I had to switch endos last year. My beloved endo at Georgetowne U left and I had to scramble. Saw the replacement almost a year ago. In our conversation, he asked if I was only using him to "update" my pump and CGM supplies. It is true--once a year is my norm. Calls? No one answers or gets back to me for days, so I gave that up a long time ago. My PCP writes my scrips, does my bloodwork, etc.
How often do you visit?
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Nope, sounds like you have a smart endo, Capin, who respects your management!
I actually do the home A1C tests and tell my doctor the results. The last time I did a lab one was when I got my pump a year ago.
Permalink Reply by T1Forever on April 2, 2012 at 5:07pm I agree. My endos have no problem with my infrequent visits. My PCP does my A1Cs twice a year and sends them to the endo.
I see my endo every 6 months. When I was first diagnosed, I went much more often. My self-care/A1c are quite consistent, so 6 months is good. My endo has been a huge advocate for me, so seeing her every 6 months helps me get some goodies such as my Dexcom (which I love).
Permalink Reply by MyBustedPancreas on April 2, 2012 at 4:20pm If my endo had it her way, I'd be in there every 3 months, and never a day late. However, life (which includes work, travel, family, etc) just doesn't make this possible. I travel some for work and have a busy life, so I generally go every 6 months or so, and I consult with my endo (or the CDE at her practice) via the phone if I have issues. Because I use Carelink with my pump, my endo's practice has access to all my data and can help me troubleshoot if I'm having any issues. But, honestly, most of the time I'm able to figure out how to correct any problems without their assistance.
Up until a year ago, I went to an endo religiously every three months. I got tired of going since I didn't think he gave me anything of value. And I guess I don't respect his attempts to give me day-to-day BG control advice.
What I really need is a doctor to write the scripts I need and also to read my blood tests to monitor my kidneys, liver, and heart health.
I just saw my endo recently after a one year absence. He reminded me many times that I need to visit more often but I didn't push back. I don't really want to tell him what I think and get into an argument. I think twice a year should be plenty.
Permalink Reply by karen on April 2, 2012 at 4:38pm I do not go to an endo or cde. I see my amazing doc once a year and she sees after all of my health needs. Her office calls to remind me it's time for a physical. Doc orders labs twice a year but I don't have to have an appointment with her for them. If I should call for an appointment the doc gets me right in...she knows something is wrong :)
Permalink Reply by T1Forever on April 3, 2012 at 7:03pm I love my PCP. Been going to him for 22 years. I am going to become my father--he totally freaked when his long time doc retired. Only thing I have going for me is that my PCP is younger than me!
Permalink Reply by MossDog on April 2, 2012 at 5:09pm I have never seen an endo in my life. I work with one every day though. I suppose if I NEEDED and endo if I were in the hopital etc I am certain he would come see me :-)
I haven't had anyone tell me to change my DM management since High School. I suppose my PCP's always figured I know more about MY diabetes than they do. PCP's tend to get the deer in the headlight look when you tell them you have a pump. I then rattle my basal rates etc off to them and they just kind of let it drop from there. When I need scripts for infusion sets I write it for them and have them sign. I am reasonably certain none of them have really even known exactly what they are.
I'm so glad I'm not alone in my non-attendance or as the docs might say...non-compliance (god I hate that phrase!). If I could have a white coat who was knowledgeable and also a Type 1 like you, MD, I'd go just for the pleasure of sharing ideas!
Permalink Reply by Leo2 on April 3, 2012 at 9:49am In the final analysis, it will depend on how often your Durable Medical Equipment needs certification in CA, who is doing that certification, and whether or not you're retired so that Medicare is your primary or secondary when you finally have it.
I have CalPers (California public retirement system) insurance, Leo, that links with medicare when you're 65 where Calpers covers some things and medicare others. I suppose I should read about it, but I have time. I've been on my pump for a year and 3 months and haven't heard anything about certification. Can I say I'd be like a mama with a cub if anyone wanted to take my pump away..lol
Permalink Reply by Brian (bsc) on April 2, 2012 at 7:19pm As a medical professional, you might behave this way, but you wouldn't really suggest this to an average patient. Would you?
Manny Hernandez(Co-Founder, Editor, has LADA)
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