Replies to This Discussion

Permalink Reply by Joe on November 26, 2011 at 3:01pm

Is he on insulin? So many questions. Stress is a massive part of diabetes. Water is great but if he's running any kind of high sugars he will be dehydrated.

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Permalink Reply by angelic 1 on November 26, 2011 at 7:24pm

yes he's on insulin. not sure its the best and it will have to be looked at before we can fix these things. He actually is new to the site. Havnt seen him on here yet. I will need to bow out of his conversations if I see him participating though because I want him to become active in this and not worry I will jump in. Wonder if there a App to tell you when you have amessage ect on tudiabetes.com. anyone know? Well anyway I hope everyone had a blessed Holliday:)

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Permalink Reply by Joe on November 26, 2011 at 2:35pm

I am very happy to see all the great feedback for you. Although I am new to this site, I have had T1 for almost 30 yrs. I work for Nike Basketball and have seen many T1's go thru what you are. I think its important to remember when you exercise, especially for 20 to 30 minutes, your body spills sugar on its own to keep you going. Nothing you can do but know when your done exercising you may see elevated surgars for a bit depending on what amount of insulin was taken. Usaually 45 to an hour after exercise you will see sugars start to drop and the insulin you took to cover the "high" after the workout, comes to really bite you as a long low. I'm sure you are aware of most of this but we all go thru it and keep your head up. You can do this and you know that all our stresses in our life do something to screw our sugars. lol

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Permalink Reply by Typeoneforlife on November 27, 2011 at 8:30pm

I do not use a pump. And I too hate having diabetes(type 1) but it is something we have to live with. Live how you want to live because i feel diabetes should not control your life, but having regular scheduled meals helps me with my sugar. I eat what I want but eat breakfast lunch and dinner at fairly consistant times of the day. It sucks but part of the life. My A1C has ever been over 7.2 but I avoid strong sugars, but other then that eat what I want.

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Permalink Reply by Kristen Marie on November 29, 2011 at 10:40am

This post caught my attention right away because thats whats going on with me. I feel like I try so hard to keep my numbers in check and no matter what I do, they go high! then I end up over boulsing also. Its very frustrating. I can't believe you've had to put up with this for 21 years! I've only had it for 3 years and I already feel like giving up. Everyday is a huge struggle for me... I also just got back from the Mayo Clinic and was diagnosed with Autonomic Neuropathy. So now I have all of this constant pain on top of not being able to be in great control of my blood sugars... what to do... I don't know either...

Kristen

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Permalink Reply by TheOneType on November 29, 2011 at 12:33pm

I'm sorry you are going through a hard time but it will get better you will see, just dont give up keep fighting, there are people on here that have had D way longer than me and they are healthy with no complications that there gives me hope, that I too will live a long healthy life we are just going through a rough time right now but I am hopeful that it will get better :)
hope you are able to control your glucose soon try not to stress because that makes it worst. Take care :)

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Permalink Reply by PaulO on November 29, 2011 at 12:15pm

Hello everyone. I'm a Type 2 diabetic since 1998. I too have been where many of you have been. At times, I thought..why bother. Nothing is working. I might as well enjoy myself while i still can. I've gone though the weight loss, gains, weird cravings, high/low sugar, infections etc. I've been there. I recently made a lifestyle change and I have seen some pretty drastic changes to my health in a few short weeks. I joined weight watches with my girlfriend. We are doing it together. We also changed our eating habits along with daily exercise. It's working. In the last 2 weeks since joining, i've shed 9lbs, and my sugar has never been better. I'm even taking less insulin on a daily basis (was 70U of Levamir per day and 50U of Novolog per day, now is 60/40). I feel better too. I know that WW is not designed for diabetics so I had to make some adjustments. The important thing is that i'm seeing results. I cut out most of the salt in my diet. No more canned veggies. Either frozen or fresh. No more canned fruit, only fresh. Limited red meat and no pork. No alcohol. Very limited items get fried and those that do, i use olive oil. I drink alot more water and cut down on the soda(diet), tea and coffee. I know thats a big change but its working and I feel fantastic. My BG used to hover around 150, now it hovers around 80.

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Permalink Reply by TheOneType on November 29, 2011 at 12:27pm

that is great good for you PaulO!! Happy to hear that you have control over your diabetes I to have been exercising and have changed my eating habits and I did see results at 1st but now it seems like nothing is helping but I'm trying and not giving up I guess we just go through such hard times that it just makes you want to give up and not do it anymore especially since we have been at it for so long non stop you know.. Best wishes to you and keep it up :)

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Permalink Reply by MikeO on November 29, 2011 at 12:46pm

Hi – I’ve had type 1 for 39 years, so I’ve gone through this a number of times. The unexplained volatility of bg levels is frustrating and scary, but fixable. It may take a while and you’ll have to do most of the problem solving. The anxiety only makes the problem worse, but it’s very hard to tell yourself not to be anxious and just ride it out.

The psychological strain of diabetes is really not focused on very well. You show up with a good A1c and your physician pats you on the back and sends you on your way. You show up with a high A1c and he/she starts to work on technical fixes. In neither case do they focus on the mind, only the body.

You can’t ignore the disease, but you also can’t be at war with it 24/7. I fought my diabetes for about the first 15 years and practically gave myself PTSD. Here’s a way of thinking about diabetes that helped me do what I needed to do, but not get too anxious or overdo it. About a century ago my family lived along the Niagara River just above Niagara Falls. They had an attitude about the river. I was a massive force of nature that they had to adapt to. It was not going to adapt to them. It didn’t hate them or have it out for them, but if they didn’t stay aware and account for its power, it would kill them in a minute. That’s how I think about my diabetes. I have to adapt to it. It won’t adapt to me. It doesn’t hate me, but it will be the end of l me if I’m not careful. It helps be to strike a balance. Hopefully it will help you too.

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Permalink Reply by TheOneType on November 29, 2011 at 6:52pm

Love it thanks so much for sharing! :)

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Permalink Reply by Janis on November 30, 2011 at 11:40am

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Permalink Reply by Janis on November 30, 2011 at 11:46am

I was diagnosd at age 12. That was 43 years ago, and during that time I have had the same frustrations as many have voiced in these messages. But I'm here to say that you can't give up! I'm living proof that living a long and happy life with type 1 diabetes IS possible. I just had my A1C checked, and it was 5.6, my eyes are good, and all my organs are strong. I have neuropathy complications in my feet, but that is the only side affect I've encountered. But I have not always been "on the wagon"...I've gone many years with terrible control, It's possible to not be always perfect, and still be healthy in the end, so don't beat yourself up over the high BG readings, the occasional cookie or donut, or the slice of pizza--If you keep your sights on the long term, big picture, you can and will eventually find your balance.

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