, frequent testing and watching the amount of carbs you eat are key...but you refuse to do that...well IM sorry but if you refuse to do that, do what many of us on here ARE doing with consistent good results...and minimal high spikes..then you ARE going to feel miserable and like crap. It's really on you Gary to WANT to make a change and NOT let D consume every bit of pleasure and happiness in your life. I've refused to do that, Im going to live my life to the fullest. Acceptance is key, and until you accept the fact your life is not going to be 100% EASY with D, and accept the fact you need to test frequently and watch to some degree what you eat and how much of that do you eat, then you have no one to blame but yourself for feeling absolutely miserable all the time.

I apologize in advance but Gary you so remind me of patients I see EVERYDAY who just want a magic fix and do not want to take any personal responsiblity in managing and treating their illness and then piss and moan because they dont feel good or are not getting good results. Take some personal accountalbity Gary and take some initiative in TRYING to maintain some good control. When you purposely say you do NOT want to test frequently and you do NOT want to watch what you eat cause boo hoo it robs your life of any normalcy then THATS on you. We are ALL in the same boat here Gary its just how we choose to deal with it.

Permalink Reply by Gerri on May 12, 2012 at 3:03am

Gary,

Is this a poll to see if you're ahead of others for a transplant because no one else feels as awful as you do? You want proof that no one suffers like you? My nephew with cystic fibrosis is on the lung transplant list because he will die soon without one, not because he's more miserable than others with CF. One of the many things he was assessed for was his mental health to handle the rigors of a transplant. The committee seeks candidates with positive outlooks. They also look for people who are willing to follow strict regiments.

Imagine life fighting for 28 years for every breath since a baby & being hospitalized for months 2-3 times a year since childhood (at least 56 hospitalizations). Around 90% of CF lung transplant recipients become T1. A risk he's embracing to be able to breath & not being chained to an O2 tank & a feeding tube.

Yes, we know your frustration. We all share that diabetes is a burden that exacts a terrible toll physically & emotionally.

So, don't test, eat whatever & come here to vent.

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Permalink Reply by Gary on May 12, 2012 at 5:00am

Jen,

Apparently you haven't paid close attention to my posts. I've noted many times I take MDI sometimes 6 to 8 shots depending how they are running if I either test or feel it. I only use NPH through the night to cover the stupid liver spike. Through the day I use Humalog or R depending on what the situation is. I deal with more lows then highs overall. Gerri no but the way I see it is it seems most people wouldn't opt for a transplant today if it were available because they feel the tools they have and that diabetes isn't that bad. I on the other hand dream everyday of not dealing with any of this anymore. It's a good 80% of why I am miserable. So I can't blame diabetes a 100% because I do have other issues that are far from the way I would like them to be. I am also aware that there are situations of illness that are worse then diabetes but as long I can't cope very well with what I have it doesn't really matter that "it could be worse". I am also extremely infuriated in the consensus that diabetes won't be cured because "they make too much profit off of us". WTF is that??? If that be truth which no one can prove what kind of society do we live in? Let's leave people to suffer because we can keep the money pouring in. It's no different or even worse then throwing someone in jail for life knowing they were not guilty. The whole thing makes me beyond angry. Its funny how all my posts seem to get off topic but whatever. I was just curious to see how the sugar levels effected the way you go about your day.

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Permalink Reply by DeeJay on May 12, 2012 at 11:29am

A lot of us feel that way Gary, you know, thinking the system sucks for keeping the cure away from us because they profit. You sound like you are going through a diabetes burn out, its ok, you'll make it through. I had a burn out angry phase but now I'm better and taking care of myself and understanding that some people have it much worse. Everything will be ok Gary, just stay focused and value life and take care of yourself so you can feel good, it sucks, I know because I'm a Type 1, but I know what I have to do to feel good. Its ok man, life can suck but us diabetics have to keep positive and help each other.

Permalink Reply by acidrock23 on May 11, 2012 at 5:46pm

It's not that I don't fell like total crap when my sugars are 300 but I wouldn't pass on something if they did that. I guess I don't run up there very often either. When my pump failed last year, I was about 1/2 hour from home and bg got up to 280, I got home, mainlined a few units and it came back down before it hit 300. And then I roasted a pork shoulder w/ peppers and onions to make carnitas. I've had it run up before races too and I'll bolus, depending on time maybe 1/3-1/2 the normal amount and run. I've also bolused during races, again, I'll use the CGM for and the "Bolus Wizard" to calculate the amount for the level and cut it by about 2/3 if I'm doing somehing.

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Permalink Reply by Gary on May 11, 2012 at 6:06pm

My point is there is always a reason why the sugars go haywire and its just sucking the life right out me. Yeah we can keep making corrections to avoid fatality but aren't you sick and tired of going through it over and over and over and over again? I burn a shit load of calories at my job and sometimes I am headed into hypoglycemia up to three times a day while I am working... I can feel it dropping and just start shoveling candy down my throat while I am pulling orders. By the time I get home I feel like I have been run over by a truck. It's 95 degrees in there and I am working my ass off. It's really amazing I even make it through the day.

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Permalink Reply by acidrock23 on May 11, 2012 at 6:11pm

I'm not sick of it because I only do it so I can do other stuff. I don't feel run over by a truck until I run 10+ miles. 6-7 miles is just getting warmed up. And my job is utterly crazy although confidentiality precludes discussing it here suffice it to say that Franz Kafka was a claims adjuster. And I have a 13 year old to feud with. Who likes "1D" eeeek!

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Permalink Reply by Brunetta on May 11, 2012 at 10:37pm

So Kafka had your job,Acid. HAHAHA you are a "trip" Acid: ROFL!!!

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Permalink Reply by jrtpup on May 11, 2012 at 5:53pm

I don't fit into your category. I haven't been near 300 in ages because I test frequently and correct if needed. Yeah, I'd feel like crap at 300.

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