Does anyone else have a problem with doctors?
Hi. I am a type 1 diabetic and have been so for the last 15 years.. I just joined this group because i am hoping that someone else out there has the same struggles that i do.. I know my body pretty well and yet my doctors dont want to listen to me about anything i tell them.. either they dont believe my blood sugars can be what they are and i can retain consiousness, they routinely drop to the 20's or 30's and i can still hold a conversation and walk around.. i have been in the hospital and they have done this and the nurtse rechecked me on 3 different monitors. or my idiot doc's try and put me on a crazy high amount of insulin.. i only wiegh about 110 lbs. 7 units of regular insulin in conjunction with my lantus is not a good decision..How do you get your doc's to listen and respect your opinion? anybody got a story or answer? just hearing from someone else would be helpful right now. Thanks!
Replies to This Discussion
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Permalink Reply by Toni Crebbin on -
Do you see an endocrinologist? That would be my first recommendation if you don't already. Does he download your meter when you see him? That way the evidence would be right in front of him. Maybe you could post the area where you live, as someone on here might have a suggestion for a new doc for you. Are you wearing a pump or try a continuous glucose monitor? Those might help with the up and downs.
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Permalink Reply by Amanda Hopper on -
I am seeing an endo.. but he swears it is impossible for me to have blood sugars in the twenties and still be able to talk and walk around.. while i understand that MOST diabetics can't it is not the case with me. I dont lose consiousness till my sugar is in the teens. don't know why its just the case.. anyhow he gave me a new meter in response to the download of my sugars swearing that it must be malfunctioning because i have crazy swings in blood sugar.. I am a new mom though and so my hormones are not regulated yet.. and yes i am breastfeeding.. I am on shots right now.. lantus and novolog.. the pump is in the works for me but i am nervous about that too.. argh.. so much going on?! : ).
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Permalink Reply by Toni Crebbin on
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I don't know about you, but breastfeeding burned sugars in me like crazy. My insulin needs went way down when I was breastfeeding. My doc said it was like running around the block a few times.
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Permalink Reply by Libbie Huey on -
I have had sugars in the 30's and been able to talk and walk around. I believe you!
I remember playing softball once and my sugar dropped so low that my dad and coach had to rush me off the field...I didn't really know what was going on, but my dad knew exactly what was going on...I went into convulsions apparently. I don't really remember much after that..
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Permalink Reply by Sohair Abdel-Rahman on
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I have kids who talk and are completely conscious while their blood glucose report low. As Toni mentioned you need CGM.You burn lots of calories breast feeding. Your A1c is 9.4%,have you been tested lately for celiac disease? Malabsorption can cause this discrepancy,many lows but high A1C.
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Permalink Reply by Amanda Hopper on
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I have tested for celiac, which came back negative. at least, during my pregnancy.. now I have wild swings in blood sugar. during my pregnancy it was very well controled and my blood sugars ran in the 110's most of the time.. now they are from 550's to 20's. i dont like it but thank goodness for the lantus because then i dont drop ketones. luckily i have not had a seizure with a low, i just.. lose time. I lose the ability to stand and fall to the ground, or when it has happened during the night or nap times i just wont wake up.. i apparently talk.. but i dont wake up.. very odd. of course i dont remember any of it but my sugar only registers as low during those times. Thanks for believing me!!!
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Permalink Reply by Libbie Huey on
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proof for your doctors.....just tested and my BS is 29...I can type! crazy!
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Permalink Reply by Ivan E. Cao-Berg on -
oh libbie that isnt good either. my doctor recommends i go to the emergency if it is too low or too high. and that is too low. what do they say? i understand you because i get lows but not that low.
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Permalink Reply by Holger Schmeken on -
Why going to ER if some glucose drops will handle the low much faster?
Why going to ER if the right application of insulin will handle the high?
There is good reason for Amanda to to something about the awareness for lows. But lows or highs without seizures or DKA do not qualify for ER. This is just diabetic life.
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Permalink Reply by Amanda Hopper on
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if i went to the e.r. for every low or high i would never leave the hospital quite frankly. the hospitals around here aren't much help anyway.. a lot of people working in the hospital dont retain any more info on diabetes but "peanut butter and crackers are good for lows" I have not had seizures or anything like that but i have crazy swings in b.s.
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Permalink Reply by Amanda Hopper on
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i think maybe the doctor was trying to say that metformin was safe with the comment about mothers.. but it sounds like you werent asking about its safety.. a lot of endos want you to do things their way and only their way or you'll die.. I have as a matter of fact heard this speech on more than one occasion, apparently there are a lot of docs who flunked psychology..
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Permalink Reply by Holger Schmeken on
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Our doctors have a certain set of medications at hand to address T2. Please be aware that the doctor is just testing out things. For some patients Metformin will work in high dosages for others it will not be enough to reach normal values. He jumps to Metformin first and looks at the effect of different dosages. After one or two weeks he will look at the numbers again. Then he will decide if other medications should be tried...
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