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Permalink Reply by Melitta on June 11, 2012 at 7:35pm

Have you seen the MODY group here on TuDiabetes? Really excellent info there, and good support.

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Permalink Reply by Brian (bsc) on June 12, 2012 at 4:30am

I have a keen interest in MODY, suspecting for some time that I might have MODY-2. But I've never been able to get any doctors interested in testing. We do have a group we have started on MODY and we do have some members with MODY. You are actually fortunate to be in the UK, the worlds foremost center on MODY is at Exeter.

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Permalink Reply by sparklyredshoes on June 13, 2012 at 9:30am

Hello -

I see you're in the UK too! I have MODY type HNF4α, confirmed by genetic testing, and I live in Glasgow, Scotland. Happy to chat if it's any help to you :-)

Re. treatment, I'm currently treated with 40mg Gliclazide which gives me very good control - I have a very strong dose response to sulfonylureas (that's a MODY thing I think) so I only need a tiny dose.

Some MODY patients who were previously thought to be type 1 have been able to switch from insulin to sulfonylureas and get better control, although many people with MODY do need insulin eventually - don't know what stage you're at but correct diagnosis of your type should mean that you can be treated in the best possible way for you.

Do you know yet which form of MODY they think you have?

Sparklyredshoes

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