Hello Everyone. I am the mom of a 3yr T1, dx just over 6 months ago. Overall, we are doing pretty well. My question is for those that were dx as a child. Of course, my daughter comments about how she hates diabetes and that she wants it to go away or wants it "out of her body". She asks us if we had diabetes when we were little like her (no one in our family is T1) and if it will go away when she is an adult. I try to walk the fine line between allowing her to have her feelings and making that okay, and not putting too much into it and feeding the fire. My standard answers usually sound something like "I know you don't like diabetes, insulin, etc its not fun at all, but we have to do these things so you can stay healthy and have energy to do fun things." Or "I can't make diabetes go away, but I can do everything to help you feel good by having good numbers and that means eating healthy foods and doing insulin" Or "I don't like diabetes either, but lets just do your insulin quickly now and then we don't have to think about it again until supper" I guess I kinda follow the technique that I acknowledge her feelings but try to move on quickly afterward. If we dwell on it she starts to have herself a pity party (part of which is her being dramatic as she knows it gets a reaction.) We have also sat down and let her vent about it as much as she wants, so don't get me wrong that she never gets that opportunity- she does. The major melt downs are rare and ironically those I can help her with. Its the day to day repetative comments I am not sure how to handle. I want to be her soft place, for sure. Help me get it right.
What I am wondering is, what did your parents say to you as a child that helped with the emotional side of things and what did they say that made you want to scream "you just don't get it!"
I was diagnosed at 10 and ur doing the samething my mom did. GOOD FOR U!!!! My dad?? Well that's a whole other story there. But I think that if u let her talk about her feelings and u share urs with her u guys will go far. One thing I think u must do is tell her she will never out grow it. I'm sorry for her but that's true. Bess u mom ur doing a GOOD JOB there!!!
Thanks Doris. I read your post earlier today actually, which is partly why I posted mine. I never want my girl to grow up and think I did or said anything hurtful. I only get this one chance to help her adjust to her new lifestyle. I hope when she is grown she can look back and think that she was able to forget she had to live with diabetes most of the time and just got to be a regular kid. That would be the best compliment I could get.
Oh one more thing tell her she can do ANYTHING..THat will make her feel lots better my dad was one who told me I could do nothing my life was messed up (not that nicely) for now own
Oh ur welcome! I want all the kids to know that life don't end just b/c u have diabetes. U can (and will) go on!