I'm glad you're going back to the doctor and I'm sorry they haven't given you any clear answers yet, but keep pushing and asking questions and asking for referrals as needed. I'll never forget the first time I went and got tests from a cardiologist for some persistent symptoms. He said not one word during the test, then when he was done he said in this dismissive voice: "There's nothing wrong with your heart." I then asked "then what's causing the symptoms?" He just repeated the phrase in a tone that said he might not believe I even had symptoms. After he left the office his nurse said to me (in an apologetic tone for her boss). "You might want to see a gastroenterologist; sometimes acid reflux can cause arrhythmia". I did and have been treating the two together ever since.
I understand you're scared (I would be too) and are grasping at answers, sorry if I came down a bit hard on you for looking for them here. Let us know what you find out.
I would have that looked into RIGHT AWAY!!!!! Sounds VERY serious!
I agree with Linda. Do not wait.
Glad to hear it, Lab! Though of course that is nothing to sneeze at...hope they find a good treatment for it.