My boy is still in honeymoon, but has been on the same dosages for insulin for a month. I figured from this point forward, he'd start gradually going up but over the past week, his BG has been quite low through most of the day and most concerning, before bed. I've dropped his dosage today with little impact (guess it needs to come down further tomorrow), but is this standard stuff? Will the levels his body produces in honeymoon phase vary?
Laura, how old is your son? Mine is 12 and diagnosed last summer, his honeymoon stage lasted about 5 months, like you we had to lower insulin doses for quite a while, we sure knew when it was over though! Had to increase and increase and increase. For some the honeymoon stage seems to be an easier time (we had consistent BG's consistently between 5 and 6 and with few lows) and for others it is more of a rollercoaster. Now that we're out of it we are finding it a little harder to avoid the higher numbers. Every kid is so different.
Hormones play a big role, as does activity! My son seemed to end the honeymoon stage and enter puberty in a big way at the same time :)
We are on MDI (lantus once a day and novorapid for all meals) recently switched from nph and novorapid. My son is much happier with the MDI, gives a lot more flexibility in when and what he eats. We are hoping to start pumping in the fall.
I agree with you about the backward-blessing of age, Michael has done all his testing and injecting from day 1.
Are you on facebook? There is a great group of Canadian parents on there that is super for support, message me for details.
Suz, I'd love the FB group info if you wouldn't mind.