I am giving up the Omnipod. Omnipod lovers please skip this discussion

I asked that those who love the omnipod not to read this because I know how defensive people get about their pods and I truly need advice and don't want to be bashed and blamed for the lack of success I have had. I am also not bashing the Omnipod system- just sharing my experience and disappointment. I really need help. Thank you. I think it's great that some of you have great success with the system, but I haven't.

I have been on the Omnipod for 3.5 years and it's been a tough journey. I had it working well on and off and when it did it was amazing. The last 6 months have been horrible. I have a 30% failure rate during priming. Here and there I'll have only one pod fail out of a box of ten- 10% rate. They also fail while I am wearing them. The PDM also has failed three times in a year. It's not user error. I have had reps, technicians, and my doctor all confirm that I am doing everything right. I've had a few months go by and everything was great. Then with no change in diet, exercise, or application the pods go bad and malfunction left and right. Yesterday customer service told me that the pods may be expiring even though there is more than a year left until the expiration date. They also said they have had quality control issues in the past and maybe I have old pods from that time period. My A1C has gone from 5.9 to 8.1 incrementally. 5.9 was on MDI

So I have to give it up and am very nervous. It was my first pump in 23 years of having diabetes. Now I am going all the way and getting a tubed pump and don't know what to expect and feel very depressed about it. The thought of being tethered to a tube makes me feel like I am a sick person when I have always maintained a positive attitude about having diabetes and not made it who I am, just something I have. I love the freedom of the Omnipod and the idea of it is brilliant. it just hasn't been reliable for me. I am so amazed and impressed how many people here get it to work so well. I try so hard and just don't understand it.

so I am writing to find out what to expect. Those of you who have gone from a tubed pump to the Omnipod- can you help me understand what I am going to experience? What to prepare for? Has anyone else gotten to where I am with the Omnipod? Anyone else close? I am really scared about the insertions of the cannula. I hear they hurt a lot more than the pods. Is that true? How much is my life going to change?
Thank you so much.

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Replies to This Discussion

For SOME people tubing is a big deal. For most they can find a way to at least come to peace with it.
I'm always amazed when I read threads about pod failures. I've been podding for 15 months and have only had 2 pods fail while priming & 2 or 3 others after a day or two of wearing. I'd say I've had less than 1 bad pod per box. At this point I would never consider tubing. My bad pods have all been replaced for free.
Interesting. I also had communication problems when I started, and found that when the bluetooth on my phone was turned off, the problem disappeared. I advise to perform your pod changes in a low RF environment.
yes I have been doing this for a couple of years now. I used to sit at my desk and do pod changes in front of my computer.
Hi Brooklyn....so sorry that this has been your experience. Plenty of people have had happy experiences with pumps of all types. Maybe your next one will be perfect for you. If not, there is so much technology out there. It will only get better for all of us. This is a temporary bump in the road. Good luck to you.
It's all about figuring out what works for you. I went from tubed to tubeless about 3 yrs ago and so far have been pretty happy with Omni. Sorry that you've had such a bad experience. Maybe as time goes on the Omni will get better or new players will enter the market. Meanwhile, good luck with your change to hopefully a better insulin delivery system that will not curse you with failures. It's all about better control no matter how we get there.
I understand your frustration. I have been on the pod since April of this year and things were pretty good up until this month. I got my A1C down from 8.5 to 7.2. But, this month I have had 10 pods fail one way or the other. And an additional 3 to occlusions which I guess is my fault. But it had me thinking about going back to the old "ball and chain" (tubing). And I really don't want to because my doctor tried so hard to discourage me from getting it. He really doesn't like it but when I went in for my check up for the first time since wearing it he had nothing to say but good job. So I'm trying to stick with it.
The ball and chain is what scares me. i have never been on a tubed pump but tried a dummy one for a few weeks and didn't like it. my doctor doesn't like the Omnipod and says I am the only one of her patients who made a success of it. that changed though this year with all of the pod failure problems. Good luck and I hope it works out for you.
Yeah that is the same thing my doctor said. He wanted me to get on the pump that you are going to. He had some guy that worked in his office call me and explain to me how everyone there is on the Paradigm and the ones that were on the Omnipod switched to it.
Me too, but they haven't given me any grief about it. Last A1C was 7 which was down a full point from before. Most of my problems with control are not the pod, but my own inability to figure bolus based on carb intake. Always a struggle for me. I suspect it would be the same challenge on the tubed pump.
Brooklyn,
I'm sorry to hear about all your problems with the Omnipod. That's got to be so frustrating! Especially because the whole point of the Omnipod is to make your life easier, and if that's not the case, then you should absolutely try something new. The tubed pumps really are not that bad. There are automatic inserters to put your site in (not as automatic as the Omnipod, but it's definitely easier to the "quick-sert" or whatever it may be called than to put in your site in manually, IMHO) and most people probably won't even notice your pump-- they'll think it's an mp3 player or a phone or even a beeper (although why someone would think beepers still exist in 2011 is beyond me! :) ) so don't think that you are a sick person or anything! You are doing what's best for you to control your diabetes, and that's what being healthy is all about! One quick warning about the pumps though-- just like you have to be careful not to run into any doorjams with the omnipod, watch out for door handles or anything else that you can get the tubing caught on! I will say though that knocking the omnipod off hurts a lot more than ripping out a traditional pump site (yes I've had LOTS of experience with both) but neither are pleasant experiences. There's a learning curve, but it's not daunting!

I really doubt your life will change that much, except that you'll probably feel a lot better about your self and your health when you don't have to worry about a system that is constantly failing you like the Omnipod did.

I wish you the best of luck with your new pump and I hope & pray that it gives you the results that you need!!!

--Kelsie
Thank you Kelsie for the thoughtful and constructive response!
I also knock the pod off a lot though I got much better over time. Today literally on my way to the doctor to discuss the switch first I sheared the pod right off pulling my jeans on. I hadn't done this in awhile but I changed it last night from my arm because it failed- Pod error! replace pod now! So I thought it was still on my arm but it was on the leg. Then I filled a new one and it malfunctioned during priming. The second one also failed during priming. The third one worked. it felt like a sign that switching was the right thing.

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