timing.....i am so laid back that i never get my timing right. now you have to eat here and exercise there and don't forget to test and start all over again. the funny thing is i could always remember to do it when i worked. something about ticking off the boss. not exercise of course, but the testing and eating. it drove her absolutely nuts. believe me she deserved all of it. i'd say definitely, life keeps getting in the way of getting a handle on my diabetes. life keeps messing up my timing. and maybe a scatter brained brain. call it old age, or just plain lazy but if i could just remember what i am doing from one minute to the next i would be super woman in the diabetes department. everything else too.
the hardest part for me is routine...I don't like routine for anything..and while the pump gives yu more felxibilty,I am brittle/labile/reactive enough that if I go much off scheudle even with the pump my BG's show it...
Hi Domo, Actually after having diabetes for almost 45 years years I guess nothing is difficult to find time for. It is all just second nature for me. Of course, testing was the hardest thing for me when I was first diagnosed. I hated testing my urine and never understanding why I was high when i felt so bad. Now the finger sticks are just that. nothing to worry about. I decided if i had to have this sisease i might as well figure out a great way to deal with it. So I just accepted the ups and downs and found this disease to be interesting and somewhat challenging.
I hope this helps you. Karen Type 1 since 1964
I think the hardest part is counting carbs and figuring out how much insulin is needed. But after years of doing the same thing over and over you get used to it and forget what life is like without having to manage your diabetes.
Eating is VERY hard, but I would have had to work at that anyway to lose weight and stay healthy. I'm only as good as I am with my eating now because I didn't do it for the diabetes, I did it for my figure! The shots and testing never bothered me. Sometimes it's annoying to have to stop and do them but I was always kind of fascinated by the science aspect of it.
For me, it's the rigidity. The sheer amount of time and energy I have to devote to diabetes, all the planning ahead and the limitations. Where other people can just cut back some calories and lose a little weight, I have to make sure all my meals fit not only my weight loss nutrition needs but my diabetes nutrition needs. Where other people can just sit down and eat if they're hungry, I have to solve equations first while my food is getting cold! Other people can hit the gym whenever, I have certain times I have to avoid working out, and I can't decide in the middle of my workout that I'm having fun and I'll go for longer today. I'm not a super-spontaneous person anyway but just knowing that I CAN'T do things on the fly makes me resent it.
And the thing is, diabetes care is so much more flexible now than it was when I was diagnosed 13+ years ago! Maybe that's where part of my resentment comes from. It was really hard to go from being a carefree kid to having all these restrictions (back in the NPH + Regular, "diabetes exchange" meal plan days) and everybody looking at you kind of funny because they didn't know how to "handle" you. Maybe if I was newly diagnosed now I wouldn't have quite such a sore spot about this.
I'm a perfectionist, and I want things to happen as I predicted. For me, the hardest part is that, if I follow all the rules, give myself the sanctioned amount of insulin, exercise, etc., my blood still (often) aren't in range. Or one day I'll eat something and give myself some insulin; if I do the exact same thing the next day, I'll often end up high (or low), and it just frustrates me enormously. I want this to be predictable, and I want my blood sugars to be perfect. But, no matter what I do, my blood sugars aren't perfect and probably never will be, and that's REALLY hard for me to accept.
If you follow the diabetes online community, you know that #MedicareCoverCGM is a big deal. We have continued to raise awareness on #MedicareCoverCGM because we believe that ALL people living with diabetes should have access to continuous glucose monitors (CGM). With Read on! →
A few years ago, we at Diabetes Hands Foundation reached out to the members on TuDiabetes and asked them to share their perspective of life with diabetes through one of the five senses, as part of an initiative called Read on! →