I went to the endocrinologist on December 20th to discuss the blood test results. He first said I need to reduce my thyroid medication liothyronine, because my levels were in the higher level, but not out of range. I told him I did reduced them and since, I have have been achy, depressed and weak. He seemed mad and told me the risks of being on too much thyroid meds and told me he could not prescribe that amount because of his membership to the National Thyroid Association. Now, I think it is crazy that patients have symptoms and don't feel well, but since there in the test results show a "normal" level doctors cant increase the dosage. Also I know that higher dosage of meds can result in osteoporosis. But do I lower my dose and feel like s*** and maybe get osteoporosis, or raise my dose, feel better now and maybe get osteoporosis, I vote for feeling better.
Then the doctor told me how sometimes he really hates his job and proceeded to explain how Hashimotos works (which I already know and he discussed this with me last time) and hem hawed around. He then told me that when a person has Hashimotos, the body doesn't stop at just the thyroid, but moves to different parts of the body.
The doctor told me my the results for the Glutamic Acid Decarboxylase Antibody (GAD) came back at 211.3 the normal range is 0.0-0.5. He told me I will develop type 1 diabetes, but not sure when. The GAD test shows I have antibodies which are attacking the pancreas (killing off the beta cells which make insulin) will eventually result in type 1 diabetes. I was in shock and I froze, so I didnt get to ask the doctor more about this. The doctor, just unloaded this huge burden and said my door is open if you want to come back and left it at that, just walked out the door. I don't understand why he wouldn't order more test results when he saw these high GAD levels. I guess he is a specialist and just deals with diagnosed diabetes, I don't know.
Hi Charity: Welcome! I have both Type 1 diabetes and Hashimoto's Disease, and I was diagnosed with Hashimoto's very soon after my Type 1 diabetes diagnosis. In people with autoimmune diabetes, autoimmune hypothyroidism (Hashimoto's) is the most common associated autoimmune disease, followed by celiac. One stat I have seen says that by age 40, 80% of women with Type 1 diabetes will also have Hashimoto's Disease. I take Levothroid, and I feel great at the levels I am at (symptom free).
I have thought about what I would do if I were in your situation. First, I would work to get better information for myself regarding the treatment of Hashimoto's. Gerri, one of the TuDiabetes admins, is a good source of information on Hashimoto's. Then, I would get the full suite of antibody tests, not just GAD (so I would get GAD, ICA, IA-2). I would do this because the more antibodies a person has, and the higher the levels, equates to a much greater risk of developing Type 1 diabetes. Getting into the weeds, I would exercise regularly and eat a lower carb diet, and I would test my blood sugar occasionally before meals and 1-2 hours after a meal. Being a person who wants to know where I stand, that's what I would do. Finally, if I felt the endo was not being the kind of advocate for my health that I want, I would go to a different endo (maybe seek some recommendations prior). Just my two cents!
Thank you very much Melitta, you sound like you have done your research. I have an appointment with a new Endo on the 13th of January, its a friday.....scary. I was doing great on my medication until it got cold, thats when I always seem to get all messed up. I am doing ok on my meds now, I am just kinda tired and joint pain. I will talk to my new Endo in lengths about this.
I am looking into the TriaNet, I don't know if I qualify to be studied, but I will sure look and see.
You and others have been so helpful. Thank you you all are truly making a difference.
i'll just throw this out there, what Charity listed as her results for her GAD 65 are sky HIGH, incredibly high, if those are indeed the results, at those HIGH positive antibody numbers, i would think (assume) that something would have already been effected in terms of blood sugars...again off the chart results. something seems odd.
Charity, don't get scared or concerned. If you're unsure of your results, please discuss with your Endo - a medical licensed Endocrinologist, who I believe you mentioned didn't want to do anything in terms of 'thyroid' for you either. none of us are doctors and can't possibly know your whole medical history...plus, there's your interaction and treatment and Dx, as you stated, with a naturopathic doctor. So, i'm not really sure with all this.