My endo only checks my pump info when I come in every 3 months. She only downloads the last 2 weeks of info off the pump to review. When I first started going to her she had me come in every month for a while.
Anytime I feel like I have a issue. The data is online and they can look at it anytime I upload my pump every Monday morning. I see my Endo every 6 months but when I first started pumping it was 1 month then 3 months for a couple of years .
Thank you for the input.
I was not sure If I am not cooperative enough frowning upon this request.
I think it should be reviewed
- on the visit
- if problems, needs for setting adjustments etc
my endo downloads my pump with me at every three month visit. as far as tweeking is concerned, i use my best judgement and if all else fails i call him on the phone. he is amazing and will call you right bk even if it is a holiday or 3 in the morning. i am very very lucky. i have been with him for 25 years and highly recommend him to all my D friends.if you know anyone in the NYC area, i'd be glad to hook you up!
I think the new thing these days seems to be that the Endo will see you every 3 months but you keep in touch more frequently with the Diabetes Educator in that office to go over any blood sugar/insulin tweaking that needs to be done.
I upload my pump data before any phone or in-person appointments I have with my diabetes educator and am thankful that someone cares enough to want to study the data to find any trends they see that they can help fix.
Based on how your control is, the appointments with the diabetes educator can be every few weeks/1x a month, etc. It may be more frequent if they feel the need to monitor you more closely.
My endo has never asked for a download.
Wow! R U happy with the care you are receiving?
I had to change provider 2 years ago 2/2 move. The new provider attempted to monitor my T1 on pump with A1C. ...I changed provider.
I know about one T1 with A1C of 7.1 but if you look at actual blood glucose levels, he has every day extremes like 30-300'. In case like this A1C has not much value as a prognostic factor.
My endo does request print outs when I come in for a visit, and she has access to my account (Carelink via MM). She has used this access when I've had issues between appointments, mostly to troubleshoot basal rates. She also reviews my basal rates between appointments and helps me figure out if there are any issues with those. I mostly don't need her assistance, but like to have someone else look over things in case there is something I miss. Honestly, I would feel like I was getting NOTHING from an endo who didn't request and look at this information.
I sort of think that an offer to check weekly is an improvement over what we usually get. With weekly, I would think it would greatly enhance the chances of having the doc know what's going on. If it's a new doc, perhaps she wants to get to know you and your diabetes, how you approach it, do you make lots of changes on your own, etc., etc. My doc gets the upload before visits and we discuss it. Similarly,
I'm not 100% sure who on her staff is a "nurse" and who's a CDE and if the "nurse" who does email is, in fact, a CDE or a regular nurse (maybe a better nurse than a CDE? I don't actually know anything about nurse "rank" at all...). I could ask but I'm not a big question asker. The one time I had an issue, by the time they got back to me with their recommendation for a change, I was like "oh, I did that yesterday..." I could care less about the big brother implications of sharing diabetes data. It would be unintelligible to just about anybody but you guys.
I agree that there's sort of a patronizing element to it. On the other hand, I think that my doctors are smart and, if they had better data, they could probably kick my numbers up (or down?) another notch. I'm not really engaged with my doctors, as they look at the numbers for things to talk about like "what's up with this [string of odd numbers...]" to which I can just sort of brush them off "oh, the CGM was off" or "I exercised more that day" or whatever. I'd maybe ask the doc what they were looking for but, the way it works out, you talk to the receptionist to make the appointment and they will likely be either clueless or sworn to secrecy about the doctor's plans or simply say "I'm just the receptionist...you have to ask the doctor." I'd interpret a doctor's desire for more data positively unless there was a problem with their interpretation of it. I don't usually go to doctors unless I like them, even specialists.
I understand how you feel. But what is your endo's response when you say, "Hey, I'm happy with how things look and are going!"? Does he/she push further to correct in the manner suggested, or are you left alone. My endo may make a suggestion, but if I have a good reason why a suggestion won't work, my endo respects that. Ultimately, I'm the one running the pump and I'm the one who has to deal with the consequences of a low or high BG. So, I am OK with an endo looking (like you, I've got a lot of experience with this), but I would NOT be OK with an endo pushing suggestions/changes that I did not think were warranted.