I feel like diabetes controls my life too. It usually takes my about 1/2 an hour to pack for any kind of outing. I first have to find out how long I will be away from home. Then I have to figure out how many meals and snacks I have to pack for. Then I have to decide whether to bring refrigerated snacks or get out my cooler (another thing to carry around). Some friends have stopped asking me to join them because I give them the third degree about what we are going to do, where we are going, etc.
Whenever I hear someone say "I control my diabetes, it doesn't control me", I have to laugh (and sometimes cry). They must be fortunate, because it sure feels that my diabetes is controlling me. And because I am unemployed (just became a 99er - yuck!), I don't have any health benefits. I have to do a lot of self-diagnosing and research on my own. It is very discouraging.
As much as I hate hearing it from others, hang in there. I don't know if it makes you feel any better, but a lot of people say it to me, hoping it helps. Maybe it's all about the numbers; if enough people say it to us......
this is my last bit of info for you
it may help put this whole damn thing in perspective...
in diabetes, as in life, sometimes its one step forward, and two steps back
this powershow talk (podcast) helps you get things right in your head, to help channel the anger, FRUSTRATION, and exhaustion, so its 3 steps forward, no steps back
happy new new year 2011.
I guess it's just the fear of the unknown you know? But also some days I feel exhausted and think I need to go ahead and begin the inevitable insulin and other days I have good numbers and I think "wow maybe I am not ready for insulin just yet". For example this morning my fasting BG was 101, which yes that is rare but still very good! It's usually 110-135 which is still under the 140 mark. So I wonder if my dr. may know what he is doing by saying I'm not there yet in terms of beginning insulin. But other days when I eat very little and spike to 200 I feel I am ready and frustrated! I guess right now my only fear is running out of insulin because of how fast my c-peptide is dropping and that concerns me but I am guessing I will be on insulin sometime before 2011 is over, I am just using this time to prepare and educate myself which is a huge blessing.
This forum has been such a blessing to me as well, you guys are all so awesome and caring and you really know your stuff! Happy New Year to each and everyone of you!!
We better know our stuff, or we wouldn't be here to tell you about it, LOL!!
Happy New Year to you too, and may your problems get solved sooner rather than later!
I wonder if your Dr's reluctance to put you on insulin is that your pancreas is putting out variable amounts of insulin as evidenced by your erratic blood glucose numbers. This would make it impossible to compute the correct insulin dose. Add to this the fact that you would be a new user trying to navigate a difficult learning curve.
As regards exercise, you have to adopt a regime you can stay with for the long term. It will do you no good to burn out, diabetes is a marathon not a sprint.
Lil MaMa, I wonder if your doctor would consider putting you on a pump. If you keep careful records, you might find that you are producing insulin at certain times of the day/night. The easiest way to deal with regular production is with a pump, which can give you next to no insulin at such times and exactly what you need the rest of the time. You really need to keep complete records for you and your doctor to figure your production times out. You can also plan to work around the situation on MDI, if you have an idea of what's going on.
Just a thought, since I7 years after my dx, I still make a little insulin from about 11AM until about 4:00PM. On the pump I can program it for a small amount of basal during those hours. When I'm on MDI, I take three doses of Levemir: a little first thing in the morning, a little around 2:30PM, the largest dose at bedtime. Sounds worse than it is; you just get into the habit of doing what you have to do. Anyhow, good luck.
I am someone that also did 3 shots of Levemir. I knew that I was not getting 12 hour coverage by doing basal testing – my Levemir started fizzling out between 7-8 hours. If I increased the Levemir, I could extend those hours but then I was running low. When I did basal testing, I also did it for a full 24 hours so I know that I had fairly even coverage throughout that period. Doing that worked a lot better than the Lantus rollercoasters I had!