Hello fellow LADAers. I was finally diagnosed with LADA a few months ago. It took my husband taking me to the hospital and pushing for an Endo. to see me after my Internal Med. doc RX'ed massive amounts of metformin that didn't work. Anyways, I started on insulin and my blood sugar came down to normal levels. Since then my insulin doses have gone way down- to teeny tiny amounts. My Endo. reassured me this was the honeymoon phase and what makes being an LADA so tricky. I'm wondering if it is possible or wise to start on a pump while I am in my honeymoon phase. Any one done this?
We recently moved so I have to start all over again with an Internal medicine doc. I am not a pushy person, but I really am going to push to see an Endo. I had the best experience with them and they seem to understand LADA. My old internal medicine doc was clueless.
Yes, a pump can be very useful when you are using tiny amounts of insulin because you can take minute amounts of a unit, instead of a whole unit and therefore meet your basal and bolus needs more accurately.
Having said that though I can think of a few reservations about using a pump at your stage. First, if your insulin needs are changing very rapidly and going up and down you might find it trying to keep having to change your settings. More important though, a pump has a very steep learning curve in and of itself. So you want to be very comfortable with I:C ratios, ISF (corrections) carb counting, etc as well as tweaking your own doses before you go to the pump. That is just my opinion.
Hi MKSSS: I think it is a good idea to start using a pump while honeymooning, because you can better preserve your remaining beta cells and as Zoe says, you can give yourself much lower, more precise doses. It does take work and trial and effort to learn how to use it well. My experience during my honeymoon was that my insulin requirements did not vary much. Best of luck, let us know your decision and also if you get to see a new endo!
ill go somewhat against the grain and not reccomend it. Firstly, are you keeping the sugars stable with the small amounts of insulin? If so i wouldnt go to a pump, purely because if it aint broke...you know the rest :)
I faced the decision and im still honeymooning and am on a ratio of 1:30 however for some reason i will occasionally need 1.5 units for 30gms of carbs, so who knows, however i think if you can manage diabetes just as well with injections in the early phases then you can look at pumps when your honeymmoon starts to end and your requirements start to climb. I agree with Zoe also about 'First, if your insulin needs are changing very rapidly and going up and down you might find it trying to keep having to change your settings. More important though, a pump has a very steep learning curve in and of itself. So you want to be very comfortable with I:C ratios, ISF (corrections) carb counting, etc as well as tweaking your own doses before you go to the pump'. That is very good advice.
I would spend the early stages with injections so you can concentrate on things like the above before worrying about such tiny amounts being fed through a pump.
Thanks for the info everyone! I can see there are pluses and minuses. I was pretty fastidious about carb counting in the beginning but I have slacked off a bit. My pancreas seems to be functioning on it's own. I guess they caught my T1 in time to preserve beta cell function? I rarely take any novolog now. (I also eat pretty low-carb most days). I only take 2 units of lantus (I was taking 15 in the beginning!), and am a 1:30 now too. I notice when I do eat carbs my blood sugar will spike, but then go down quickly so that's how I figure my pancreas is still working. I have to be careful how much novolog I take or I end up pretty low. Also, any activity helps and I can go low with that. It's all very frustrating. I would love to get a continuous glucose monitor. I just have this feeling it would give a more accurate picture, but maybe not?
Just as a sidenote, MKSSS, it's interesting to me when I hear the experiences of you and other newly diagnosed LADA's. I was misdiagnosed as Type 2 and did fine on oral meds for 15 months (what you would call my honeymoon - I don't use the term for LADA). Who knows which is easier?
I was on metformin for about a year and a half before it stopped working. That's when I started seeing the Internal medicine doc whose idea was to push for more and more metformin. I think eventually she would have realized it wasn't the meds, but my #'s were in the 3-400's at that point and I shudder to think of how long she would have pushed for different kinds of orals or what before I was really in a bad place. I was already feeling sick all the time and my vision was blurred. I don't really fault her too much. My initial T1 test was negative (beta cell or enzyme something or other). It was the Endo docs who knew to test for more than just the standard T1 test to figure out that I was T1/LADA. SHe told me later she wouldn't have thought to run other tests.
It took about a month and a half before my blood sugar came down to normal levels and that is with lots of insulin.
Hi, I am in the same situation, I don't have much in the way of advice because I have a lot of same questions. I was dx in April and currently take Lantus 10 units at bedtime and was doing Humalog 1u/10 carbs before meals but it seemed to be too much, I was constantly chasing lows, one of which required assistance from my husband because I was completely whacked out and that scared the bejeezus out of me! I now do 1u/15 carbs and it works better but even now sometimes it is too much...or not enough :/ I just can't seem to predict it. My endo is great and really feels the pump is in my best interest but I am not convinced yet. I am still weighing out options. I really want to get a CGM to help manage this and also to alert me to some of these incapacitating lows I get because I fear them, mostly because I have 2 small kids and if I am out with them alone I worry about the "what ifs" Sorry I guess I can't answer your questions but I can sympathize with your situation, it seems as if we are in a similar place right now!...and for what it's worth my family dr was useless, just kept saying I had type 2 and giving me med after med that not only didn't work but also made me ill. I sought out an endo on my own and I am so glad I did because I knew more was going on, finally I found a dr who not only listened to me but frankly told me within moments of sitting down in her office that I likely had LADA/Type 1 and ordered the appropriate testing! I wanted to kiss her LOL. see an endo and research them because not all endos are created equal, I am so glad I found the right one for me, it has made a huge difference!
Wow! That is so crazy- we're about a month or two apart in our dx's. :) I have three kiddos. Mine are 9,5, and 2, so for the older children I have instructed them what to do in case I go super low. Thankfully I have symptoms and I have caught it myself everything. The bad thing is that they are in school most days, and I don't think my 2 year old would be much help if I passed out. I had a family doc too who insisted I was type 2 for a long time and then an internal medicine doc who wasn't much more of a help. And I feel I can't really fault them since there seems to be ignorance at large in the medical community about LADA or T1 developing in adults. One of the contributors here wrote a blog about it all that I found very informative and enlightening. TuDiabetes has been very encouraging for me in general! Glad it's out there. Thank you to all the staff and volunteers who give their time to do this!!!
wow we seem to have a lot in common, my kids are 4 and 2, I was dx with GD during both pregnancies and then almost exactly 2 yrs having my son I got the dx of type 1 (LADA). My 4 yr old kinda gets it, I think she would be able to help if she were around and I needed her but not so much the 2 yr old, I guess you never know? kids are pretty smart. Anyway, it is nice to meet you and others who are in the same position as myself! If you decide on the pump I will be anxious to see how you like it!
Just wanted to say the thought of pump tubing and constant attachment has me in a state of fear and loathing for lack of a better term haha....it is one of many concerns I have for pumping. I ordered the Omnipod demo kit and wore it for a couple of days and while it is bulky it seems a better alternative to the tubing, if I go with a pump I am pretty certain it will be the Pod although my endo is a huge advocate for the minimed pump.
Just an fyi, kimmiejo: Almost everyone says tubing and attachment is what they worry about ahead of time with regular pumps and then after they have it they say it's no big deal. I have to touch mine sometimes to make sure it's still there. Everyone makes the choice that suits them best, but you might want to check out the reliabiity of the omnipod vs the minimed and/or try a trial of the minimed too before deciding.