For instance if a friend calls you to meet somewhere for lunch or the movies and your sugar is 300 would you still go? If you get invited to a party or an event and your sugar is 300 would you still go? If your boyfriend or girlfriend is in the mood for some whoopie and your BS is 300 are you ready for action? Just wondering.
well, IDK...i was able to try a Dexcom last week, 7 day trial. found it was rarely close to my meter, kept saying, "LOW, trending low, 70, 60, 50, a few in the 40's...freaked me out...checked my meter - not low, but I treated anyway and ended up high...found it not very reliable. I tried the Pump this week and had two days of complete hell (highs, ketones, near DKA) because I wasn't getting enough insulin and that too felt horrible and very scary. I took the pump off thursday night and felt a sense of relief, then I loaded up my syringe for another manual injection, then again for my basal - levemir inject and I cried..and thought, "I am so sick of this already..I don't want to do this anymore," But, I (we) have no choice. So, coming here on this site should be, IMO, a place where we CAN vent. No one knows what this is like but us, us, we have to deal with this crap. Some days are good, some do better then others, some have had it longer and have adjusted, ya know. I'm burned out and tired of this. Just had a low of 53, spent the last half hour shaking, sweating, feeling dizzy..yeah, this effects me.
I'll move forward and again try the pump with better guidance, etc..and I try to stay optimistic and hopeful. At some point, it becomes overwhelming, IMO.
I recall your other thread too and, given what you'd reported about the doc cutting your TDD to 50% of what it had been, I'd look at that as the doctor's screwup, certainly not yours but maybe not the pumps either? I had the same boat this AM, woke up to CGM of 75, seemed to be mild "downy" but not crazy but, after wandering around the house for a while, getting dog out, coffee going, BG metered at 53. I have been utterly plagued by DP lately so I only had 6 jelly beans, 5-6G of carb but it spiked right up to 105 45 minutes later. I don't get the sweats too much in the 50s these days, perhaps I've burnt something out, but I am still sort of out of it but am listening to Van Halen (an interest I share w/ Gary, BTW!) to get pumped up (ha ha) to go lift weights in the basement
In short, yes, I generally do whatever I would normally do at 300. Do I feel good at that number? No, I don't, but if I give in, diabetes wins. And I hate letting it win. Sometimes I do cave and maybe lay down for a bit until my numbers come down. But that's the good thing about T1D - there is something (insulin) that I have readily available to me that 99.99% of the time makes me feel better within an hour or so. If I'm low, I treat until I'm no longer a danger to myself or others and then proceed with my life.
As someone pointed out, there are so many other conditions that are far more horrible. We have tools that, when used properly, can significantly extend our life-expectancy and quality of life. But you also have to change your mindset. You have to see this not as some horrible thing that is sucking away your life, but rather as something that is a challenge, albeit not insurmountable. It's all in your frame of mind.
And, yeah, when I see someone with cancer or cystic fibrosis or some condition that leaves them completely physically disabled, I silently give a little "thank you" that T1D is the ONLY thing I have to deal with.
My bloodsugars can so effect my plans for a day. It is worse now that I am older and have had this disease longer.
I agree. However, I've seen many diabetics who too are completely disabled, no legs, no feet, can't see - blind, on kidney dialysis, waiting for kidney transplant, strokes, neuropathies to no end. So, I just try not to compare.
I am at a point in my journey where things have gotten a bit rough. Due to diabetes and other factors my kidneys have left the building. I start dialysis this coming Thursday (that is still hard for me to say).
One other option is always a kidney transplant. In looking at things I am not sure I would want to go that route.
If a person gets a transplant that does not mean that life returns to normal. It may return to a more normal than things are now but the life of a transplant recipient is not all its cracked up to be. I have fiends who have had organ transplants and there are diets and othe regimes that they must follow which make what I do for diabetes seem like a walk in the park.
In the case of a kidney transplant the requirements for diet do not just go away. There are still restrictions. There is also the matter of all the drugs you have to take to surpress the immune system. Most of these drugs have some terrible side effects of their own. Would life be "better" if I get a kidney transplant? Who knows. But that is an individual decision. But you can bet the transplant comes with a cost.
Another thing to remember is whatever disease that organ donor has, you will now have. I hae a friend whose brother had a liver transplant and has to take extra medications because of that very fact.
Finally, let's not forget that diabetes is an autoimmune/genetic problem. That does not change simply because you get a new pancreas. That under lying problem is still there.
Do I think that at some point they will stop diabetes? Yes I do. I have no crystal ball to even think about when that will happen. I hope it is soon. Not for me though. Just for the ones that are coming behind me. THe babies that are diagnosed at birth and have a life to live with this crap. I want the cure for them. I will gladly sit here for whatever time I have left and take my shots and prick my fingers.
But I refuse to let diabetes or end stage renal disease kick my fat ass. I for one intend to get fighting, keep laughing and keep loving. I am going to keep living for every day the God Lord lets me. Am I gonna have some bad days. Oh you bet. From what I read about dialysis I am gonna have a bunch of them. But as one of my favorite Christian singers, Steven Curtis Chapman, says in one of his songs...I will be here.
I don't actually think they will "stop" diabetes as it's a genetic issue, coded into the cells, both those of us who have it now and people in the future who haven't even born yet? Even if they "fix" us somehow so we don't have to deal with the challenging pathology, there will still be a steady stream of new people going "why am I so tired and peeing all the time?" keeping demand for the cure up.
Great post brokenpole, I too intend to keep on living, loving and laughing for "every day that the Good Lord lets me." I can correct a hyperglycemic period with a manual injection, water and brief fasting.. I can correct a hypo with water, glucose tabs, Skittles or juice. It may take 15 minutes to a half an hour.. but I treat and keep on truckin'.... Gary, Deal with what you say are 20% issues and I bet the 80% diabetes proportion will come down, significantly. Anger ,stress, hopelessness, and learned helplessness do not aid good blood sugar management.But you know that, already.
Fabulous attitude, brokenpole. We can't chose what life throws at us, but we can surely chose how we handle it - or let it manhandle us. I hope your first dialysis session on Thursday goes well. Do they have wifi?
Yes they do Zoe. That is why I got the ipad so I can stay in touch with all my friends on Tu.
For the first time in my life I am going to just say +1 and leave it at that.