I don't even know where to post. Marriage type I, CKD, end stage renal failure, dialysis.. Grrr
Screen name says it all! I'm a type II (19 years) married to a type I (30 years).
In a months time we went from everything was "fine" to scheduling a surgery for Peri Dialysis on the 6th of Dec. His body is just quitting on him. Meanwhile I've been off insulin for almost 9 years, and my normal BG's have started creeping up. I'm usually under 110 fasting now I'm in the 130-160 range. Stress I'm sure isn't helping.
With all these changes happening I'm very much being supportive, and trying to behave as if everything is ok. In truth I watched my daughter 7 years ago die from renal failure. I'm freaking out, I'm worried about his health. The decline I've witnessed in the last two weeks is the most troubling. He barely speaks to me, make no effort of contact, spends all his time on SecondLife. Now I know he doesn't feel well, but I'm scared and lonely too, and I miss my husband. How do I gently let him know that I need him to be here for me too. I've done everything I can do to support him and give him the whole cheerleader routine. I cannot lose him too either to the kidneys or neglect.
I am not a subtle person and I don't want to hurt his feelings or make things worse. Please someone help?
Replies to This Discussion
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Permalink Reply by Brian (bsc) on -
I'm sorry to hear all that has befallen you. It can really be hard to handle. And while you might think your husband is just escaping, he may just not be ready to face all that has happened. Perhaps the best you can hope to do is support by making sure he eats properly, takes all his meds, tests and takes his insulin. Tell him how brave he is and remind him of all those that love him. And most of all remind him, that the only reason he lived 30 years with T1 was because he took care of himself, and only by taking care of himself will he make it through this.
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